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Getting another opinion Getting another opinion

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  #1  
Unread 06-25-2005, 12:45 PM
Getting another opinion

I have had one visit with the gyn/onc after leiomyosarcoma was found in my fibroid. I will meet with him again after the "tumor board" discusses my case. So right now I have nothing to do but obsess...
If I decide that I should get another opinion or consultation from a sarcoma center (Dana Farber or Sloan Kettering) what is the procedure? Did those of you who have done this ask your doctor or make the contact yourself? How would I proceed?
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  #2  
Unread 06-25-2005, 01:52 PM
Getting another opinion

Marve,

I'm not familiar with sarcoma issues, nor with the procedures to follow in seeking consultation, but I'm sure others will be along to give you their input.

You are kept in prayer....hang in there and hang tough! It's normal to obsess, but as our quotable Ellen (Margaret321) always says, "Don't waste a good panic."

We're with you!

Blessings.
Marlene
  #3  
Unread 06-25-2005, 05:33 PM
Getting another opinion

Hi Marve,
I also am not familiar with sarcoma issues. Re experience re seeking a consultation; I have some re setting up an appointment with a major cancer center but not a sarcoma center.
Specifically, I was able to set up an appointment with a gyn/onc from a major cancer center near me by simply calling the medical number for the university it was located at . The operator connected me with the gyn or onc department (can't remember) and I advised them re my interest to get a second opinion since I had a dx "cannot rule out endometrial cancer"; I got an appointment for 5 days later with one of the gyn/oncs. They did require that I immediately fax then a copy of my pathology report which indicated the possible cancer dx.
FYI, insurance companies may vary re whether they require a doctors referral to a specialist. Also, perhaps a sacroma center or even other national cancer centers may require referrals, etc. I just called this cancer center not knowing their policy.
Please let us know how you make out.
s, peggiesue
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  #4  
Unread 06-26-2005, 03:45 AM
easy self referral

Maybe the cancer centers make it easy? After my surgery for endo ca. I felt the need to get to a gyn/onc for followup care. My gyn who did the surgery had offered before surgery to turn me over to a gyn/onc but also reassured me that she felt very certain that my dx. was truly accurate and that while in surgery, she'd have a gyn/onc with her in case the surgical path came up with anything more..it didn't and she made sure that everything was looked at, washed out and biospsied.. I was pretty confident, but after reading this board, knew that I needed to be in the hands of a good gyn/onc.

I just went to the website for the big Cancer Center here and clicked on self referral. Got a call shortly from them, faxed all my pathology reports/etc. in and was scheduled very quickly. It was a piece of cake.. Go for it.
  #5  
Unread 06-26-2005, 07:48 AM
Getting another opinion

Marve,
I went for second opinions at Fox Chase, and it was easy as pie. My Onc office arranged everything and the cancer center called me to confirm information and set the appointment. Good luck with everything.
Debbie
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