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Help -How does one make this decision? Help -How does one make this decision?

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Unread 02-21-2001, 09:09 AM
Help -How does one make this decision?

Could any sisters help me? I have for years had trouble? Had a specialist appointment last Monday and he said a hysterectomy is up to me. Everything would be gone? I am 42 and am always in pain and have adenomyosis and endo. Is going into surgical menopause that awful. It is scaring me. Of course I have put up with the pain for years and probably could do it. But the clotting and pain is getting worse. Jan. 2001 had another surgery for a cyst and he took my tube out because of endo.
Will I feel better will my back pain stop? Is it worth it.
I have never used anything for pain!!!
I would be so grateful for any help? I have been having trouble with my hormones since I had a ectopic rupture 3 years ago. I had a tubal ligation 12 years previously- another story. I certainly didn't know that could happen.

I am a fit athlete type and would like be pain free, is there anyone out there that has had a total hyst. for adeno and endo?

Take Care

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Unread 02-21-2001, 09:23 AM
Oh, you will probably get lots of replies to this


Yes, there are lots of sisters who have had a hysterectomy for adeno and endo. You'll hear from some of them shortly, I'm sure.

I, however, hung on. I went through menopause naturally and although I'm glad I did, I don't know that I would have had I known I had adenomyosis. It was not diagnosed until we found the ovarian cysts that led to my hysterectomy. The adenomyosis will only get worse, not better. Once I got through menopause I was unable to take hormones partly because estrogen stimulated the endometrium and caused it to bleed.

Others can speak to the question of the endo. But it seems to me that your quality of life will improve with a hysterectomy. However, it is a serious decision and one that only you can make. So educate yourself as much as possible, then follow your heart.
Unread 02-21-2001, 09:27 AM
Help -How does one make this decision?

I am scheduled this friday for a TAHBSO - for endo. i am 37 and extremely active - but for the last 4 months the endo finally has caught up and my quality of life has zeroed - 4 months ago i was running 6 miles a week on hilly terrain with my 11 yr old daughter, played coed volleyball league, have a three yr old horse turning four that i am training myself for huntseat, and was hammering on a house that we are building ourselves - all wood from our property. Today I can barely get out of bed because of my left ovary being stuck to my side, and every movement is nasty pain - im left to sleeping like a luger' (those sledding peoples in the olympics) flat on my back, toes pointed, arms at my sides - on meds, but if i move i wake up and start all over again...

I am sooo ready to have this done!!! I was told three years ago to consider it, but i thought i could manage "endo' and i do have a high tolerance to pain (slept with a broken arm once until i realized it needed to be taken care of..!)

My advice to you is to carefully weigh your quality of life to what you are experiencing now, if you know and are confident that surgery can improve your life, or if you feel the pain may someday "win" as it did with my case, then you should have your answer.
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Unread 02-21-2001, 09:30 AM
Help -How does one make this decision?

sorry to hear you are having such a time of it. I am a pre myself but have been researching all this stuff since june of 2000. I was to have a tvh-bso on 2-14 but the doc cancelled my surgery due to a knee injury. To get back to you, a dear friend of mine had heavey bleeding, long periods, back pain, cramping. Dx of adenmyosis. She had the hyst and it totally pain free, having no problems with the hrt. Most women i have talked to have had no problems and are happy with the choice they made, however, there are always a few that dont turn out so well, some have problems with the hrt, unfortunately there isn't a magic wand you can wave to see who will have problems and who wont. Fortunately there is more than one type of hrt that can be tried. I have adenmyosis, prolapsed uterus, cysts, fibroids, cystocele, and rectocele. Periods aren't heavy but they are prolonged. 10 days on, 15 days off. clots, pain, back pain almost daily, stress incontenance. For me it is a quality of life issue, yes i could and have to put up with the symptoms for a while longer because of knee surgery, but i dont want to have to put up with this for years. I want my life back, i've had enough back pain and cramps. I'm 42, done having kids. So i decided it was worth the risks, will have my tvh-bso with a/p repair one month after knee surgery. good luck with your decision.
Unread 02-21-2001, 11:03 AM
Help -How does one make this decision?

Every women has to make up her own mind and this is not a cure for everything. That said, I am 46 and I wish I had done this 2 years ago. Even only three weeks post-op I can say that. I know my daughter's graduation won't be spoiled by me running to the bathroom every 15 minutes. Thanksgiving week of 2000 was a horror and I couldn't even deal with Christmas. No matter what trouble the future holds it cannot be as bad as what I have been through. I am not saying it has been a picnic but I am looking forward to next month and I haven't done that in years.

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