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can't stand pain!! can't stand pain!!

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  #1  
Unread 06-03-2005, 09:12 AM
can't stand pain!!

Hi ladies! I'm new to the group and I am scheduled for my LAVH (hopefully!) on 6/10/05. I have been in pain for over two years now and over the last six months or so the pain has become absolutely excruciating most of the time. I have endo, fibroids, ovarian cysts, severe adhesions, PID, and a very funky infection that insists on invading my cervix quite frequently. So a hyst. is a very welcome procedure. That still doesn't change the fact that I'm scared to death!

My question is this....have any of you taken painkillers for a prolonged period of time pre-op until you have developed a tolerance to them and if so, what steps did your doctor take to keep you comfortable after surgery? I worry about this DAILY and I have voiced my concerns to my dr, who assures me that they will not let me "lie there in pain," as I put it.

I have been on Vicodin for at least a year and a half now, not daily, and either because the pain has gotten worse or because I have simply developed a tolerance they don't work well at all anymore. This is just one of the many thoughts that keeps me up at night! Any advice will be greatly appreciated, as well as other pre-op woes...I'm sure I can't relate to those too!

Robin
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  #2  
Unread 06-03-2005, 10:57 AM
can't stand pain!!

HI,

I had my LAVH 1 week ago and even in the hosp I had ZERO pain from the surgery. I was sick from the meds so that was the worst of it. Now, 1 week out, I am moving slow but mentally I feel great. I just have to remind myself to take it easy.

I also am a recovering drug addict, not that that is your issue, but I do know about getting off drugs, its not always pleasant but its a Day At A Time job. All you have to do is Today. It makes it a lot easier if you take it in small incriments.. I can to anything for One Day. Dont make me do anything forever.. You'll be fine.. I'm sure our Docs know a lot about people being on painkillers for a while before we get to this point and can deal with us on an individual basis.

I feel like I got my life back.. and I didnt even know I lost it! You'll probably feel TONS better than I cause you know you've had it hard. Good luck and break it down into smaller pieces.. its easier that way!
  #3  
Unread 06-03-2005, 11:08 AM
can't stand pain!!

Robin,

You will be fine. They will not let you suffer after surgery. I agree with msmonih - take a deep breath and try to relax. It will not be nearly as bad as you think, and soon you will look back on this and smile! Hopefully, things will go as planned and you will be recovering very soon. Take care!
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  #4  
Unread 06-04-2005, 01:45 PM
can't stand pain!!

Robin,

This was is one big thing I was totally freaked out about! I had a TAH on May 30th. I told my doc about my fears and he put me on a morphine pca.....it really worked and I don't really even remember the first 1 1/2 days in hospital. I got off of the pca (self medicating machine, don't know was pca stands for though) on the second afternoon in the hospital and couldn't believe how great I felt....I ended up taking 2 T3's and then went to extra strength tyenol and asked to leave on my 3rd day. I know everyones pain tolerance is different but they will not let you lie there in pain.......the nurses are on top of you the whole time you are there, making sure that you are comfortable. Don't worry about this (I know it's hard not too)!

s
  #5  
Unread 06-04-2005, 01:58 PM
my experience was not so great....

I have to tell you, that contrary to the positive responses of some sisters here, not everyone is treated as well. I, like you, have severe pain every day, and DO take Vicodin daily. I talked not only to the OB doing the surgery, but also to the anesthesia people AND the "pain specialist" at the hospital. All assured me that the pain would be well controlled. And in the day after the surgery, with the spinal drugs still working, this was true. But I had been specific about negative reactions to morphine and my experiences with what works and what doesn't. (I've also had facial reconstruction from accident; thoractomy, which is being split open and having half a lung removed; two c-sections; and SIX kidney stone surgeries.)
Despite all this, I was discharged with simply Norco, which is more hydrocodone (Vicodin) to less acetaminophen. This did NOT work, and I called the dr. office the following morning and demanded Percocet. My dr. did not know how to write the script, and since it's a C2 drug, it has to be handed over in person, can't be called in. He screwed it up twice and it took another 24 hours to get it. I am still unhappy with the pain control.
So---I encourage you to have an advocate from a pain control clinic. Cases like ours are rare, and my dr. admitted that. He doesn't want me to be in pain, but he's been taught that people who ask for specific strong painkillers are probably addicts. Truth is, I'd not had Percocet in nine years. I DO have an appt. in August at a major medical center 2 hours from my home with their pain clinic. I wish I could have postponed the hyster. until after that, but I couldn't.
The thing that DID work was keeping my copy of "Patient Rights and Responsibilites" and the pamphlet they gave on pain control. When I was not getting attention (like waiting 2 days for that script) I mentioned that I felt my legal Patient Rights were being violated. I didn't say it all snitty, just stated it. And there are key words, like "legal" "attorney" and "lawsuit" that immediately get you more respect. I HATE doing that, but have learned that if the pain overwhelms me, I can't be the person I normally am. Good luck to you, and please feel free to PM me if you'd like to talk more. I know I feel less alone reading your fears.
  #6  
Unread 06-04-2005, 03:52 PM
can't stand pain!!

Hi Robin,
I had the same question as you. I have been on daily pain meds for almost 2 years due to my severe interstitial cystitis. I do see a Pain Mgmt. Dr. and I discussed my fears with her on Thurs at my latest appt. She assured me they would take care of me, and that to talk with my Gyn Surgeon, Anesthesiologist, and my Oncologist before hand, and that she would be availabe if need be...she even gave me her home phone #....( I could not believe that...) So, while I am still nervous, I do feel better about the whole pain thing. I am more worried about them giving me too much anesthesia since I am on pain meds, I have had problems with anesthesia in the past, and I have almost a "panic attack" any time I have to have one of my many kidney, bladder, urethra surgeries...I also am awaiting the results of some of my blood work and am having a CAT scan on monday as the mass on my R ovary is solid and could be malignant, you would think that would be most of my scare, what with my Mom battling lung cancer (she lives with family and I) and my biological Dad and all of his siblings dying with cancer, but I am more worried about the darned anesthesia...I think I am in a bad case of DENIAL...LOL
Good luck to you, hope all goes well. By the way, my tah with bso is scheduled for 6-28 if all goes as planned.
Take Care,
KF
  #7  
Unread 06-05-2005, 05:53 PM
can't stand pain!!

  Quote:
Originally posted by kayfaye
I have had problems with anesthesia in the past, and I have almost a "panic attack" any time I have to have one of my many kidney, bladder, urethra surgeries...
KF
I have had post-op panic attacks, but unfortunately don't know what medicine caused it. After one kidney surgery, I was convinced I would suffocate if I didn't get up, and pulled my I.V. and tried to leave. Oh, boy, that was embarassing....I've told all details to docs and not had that one happen again, but I am honest that I need sedation at a low level.
You are lucky to have such great care. I'm hoping that when I get my new patient appt over in Madison that I will get decent pain control finally, too.
  #8  
Unread 06-08-2005, 04:20 PM
can't stand pain!!

Kathleen1964,
I know what you mean about the post-op stuff...My worst one was when I, too felt like I could not breathe, but it was really weird, I felt like my brain would not remember to tell me to breathe, my heart was racing, and worst of all, I lost control of my bowels right when I was in the middle of it all...I was soooo embarrassed...but, I guess we cannot help what we cannot control, huh? I have never been able to pin-point what med may have caused my reactions, either...my Dr. and I are leaning towards an SSRI antidepressant I was taking the 2 times it happened to me after surgeries, the med has since been pulled off the market, and I have been off it for a while. I have had 2 surgeries since, and both times I was a little anxious, but NOTHING like the other 2 times...I always talk to the Anesthesiologist before hand, too. And, when I pre-register I know I drive them crazy (pardon the pun) with telling them about my adverse reactions to some anesthesias, and that I don't want that to happen ever again...Good Luck to you.... I had my CAT scan of my abdomen/pelvis today, will see the Oncologist on 6-17 to get the results of it and my CA-125 and other bloodwork. My Mom is having to go back in the hospital on 6-17 (same day as my results) this will be her 4th hospital stay since her lung cancer diagnosis March 13, 2004, her 2nd long-term stay due to the abcess she got from the cancer surgery...She is so upset that she will not be able to be with me when I have my surgery on 6-28...I just want her to get well...Our family just sounds like one big mess....LOL...at least I do have a great hubby and son is pretty okay, too for a teen...LOL
Take care,
Thanks for replying to my message and sorry my reply is so long.
KF
  #9  
Unread 06-08-2005, 04:48 PM
can't stand pain!!

I was on a narcotic for about 1.5 years before my hyst. I didn't take it every day...just when I absolutely needed it. Eventually I noticed a dramatically decreased effect. I never thought about this issue when I was pre-op, but I was given much stronger narcotics for my first week post-op. I did just fine. I'm not saying I wasn't in pain, but it was tolerable. Please try not to worry about it too much (I know, I know) but remember that doctors and nurses take care of people in similar situations *every* day. They will know how to make you comfortable! Best wishes and s! MB
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