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Suspect my Suspension has failed Suspect my Suspension has failed

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  #11  
Unread 05-19-2005, 04:33 PM
Suspect my Suspension has failed

Hi ladies -

I thought I would post and give an update.... First off, its most certainly not my back that is causing the pain. But my Urogyn gave me the blow off when i saw her last month, said I have a Cystocele but nothing warranting more surgery and referred me to the pain clinic. I tried to tell her it wasn't my bladder that was the bulging. But she didn't believe me So I've been taking strong narcotics waiting for that appt that haven't really helped.

At first I thought it very well could be my back, until my husband and I attempted intercourse... well it was extremely painful (have not had any pain whatsoever with it since the hyst). To me, that is a clear indication its not my back, in addition after examining myself my cuff is extremely painful to the touch.... pretty sure that isn't my back either. I'm to the point now where by 9-10am every morning I'm in excruciating pain and have to take 2 pain pills in order to lessen it.

Well today I had an epiphany, I looked and found some information on the recurrence of enteroceles. Well... apparently due to the sacrospinous ligament suspension that pulls the cuff towards my back... there is such a thing as an 'Anterior Enterocele' that mimics a Cystocele... IMAGINE THAT!

Anyway, I have a 4-contrast Defecography (contrast in small bowels, rectum, vagina and bladder) scheduled for tomorrow and I expect to be fully vindicated.

Right now I'm angry that after all I went thru the doc I placed my trust in (and paid $10K to do my previous surgery) has joined the ranks of other doctors that labeled me a headcase. I'm really torn about having her do the re-repair or if I should travel out-of-state for a new surgeon. My experience is that once a doc doubts you its best just to end that doc-patient relationship... they will just end up humoring you instead of actually helping.

The only good thing is, that this may be repaired this summer before the fall semester starts... I had to take off this past year to help my son manage his epilepsy and taking another year off due to pain would just add to my frustration and sadness over this. With only 4 semesters left til graduation... its so close yet so far.... ah well, life's a ***** ain't it? LOL!

Anyway, thank you ladies for reading this post!

Diane
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  #12  
Unread 05-19-2005, 11:12 PM
Rectocele and Cystocele

Dear Friend,
I have just went through the same surgery three weeks ago and have been in bed until today. I had the same nagging pain in my lower left side that sometime hurt terribly but when I told my Family Dr. she said it was probably pain from other surgeries such as a Hysterectomy and then having to have my ovaries taken about seven years later. She said it was probably scar tissue but If I wanted to I could go to see a Gyn. I did so and he looked and said that I needed surgery immediately because my intestines were coming through the cavity and the walls and top were falling in. That was the first time that I had ever heard of a rectocele or a cystocele. I am feeling better now however today is my first day out of bed. My Dr. gave me Demerol and Phenergan after surgery, bless his soul. No Pain whatsoever. He sent me home with a prescription for both and I have not had to suffer at all. I am very weak still but he said I had a serious surgery that took three hours to complete so he recommended that I stay in bed from four to seven weeks. Today was my first day out and I am tired and weak but happy to see the world once again. I swear that I will never suffer with pain again and wait for it to go away. I found that the secret is to find the Specialist that you need and let them take care of your problem. I live near Dayton, Ohio so we had to travel 45 minutes to Cincinnati, Ohio every week for three weeks for them to run tests for the surgery and then he came to Southview Hospital half way from us to perform my surgery. I spent three days in and got to go home then only to climb in bed and have someone with me all of the time. You can only be thankful for so much attention, my husband was wonderful. I have had time to read and watch too much television. I read A Chosen Journey that took any discomfort off of my mind as I went on a journey that was mesmerizing. See, I am feeling better already, I am sitting here at the computer but I do believe that I will turn in for bed once again. Thank God that I had a good experience and no pain. My Dr. was from the Cincinnati University Hospital . I send my love and gratitude to them for taking away the pain and the constipation. I will pray that you get well and that you find your special Dr. to keep you free from pain for ever.
  #13  
Unread 05-20-2005, 10:57 AM
Suspect my Suspension has failed

Diane,

So sorry to hear that you were not pleased with the reaction of your doc. Hopefully that defecogram will show exactly what your trouble is. It's hard to argue with a picture right under your nose!

You are right about sacrospinous ligament fixation occasionally predisposing to anterior enterocele due to the angle of the vagina. However, I believe you said that you had the uterosacral ligament suspension which basically re-establishes support via the ligament that holds everything when we still have a uterus. I don't believe it would be as likely to cause this problem as would the sacrospinous, though of course it would still be possible.

Also, even though sacral colpopexy is the operation many feels gives the best change of permantly holding in cases of vaginal vault prolapse, it, too, is known to sometimes cause anterior compartment defects (cystocele, stress incontinence, anterior enterocele) due to the angle created. So you should be evaluated with that in mind if you contemplate one of these surgeries.

You just have to get the best medical advice you can find and do what feels right to you.

There is a support board devoted to prolapse sufferers. You name it, someone on that board has had it and probably had it repaired. The URL is http://prolapse2.hyperboards.com. The ladies on that board are wonderful.

Best wishes to you. My heart goes out to you.
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  #14  
Unread 05-20-2005, 12:04 PM
Suspect my Suspension has failed

Bonnie - I don't have a uterus, so this is why I think the cuff pulled posteriorly has allowed this bulging in the top/anterior portion of my vagina. I have checked myself prior to this recent pain and have continued to have a mild cystocele since my original surgery... and have clearly felt my bladder. This [new] bulging is really soft and squishy and when poked/prodded (LOL!) I don't feel any of the sensation associated with poking my bladder... In addition I have inserted my pessary before these recent problems and it was firmly placed above/at my pubic bone. Now it will not stay put... which is another sign to me that something has changed.

Anyway, the defecography is this afternoon and my husband is going in with me.... so we should be able to see for ourselves what is bulging where.

Thanks for the reply, I'll post this evening when I get back from the test.

Diane
  #15  
Unread 05-20-2005, 01:47 PM
I gave wrong URL

Sorry, ladies, but after extolling the virtues of the UPRISE site I gave the wrong URL.

It should be: http://prolapse.hyperboards2.com.

So sorry for any inconvenience.
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