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adenomyosis anyone??? adenomyosis anyone???

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Unread 05-25-2005, 09:42 PM
adenomyosis anyone???

I received a copy of my pathology report and this was dignosed.

Anyone else?
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Unread 05-25-2005, 10:08 PM
adenomyosis anyone???

Well, I'll never know for sure. My doctor said it sure looked like I had it when she was doing the surgery, but the pathology report just noted my fibroid. She said that since the lab gets an LSH uterus in a spaghetti like state they just test representational sections, and apparently did not find any.

Did you have painful periods? I did for many years.
Unread 05-26-2005, 12:31 AM
adenomyosis anyone???

I was diagnosed with adenomyosis (endonmetriosis in the muscle wall of the uterus) about 4 years ago at the same I was diagnosed with endometriosis. During a laparoscopy to remove an ovarian cyst, my surgeon took a biopsy of something in my uterus (there were numerous growths) and it came back as adenomyosis as well as fribroids. I had really painful and heavy periods and this is what it was contributed to, along with the endo and adhesions.

I also saw two other specialists over the years (second opinion) who said the same thing and that hysterectomy was the only way to get rid of it. I've just had my hysterectomy, but interestingly enough the pathology report came back as fibroid seeds? and not adeno. The only thing I could think is that the bits they tested must have been fibroids and the adeno might have cleared up from the two lots of Zoladex treatment I had over the years. I guess its really important to ask the dr questions if your unsure.
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Unread 05-26-2005, 02:17 AM
adenomyosis anyone???

Hi, I had adenomyosis. My surgeon showed me the path. report and the adenomyosis was in the full thickness of the uterus wall.
Seven years ago my surgeon did a myomectomy ,only to find that I did not have fibroids. At that time he took a biopsy of the uterus and it came back with adenomyosis.After the hysterectomy (which I fought for several years) he showed me on a diagram the extent of the damage to reassure me that the surgery had to be done.It's a bit like endometriosis,which I also had,but inside the muscle of the womb. It bleeds when we bled and causes pain,inflammation,swelling of the uterus and very heavy periods. That is my understanding of it anyway.All I know is that it gave me terrible pain,heavy bleeding which resulted in transfusions etc.
I hope that this helps
Unread 05-26-2005, 05:17 AM
adenomyosis anyone???

I also had it and experienced painful and heavy periods.
Unread 05-26-2005, 05:37 AM
adenomyosis anyone???

Positive results here. You hate to have something wrong but for me that was the ONLY thing wrong. So good to have a name to my 10 year problem.

Now I know I didn't just go have a hyst for no reason.
Unread 05-26-2005, 07:58 AM
adenomyosis anyone???

I was glad that the path report showed it because for the past several years my periods were awful, before during and after. Terrible pain and heavy. The only recourse for this disease is a hysterectomy. Thanks everyone for your responses.
Unread 05-26-2005, 07:22 PM
adenomyosis anyone???

I just had a TVH on 5/20 due to adenomyosis. Found it after the doc did an ablation last year for having long and heavy periods (up to 8 weeks long) ugh! He said if he would have known it was adenomyosis, he would have just done the TVH, not the ablation, but it's hard to diagnose. My pain started after the ablation, excruciating pain a couple days before my cycle, it was awful, that's when I seen the doc again and he said my pathology report from the ablation was positive for adeno... so we scheduled the TVH, I am so happy now... pain free just six days post-op.

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