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Just when I thought it was over.... Just when I thought it was over....

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  #1  
Unread 08-02-2005, 09:04 AM
Just when I thought it was over....

I am wondering how many other woman have had this surgery to feel better and end up feeling worse? Next month it will be a year and so far I have not had one day without pain. Not the same pain I had with surgery but the same I had before. My stomach still hurts all the time, and actually it has gotten a lot worse. I am to the point where at times I am unable to have anything touch it at all. It hurts all the way into my back and down my hips some. I have had some bowel problems and many many infections. Mostly yeast and bladder. I think I get rid of them and up they pop again! I have been really tired latelty as well. I could nap during the day and I was never like that. The only time during my recovery that I napped in the day is when they had me on that nice medication...ahhh...lol...I was just wondering if any of you had any of these symptoms? Thanks for listening...
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  #2  
Unread 08-02-2005, 09:15 AM
Just when I thought it was over....

I sure hope I don't still have problems after that long. Sorry to hear you're not getting the relief you need ~ the whole reason for having a hyst is to help us and it sounds like it hasn't done any good for you. Have you seen another DR? I would go to as many as it took to figure out what the problem is. There's no reason for you to live in pain and suffer. Good luck and
  #3  
Unread 08-02-2005, 10:28 AM
Just when I thought it was over....

I agree you should not still be in this much pain. Have you gone back to your Dr. or gotten a second opinion? I had to have another surgery a year after my uterus was removed because adhesions had attached to a cyst on my right ovary and onto my intestines and was doubling me over. You may have adhesion problems also. Please see your Dr. None of us should have to suffer any longer than is necessary to heal. Take Care. Vickey
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  #4  
Unread 08-02-2005, 11:02 AM
Just when I thought it was over....

Hi fallingstar,

It's horrible that you are having so much trouble! I also hope you will get another gyn. opinion. It doesn't sound right that you still have so much tummy discomfort. And if you are open to it, a holistically oriented doctor could help with your immune and fatigue issues. It sounds like your tendency towards infections really needs to be addressed, and they could help build your immune system, and help with your digestive issues, too.

Sending best wishes.
  #5  
Unread 08-02-2005, 01:04 PM
Just when I thought it was over....

Hi there I had my surgery just a couple of days before you did last year. We had different issues (I had lots of fibroids and a boggy uterus, no endo) but I must admit at my last doctor's appointment I asked him if he could put my uterus back in because I'm not sure I'm doing much better now than I was before surgery.

I'm still dealing with post-op complications and it's no fun, especially since so many of our sisters report how great they're feeling.... But I still have hope. I have hope that one day I will feel good every day or at least pretty good most days.

I know that before my surgery I really was of the belief that hysterectomy basically "cured" female problems, and since that time (since surgery is irreversible) I have had to revise my thinking on this subject. That has been very, very hard for me.

Why not make that one-year follow-up appointment a few weeks early? And if you don't feel you're getting good answers from your current doc, I would certainly encourage you to seek another opinion.

I hope you start getting some answers and relief from your pain and other problems real soon.

  #6  
Unread 08-02-2005, 10:07 PM
Just when I thought it was over....

I was unaware of a follow-up appt. for a year. I was not told by my doctor. At my 6 wks appt. he did tell me that if I have any probems now it was not female related because everything was taken out. (which is untrue because I have my overies.) I get sharp pain down near my hip bone and it doubles me over. Usually its just on the right side but occasionally I get them on the left. Those pains come and go but the discomfort and the other problems I deal with everyday. My husband is totally against another surgery so I am hesitant on going back afraid I may have to have another. He thinks that by having these surgeries I am more likely to get cancer and I am already at a high level of it as my family as all had it. Anyhow, thanks for the thoughts and sharing your story with me...
  #7  
Unread 08-02-2005, 11:12 PM
Just when I thought it was over....

Falling Star-

You cannot not go to the dr because you do not want to have another surgery. If you are in that much pain, you need to get it checked out. With the comment that your dr made..I think it would be wise to find another gyn. There could be many things that are causing your pain...things that may not need surgery to fix, but you should not let that thought stop you from seeking treatment. Pick up that phone! and keep us posted. Good luck to you!
  #8  
Unread 08-03-2005, 06:16 AM
Just when I thought it was over....

Fallingstar, I recommend that you find yourself another gyn and also go talk to a gastro doc. I had two sources of pain before my hyst, reproductive and digestive. You didn't specify what type of pain you're in, but I know the digestive system can really make your abdomen hurt if it's not functioning properly. Also the pain on your lower right side could be ovulation!!! Or an ovarian cyst that ruptured.

Please get things checked out and try not to worry about another surgery until you know what's causing the discomfort.
  #9  
Unread 08-03-2005, 06:54 AM
Just when I thought it was over....

If it makes you feel any better- I have the same type of pain and am 7 weeks out today. I have alot of sympathy for you because I can't explain mine either and keep thinking "oh, it is just a part of it all" and he said as much at the first week appt. I have had it since Day One at the hospital and wonder if that vomitting episode the morning after surgery (it was pretty violent and everyone had just left the room even DH for a second) perhaps made a hernia?
It is in the same area as appendix but goes up a little bit sometimes past that area. I can see it bulge out in the evening when I get swelly belly and am very tired. In fact, the more I do, the more it will hurt.
I begin this morning feeling it (I was waking up all night even with sleeping pill and finally got up to take some pain meds that I am supposed to be off of now) and it will probably worsen as the day goes on.
Is yours like this? You are a YEAR out and that scares me! I didn't go through all this H___ just to keep having more pain- even a different kind !
I am beginning to wonder if I should have just kept my mouth shut and lived with it all before, but they did find cervicitis and it would have eventually turned into cancer on its own. So actually, the fibroids didn't worry them as much as that and I didn't even KNOW about THAT (although I knew I had the discharge and pain but didn't know it was my cervix).
I am thinking of calling the surgeon. My boys both go to our PCP tomorrow for school checkups. I will talk to my Nurse then too and see what she thinks. I am scheduled for another appt to the Surgeon next week anyway, but this pain is pretty bad.
It's hard- to see others saying "I feel GREAT!" and I do NOT. So I really do know what you are saying. Other 7 weekers out there are back to their normal routines for the most part and I spend my evenings laying flat in bed.
  #10  
Unread 08-03-2005, 09:48 AM
Just when I thought it was over....

(((fallingstar))) Your signature line mentions you had "severe pain and endometriosis"... and you kept your ovaries, which means you're still producing estrogen. Did your DR mention the possibility that your endo may be back? It does happen, and may be a possible explanation for having so much of the same kind of pain after your surgery. Here's a link to an article that might help:

https://www.hystersisters.com/vb2/lin...=jump&lid=1382

It sounds like your DR has not been particularly helpful or supportive since your surgery. Have you considered switching DRs - either to another GYN, or an endometriosis specialist?

s,
-Linda
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