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Unread 07-28-2005, 12:26 PM
Lessons Learned

As with so many of you I have had problems since I had my surgery(TAH/BSO Stage IV endo). Patch slapped on before I left the operating room. I been to many doctors and tried many hormones. I have been on patches, compounds, gels, and pills. With each I held out the hope that it would be the one. With each I was disappointed.
My symptoms included
Rt. side pain
night sweats
hot flashes
joint pain
mood swings
brain fog
heart palpitations
hair loss
bladder pressure
And I am sure a quite a few more depending on the day and the dose.
I recently decided to see another gyn after my surgeon brought up the gallbladder thing yet again. She suggested approaching this like I had just had the surgery and giving me a low dose of estrogen/progesterone. I tried it and I had big problems with heart palpitations. Very uncomfortable. The doctor suggested half dose. This helped some and low and behold the pain in my side faded. I have had this pain to some degree ever since the surgery. At times so bad I could hardly move. This was remarkable! The problem was that my heart was still doing a crazy beat. So I decided to go to a quarter of a dose. This was even better. I had few night sweats ( I used to have soak the bed) I was sleeping. Glorious! But still a little heart skipping. So what the heck how about no dose? Well, that was a hard one. Every doctor said "your too young you need to have estrogen". But I figured let's try it I can always start up again. Fabulous! No sweats, flashes, fatigue... Well you get the picture. It's been a week now and things are looking good.
The dark side to all this is that if estrogen caused all this then I realize I may have an internal source. I have a sneaking suspicion that I may still be cycling. I was trying to ignore it because I didn't think it was possible. Meaning unless I am just a freak I don't think I'm clear of ovarian tissue. But until I get those levels checked at my next appointment I am smiling. I feel better than I have in years. I would never have guessed that estrogen was causing all the problems I was using it for.
Long story short. I don't advocate stopping your hormones but chances are there is someone out there who is in a similar situation. I hope this finds you.
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