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25 yr old stg 3 ov ca - scared of HRT 25 yr old stg 3 ov ca - scared of HRT

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  #1  
Unread 02-15-2001, 12:30 AM
25 yr old stg 3 ov ca - scared of HRT

I had surgery on Jan 19th to remove what turned out to be epithelial ovarian cancer. I lost my right ovary, both tubes, my appendix and a portion of my omentum. My new doctors are operating on me a second time WEDNESDAY FEB 21st to remove whats left - my left ovary and uterus. I am scared of HRT giving me breast cancer later in life but I think at my age I have no choice. I am scared of countless other things. Thats why I am up at 3:24 AM typing this note. I just found the site and am happy to know there is a place to go to discuss my fears relating to HRT.
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  #2  
Unread 02-15-2001, 06:26 AM
25 yr old stg 3 ov ca - scared of HRT

Oh, Jessica, of course you're scared! What a lot to go through in your 20s. You might go over to http://www.hormonejungle.com and look at the pulldown menu there. I researched two articles on breast cancer. One on what research says about hrt and breast cancer (not just the headlines from one study but across teh board of the medical literature) and the second one about how to assess and minimize your risk of breast cancer. In the second one there's the url for a tool that doctors use to assess risk that we can use for ourselves. You might want to look those over and talk with your doctor. Part of the risk comes from exactly what kind of cancer you had--what kind of hormonal receptors it had.

If you decided not to take HRT, there are a number of alternative things that help with the symptoms.
  #3  
Unread 02-15-2001, 08:28 AM
25 yr old stg 3 ov ca - scared of HRT

I am so glad that you found us! The women here are wonderful and I don't know what I would have done without them! You will not only make new friends, but you will also find some very useful information. Please visit the hormone jungle as soon as you can. The ladies there really know their stuff, and I am sure that they will be eager to help in anyway possible. Take care and keep on posting! We are here for you!!!
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  #4  
Unread 02-16-2001, 07:53 AM
25 yr old stg 3 ov ca - scared of HRT

Hi {{Jessica}}

Wow, you are so young to be going through this, I'm 38 which is still very young for this type of cancer. I'm so sorry you're having to deal with another surgery on top of everything else. {{HUGS}}

Your surgery sounds alot like mine and like you, I'm also facing the same issue with the HRT. I was told by my gyn oncologist that I would be unable to take any form of HRT including natural or herbal supplements for at least two years after being given the "cancer free" notice, haven't gotten that yet but hopefully soon. In addition, which complicates matters, I have a heavy family history of breast cancer (mother,aunt) plus mine so I'm not even sure if I want to take any HRT even given the go-ahead.

Trish is absolutely right about the issue of hormone receptive vs not, what you will be able to take depends on that. My cancer was the estrogen receptive type so taking any type of estrogen at this point could cause it to come right back, which of course is a no brainer. I do take some vitamin supplements which help a bit, I've been pretty lucky that the hot flashes and such are tolerable.

So, please get lots of information and discuss everything with your Dr., they'll be able to help decide what would be of benefit in your particular case.

Please continue to let us know how you're doing when you can. This is a great place to voice concerns, fears or even vent, I did that alot a while back and they didn't boot me thank goodness.

In the meantime, please take care, you're in our thoughts and prayers.

Vicki
  #5  
Unread 02-16-2001, 08:02 AM
oh my

Yes, you are very young to be going through this. As for hormone replacement therapy, my goodness, you have LOTS of time to figure that one out. Obviously you do the necessary things first, and then you deal with the hormone issue. There are so many ways of dealing with that, and it could take some time to find out what is best for you, but that's what you do when this part is done. So don't worry about it yet!
  #6  
Unread 02-18-2001, 07:18 AM
25 yr old stg 3 ov ca - scared of HRT

Hey guys, thanks for all the response. They intend to start me on hormone replacement right away. In the hospital as soon as I am taking solids. Thats why I was concerned. Should I be waiting until I'm cancer free? How do you know if your cancer is hormone receptive? Thanks Again. - Jessica
  #7  
Unread 02-18-2001, 12:39 PM
25 yr old stg 3 ov ca - scared of HRT

Hi Jessica,

Well, in my case it was my gyn-oncologist who let me know. I think it has something to do with the type of cancer cells present. Maybe one of the others ladies here has more info, maybe?

Maybe you can discuss it with your Dr, they would probably be able to shed some more light. I would definitely let him/her know of your concerns about it. I read alot, searched the web and asked lots and lots of questions about all the info I found.

Anyway, I wanted to let you know you're in our thoughts and prayers and please let us know how you're doing when you are able.

Take care {{hugs}}
Vicki
[Edited by Vicki Anderson on 02-18-2001]
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