It has been a long time!! I am BACK more problems.. Adhesions and bowel probs..HELP. | HysterSisters
HysterSisters Hysterectomy Support and Information
Advertising Info HysterSisters Hysterectomy Support Tutorial

Go Back   Hysterectomy HysterSisters > Hysterectomy Special Needs > The Road Less Traveled


HysterSisters.com is a massive online community with over 475,000 members and over 5 million posts.

Our community is filled with women who have been through the Hysterectomy experience providing both advice and support from our active members and moderators.

HysterSisters.com is located at 111 Peter St, Toronto, Canada, M5V2H1 and is part of the VerticalScope network of websites.

With free registration, you can ask and answer questions in our HYSTERECTOMY forum community, get our FREE BOOKLET, access Hysterectomy Checkpoints and more.

You are not alone. The HysterSisters are here for you. Join us today!
join HysterSisters for hysterectomy resources and support
Reply

It has been a long time!! I am BACK more problems.. Adhesions and bowel probs..HELP. It has been a long time!! I am BACK more problems.. Adhesions and bowel probs..HELP.

Thread Tools
  #1  
Unread 05-31-2005, 08:13 PM
It has been a long time!! I am BACK more problems.. Adhesions and bowel probs..HELP.

My name is Pam and I was here for a couple of years back in 2001 until about a year ago when I had to many problems sitting at the copmputer due to chronic low back problems and had to give up the computer for a while . I still have the back probs, but now I have other probs that outweight them again!

I had my tvh/bso in 2001 and since then have had bladder sling surgery and rectocele repair as well as 2 umbilical hernia repairs back in 2002 and adhesion removal.

For the past 6 to 7 months I have not had any feeling to have a bm and have also had alot of probs having bm's since I cant feel anything:hair: The only way I can tell I have to go is I get sciatic pain in my back and pressure and pain in my rectum and .
When I do finally go I have to give birth to it. Sorry for the overshare!! I am not constipated, I just dont know why I cant go. I have tried EVERYTHING in the book and nothing!!!

I had a colonoscopy and it was fine and now am having a CT scan tomorrow morning to see if I have adhesions blocking my small bowel. I also have a small rectocele again but was told it was not bad enough to require surgery again at this point.

I guess I know I am looking at another lap to remove adhesions since I am having pelvic pain and also pain with intercourse, but has anyone had adhesions around their bowels that caused problems and can you PLEASE share your symptoms with me or give me an idea of what to expect??? Once again I feel as though I hit a BIG

Thanks and HUGS to all!!!! Pam
Sponsored Links
Advertisement
 
  #2  
Unread 06-01-2005, 12:19 AM
It has been a long time!! I am BACK more problems.. Adhesions and bowel probs..HELP.

I do wonder .,.

if its partly diet related . I had adhesions too .. no inde if mine are ever goinfg to come back . the surgery was last year in sept .

On and off since them I know i have to go but I just sit and wait for it to drop

sometiems I wonder if the endo damaged my gut or something .

you arent alone .. but i do wish I had an answer for you

mei
  #3  
Unread 06-01-2005, 01:35 PM
It has been a long time!! I am BACK more problems.. Adhesions and bowel probs..HELP.

Thanks for the reply.. I am sorry your in somewhat of the same boat.

The last adhesion removal I had my omentum was adhered to my vaginal cul-de-sac and I was told my omentum (the fatty layer that basically is like a sheet that protects your organs, like if your appendix were to rupture it would slow the infection from spreading and so forth) was to long and it lays at the bottom of my pelvic floor and will probably always give me problems. This, however is OH SO different!!

I have seen a rectal/colon surgeon and was told it was more than likely adhesions and also my Gyn said the same. Ever since my bladder/rectocele repair things just have not been the same.

I usually just deal with these problems, but they have gotten worse since my colonoscopy and I cant ignore it anymore.

I just had my CT scan this morning so I guess we will see what it shows and go from there.

Thanks for the sisterly support and I wish you all the best as well!! I aslo know about feeling as though the endo ruined everything in there. Maybe it is back again and I just dont know it. I REALLY hope not!!!!!

HUGS!!!! Pam
Sponsored Links
Advertisement
 
  #4  
Unread 06-01-2005, 10:29 PM
It has been a long time!! I am BACK more problems.. Adhesions and bowel probs..HELP.

For starters I'm confused as to why your Dr is doing a CT to look for adhesions--they dont show up on CT, MRI, XRay, etc. Adhesions are generally diagnosed by process of elimination--anything significant is R/O, then adhesions are suspected. From there, to support the probable diagnosis a laproscopy is done.

I had adhesions form in the LLQ (colon) almost immediately after the hysterectomy. My symptoms were pulling, tugging, pain (when sneezing/coughing/laughing), swelling, pain/disomfort when intestinal gas was moving through that area. I had the CT scan, ultrasound, and xray to R/O significant problems, then finally let my new GYN do a laproscopy, and voila, there were the adhesions. The problem though with having them removed is that surgery causes adhesions--a catch 22. And sure enough, the adhesions have come back. I'm going to suffer through the misery until it gets totally unbearable.

Another thing that comes to mind re: your pain/discomfort is diverticulosis, however you state that you've had a colonoscopy that came back clear.
Hopefully something will show up on the CT scan that will end the mystery.
good luck
stay well
diana
  #5  
Unread 06-01-2005, 11:35 PM
It has been a long time!! I am BACK more problems.. Adhesions and bowel probs..HELP.

Pam,

You are describing (except for the adhesions) how I was for years after my TAH/BSO and I was told all kinds of ridiculous things by doctors before I finally got a correct diagnosis of pudendal nerve damage. Everyone kept wanting to operate on my rectocele but I was afraid of any more surgery and refused. Then I found my new wonderful doctor who told me my rectocele could be treated with hormones instead of surgery and he was right! What a difference!

That's the good news... the bad news is that I still can't feel anything because the nerve damage is permanent. One doctor told me that "sometimes" the nerves can reconnect and rebuild but it can take years and not to get my hopes up.

Still, it is a huge relief to not have to stent everytime I have a BM, which is what I suspect you are having to do. Also, the rectocele is what was causing my extreme back pain. This is because the BM, when backed up into the "pouch" (? don't know what they call it) pushed into my spinal cord. The pain was horrible and I couldn't sit or lie down comfortably at all.

Are you on any hormones? I take only the bio-identical, compounded hormones now, but in the beginning, they also had me on Vagifem (vaginal tablets) until the vaginal wall was built back up enough to keep the rectocele in check.

Hope this helps you.

Hugs,
  #6  
Unread 06-01-2005, 11:42 PM
It has been a long time!! I am BACK more problems.. Adhesions and bowel probs..HELP.

I forgot...

For all those suffering constipation and bowel problems since surgery, you may want to have your hormone levels checked (I believe saliva is the only way to go) because the hormones produced in the ovaries (an endocrine organ) have a role in our digestive, bladder and bowel functions. This is why problems like this are common in women following hysterectomy.
  #7  
Unread 06-02-2005, 12:45 PM
It has been a long time!! I am BACK more problems.. Adhesions and bowel probs..HELP.

Hi Pam
I am sorry you are going through this. I had my TAH last May and have had bowel problems every since. I continue to have problems moving my bowels and I had a large rectocele and enterocele repaired in Jan. I am on fiber, Miralax, stool softeners. I don't usually feel the need to have a bm either. My abdoman bloats up on the left side and it jumps around after eating usually. I had a lapro in Sept. to look for adhesions holding my colon down, but it wasn't found. I have had tests done at the colon rectal office. they came back ok. I am afraid I may be prolapsing again. I have a bulge coming down from the top when I push to have a bm.I think I feel something starting to bulge out from the back, which is where my enterocele was.Quite often I have to push very hard and splint inside to completely empty.I am also having alot of discomfort with intercourse. I am seeing a pelvic floor specialist in July.Originally I was diagnosed with a barely 1 rectocele in Oct.by my gyn. I was having a terrible time moving my bowels then. I hope you find answers for your symptoms. I know it is quite frustrating.
I just want to send you some s and hope you get feeling better.
Peggy
  #8  
Unread 06-02-2005, 02:35 PM
me too!

Hi Pam,
girl, my heart goes out to you, I have had some of the very same problems! I have since learned that alot of my lower back problems have to do with the rectocele. I have not had the surgery yet, but I can tell you that whenever I have to have a bm..which for me is like clockwork...first thing in the morning when i wake up. It always relieves the pain. I am interested in what the surgery was like and what the recovery time is like. I have just been diagnosed with rectocele and have been told that I needed surgery to correct it. It is miserable. I am also looking at a cystocele but could not produce the problems I was having in the doctors office, he wants me to come back with a full bladder. I had a hysterctomy when I was twenty nine years old, so he feels that most of the problems I am having now are due to the fact that I have lost alot of the support of the ligaments that were damanged during surgery. Not to metion three children...all vaginal deliveries...one breech. I have also had three back surgeries...and always thought that the pain was from the back surgery. I have only recently discovered the kind of lumbar pain that you can get from prolapse problems. God bless you. I hope that things get better for you and that they can fix the source of your numbness. That is frightening! Are you confident that it isnt a nurological thing, like disc or something? So have you tried ?? It always helps me! lol
  #9  
Unread 06-02-2005, 06:54 PM
Thanks to all you wonderful ladies!!!

Well, I will try to answer it all here. I am on hormones but was told at one time that my body was not absorbing them at all and a few months later started absorbing them again.(WEIRD) I have my hormones tested regularly(saliva) and they are always right on.

As for the back pain... I have 2 lumbar discs that are partially herniated and also have sciatic pain as well. When I have to have a BM the pain gets unbearable so I know I had better get to the bathroom.. I am seeing a back Physical Medicine & Rehabilitation clinic next week to see what they can do for my back to avoid having surgery. BUT I also wonder if the rectocele does not play a key role in making it worse even though it is not a large one.

mtdewpeg..... your story almost mimics mine with the exception that everytime they go in laproscopically they find all kinds of things out of place. I feel for you sweetie as I also feel for all of the rest of you ladies. It is sooooo darn frusterating having so many problems after having a hyst that seem like they will last a lifetime. I also have waited until the pain has become unbearable to even seek medical help again and I have NO idea why they are doing a CT scan as I know adhesions do not show up on any type of scan. Maybe he is trying to rule something else out, who knows.....


Lucille.... How did they find out it was nerve damage?? I have an are on my left more towards my thigh that goes numb constantly and if I lay on my right side will start to burn and no one can tell my why. It is pretty much in line with my pelvic scars and is sometimes sore to touch adn I always wondered if it was something to do with nerves.

The only thing that makes me REALLY upset about the whole thing is that my DH is really getting sick of me being in pain and seeing Dr's and has even told me he has been miserable for over a year and thought about moving out and is getting to where he cant handle my medical problems any more. I am also being tested for MS and the back issue does not help.

Well, I will stop rambling on and on... We just moved for the 5th time in 17 years in the military and I have no real friends to talk to here so I rely on my sisters.....

to you all and thanks for being there!!!!! Pam
  #10  
Unread 06-03-2005, 10:54 AM
PELVIC PAIN! BOWEL PROBLEMS

wow! I can't believe what I just read! I have been looking for
you forever. 2001 I had my hyst, and it has been a nightmare
ever since. Went thru the surgery fine, then to having a lot of
pain and pressure. dr.s blew me off, and to make a long story
a little shorter, I've had 2 adhesion surgery's and after 11 medical
professionals, a enterocele was found, I had told everyone, that
I felt like I had a baby's head in my vagina, no one could figure it
out, the enterocele surgery was successful, and the sitting down
part is better, but I am still having severe pelvic pain and am on
pain meds, and the dr that is prescribing them is about to stop.
HELP! the pain meds are the only thing that is keeping me sane,
and able to work. I feel suicidal. And my marriage is under a lot
of stress. I haven't had the bladder problem. But I do have the
bowel problems. I eat very well and my whole life revolves around
my food. I know I get enough fiber. I feel tremendous pressure
on my vagina and rectum feels like is pulling or pushing. Everyday
is a different symptom. If I have a real good BM I am in severe
pain, then there is the in-between discomfort, either way I am
miserable, my mind never leaves my bottom, isn't that horrible?
One of the surgeons said I that my colon was about 1foot and1/2
to long but could not be sure surgery would help. Please reply. Susan
Reply

booklet
Our Free Booklet
What 350,000 Women Know About Hysterectomy: Information, helpful hints as you prepare and recover from hysterectomy.
Answers to your questions
Register




Thread Tools

Forum Jump

Similar Threads
From This Forum From Other Forums
2 Replies, Last Reply 12-18-2009, Started By wizard66
4 Replies, Last Reply 12-04-2007, Started By teacupfor2
2 Replies, Last Reply 11-05-2007, Started By naw
21 Replies, Last Reply 04-05-2007, Started By PinkPanther
9 Replies, Last Reply 12-02-2006, Started By scociagal
9 Replies, Last Reply 07-25-2003, Started By SusieQM
1 Reply, Last Reply 10-24-2002, Started By pam01
6 Replies, Last Reply 08-10-2001, Started By Robbie
31 Replies, Last Reply 07-18-2001, Started By gidge
15 Replies, Last Reply 06-19-2000, Started By JsustB
4 Replies, Hysterectomy Recovery (post hysterectomy)
6 Replies, Hysterectomy Recovery (post hysterectomy)
1 Reply, Hysterectomy Recovery (post hysterectomy)
13 Replies, Cancer Concerns - GYN
19 Replies, Hysterectomy Recovery (post hysterectomy)
4 Replies, Hysterectomy Recovery (post hysterectomy)
1 Reply, Hysterectomy Recovery (post hysterectomy)
3 Replies, Hysterectomy Recovery (post hysterectomy)
9 Replies, Hysterectomy Recovery (post hysterectomy)
2 Replies, Hysterectomy Recovery (post hysterectomy)



Advertisement

Hysterectomy News

September 29,2020

CURRENT NEWS

HysterSisters Takes On Partner To Manage Continued Growth And Longevity
I have news that is wonderful and exciting! This week’s migration wasn’t a typical migration - from one set ... News Archive

TODAY'S EVENTS

Calendar - Hysterectomies - Birthdays


Request Information


I am a HysterSister

HYSTERECTOMY STORIES

Featured Story - All Stories - Share Yours

FOLLOW US


Your Hysterectomy Date


CUSTOMIZE Your Browsing  



Advertisement


Advertisement