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Unread 06-04-2005, 04:28 AM

Now waiting really is the worst part! I thought it was difficult just waiting to a hyst due to fibroids! Now with a diagnosis of leiomyosarcoma I am back in the waiting mode. Waiting for x-rays and CT scans next week. Waiting to meet with the specialist the following week. Waiting to hear what stage and what future. Waiting to hear if more surgery (still have ovaries) is necessary. I know its bad - waiting to hear HOW bad. And since Im recovering from my hysterectomy, I have WAY too much time to think about it.
How does anyone cope?
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Unread 06-04-2005, 07:53 AM

Hi Marve.....im so with you....i have surg pending...???on the date still and its been ohhhh 3 weeks..having a colonoscopy thurs to see where this 9cm mass is attached to O.S.inconclusive.....wating just well ....*****!!!I must admitt sometimes the not knowing isnt sooo bad cuz im soo scared knowing will be worse..Good luck with your results....positive vibes commin your way!....Love Patty/cjgogo
Unread 06-04-2005, 08:39 AM

Hi ((Marve))

You've probably seen it too many times but indeed for most folks, the "waiting" is really the hardest. If you enjoy good comedies/dramas/sci-fi whatever is your fancy, perhaps having someone rent some out for you might divert your mind at least for a little bit. I personally felt a lot of relief (when i got my suspect cancer dx and then had to have a slew of tests and also recently when I had a quite serious med scare -not hysterectomy related ) by finally remembering that God never would give me anything I could not handle and that He is with us always.

I am keeping you and ((Patty)) in prayer.

s, peggiesue
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Unread 06-04-2005, 12:12 PM

Sorry for all that you're going through, Marve. Yes, the waiting is the hardest part. I would suggest that you keep positive thoughts. This takes lots of work. The negative thoughts will try to invade your space; push them right out. Trust that you are being well taken care of. I hope you have confidence and faith in your doctors. Keep in your mind that you will do whatever it is that you have to do to stay well or get better. Stay around positive people.

These are the things that helped me through the early days of my surgery, diagnosis and treatment (and frankly, still help me today). If doctors gave me a suggestion, I followed it to the best of my ability. I never stopped thinking that God has a plan for me and only God knows when my time is up.

Good luck to you, Marve. Let us know how you are doing and when your wait is over.

All the best,
Unread 06-06-2005, 11:25 AM

Well, knowledge IS power.
I admit, when I first started researching on the internet, I was scared spitless. Then I also realized how much I didnt know. Now some of that is because the tests (X-Ray CT scan) havent been done yet (happening this week). But I also realized that I didnt have any info on the pathology report. The doctor said some vaguely reassuring words, but I was too dumbstruck to hear or ask questions.
Fortunately, one of the sites stated that I have a right to the pathology report. So I called the doctor's office and went down and got a copy. They had sent the samples to a Harvard pathologist for a second opinion and I got that report as well.
The pathology report showed the leiomyosarcoma was small and Grade 1. The letter from the Harvard pathologist was more illuminating and reassuring. Apparently this was a borderline case, so very low grade. It also states that most likely it will only require careful clinical follow-up,(since the uterus was already out!) tho this was not for him to decide.
So I am hoping and praying that these tests turn out normal (not taking anything for granted anymore) and that this cancer was found in a very early stage.
Unread 06-06-2005, 12:31 PM

Hi Marve,

I'm sorry you did not realize immediately that you had a right to your path reports; I guess sometimes doctors just assume we know so glad you found the site that indicated the reports were available for the patient too. That reading by the Harvard pathologist definitely sounds rather promising and I will keep you in prayer that the your upcoming tests are normal.

s, peggiesue

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