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Just when I thought it was over.... Just when I thought it was over....

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Unread 08-03-2005, 03:13 PM
Just when I thought it was over....

(fallingstar), I feel for you. I too have pain in my right hip that has gotten progressively worse since my hyst. I thought having my adhesions lysed a year ago would take care of that but it didn't. The crampy abdominal pain from the adhesions is mostly gone, but the hip pain stuck around. Also, I noticed that the pain tended to flare during my period (kept cervix & ovaries). You may want to keep a pain/food diary to see if there is anything in particular that triggers these bouts of sharp pain.

I swore I would never have another surgery...until this month when I left work early because the pain got that bad. Usually I can just stick it out, put on the ol' heating pad and get through the rest of the day. Came home & took a Vicodin that didn't even begin to start to think about taking away the pain. Not good.

Finally went to my PCP after I did a little research, and the avenue we are now going to explore is chronic appendicitis. I have a surgical consult in a week and I hope and pray that I can get some answers to this stupid pain. I hope the same thing for you--hang in there and know that you are not alone!
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Unread 08-03-2005, 04:00 PM
Just when I thought it was over....

Please call the doctor! Calling the doctor and being checked out doesn't mean that you are going to have another surgery. That's putting the cart before the horse.

Unread 08-03-2005, 06:02 PM
Just when I thought it was over....

ChurchieD, My Son suffered from chronic appendicidis! The poor kid! He would get soo sick! And every time he would he would double over in pain, well eventually he would throw up and he'd feel better.... so I asumed he caught a bug! Well this went on periodoticly where he get sick and feel better, well one summer when he was visiting his Father he had one of these "attacks" and he couldnt get sick and it wouldnt let up so his father took him to the hospital and they did surgery and they said his appendix were actually "kinked" for all the attacks he had! I felt like the worlds worst mother, but I was assured by the Doctors that they would have done the same thing because he would throw up and feel better! But anyway it was sure horrible!! Netty
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Unread 08-03-2005, 07:27 PM
Just when I thought it was over....

Yes, I have had some of the same problems, the hyst
really messed me up. I've had a lot of problems, but
one of the things that has really been very frustrating
is the constant vaginal infections, I had a real bad
bacterial infection after one of my adhesion surgeries
that took 3 mo. to get rid of it, but it took 9 mo for
them to do a culture on me to find it out. Now I feel
like I have re-occuring yeast. Diflucan doesn't do anything for it and the creme burns so bad, so I just
douch with water, and I'm not even sure I have yeast, it
feels like it but it could just be irratated nerves from
some other condition, all I know is the drs don't know
anything, and I'm tired of going just to see them shrug,
and take my money. I wish I could give you some good
answers, but I've been going to drs now for 5 years (since my hyst) had 3 surgeries since then. I am exhausted most of the time with a few good days here
and there. I am seeing a nurse practioner who seems to
know a lot about hormones who has me on a compound
now for a month and I really think it is helping my vagina. I've had the vagina from Hell for 5 years, doesn't
do much for your sex life, as a matter of fact it has
really been painful, been on pain meds now for a long
time now. Good luck, maybe you will get some answers
here, keep trying.
Unread 08-06-2005, 07:55 AM
Just when I thought it was over....

I had my third surgery this past June and I am still having pain and discomfort in my vaginal area, so I can truly understand what some of you are going through. Yes, it is depressing to have the surgery, think you will be good as new (normal) and then to still have pain. I sure wish I knew how long this will last or if I ever will be pain free again. I'm glad we have each other to vent to. I go back to the doctor in September. He told me it could take three months after surgery to be healed. That is what I'm counting on at this time.
Unread 08-06-2005, 09:35 AM
pelvic pain

agape, yes you should give it some more time, because
you could be having pain from where he worked.
And for all of you that have read my posts for the last
couple of months you know I have had constant pelvic
pain. Well I saw the NP yesterday, and guess what? I
have a rectocele. And that is what I thought I had a
year ago when I went for a consult with a pelvic floor
specialist, who goes all over the world teaching other
drs how to do these surgeries, and techniques he has
invented. I searched diligently for someone really good,
since I had, had 3 previous surgeries to no avail. He told me that I had an enterocele but no rectocele, I was sure that I did, but hey, he's the specialist, right?
Well after the surgery, yes the feeling of the baby's head in my vagina was gone but I still had the pressure
and pain in the rectal area, and functional problems there. Well I have continued with this pain, and discomfort for a year now, actually misery! What in the
heck is going on with the drs? He should have done a
complete reconstruction it there. I went back to him 3 mo.s later and he did an exam and said the repair was fine, and what ever pain I for what ever pain I had I would have to see a neuroligist.
Now what, more surgery, loss of work, (my husband would say "no sex")
And not to mention the pain ( the pain is the least of it, I'm used to the pain) I just want this fixed so I can get on with
my life. Every bit of this could have been done on the first surgery, with the hyst. Oh yeah, then there is the
expense. Just look at Sally's situation, here she is doesn't even have the help of pain meds ( I couldn't have survived without that help) and the dr that did the surgery for her constant pain, (and then still continues to have pain after surgery) dr says she doesn't find anything.
Then she talks to her internist and they suspect she has
adhesions to bladder and cuff, and when she asks him
why her surgeon didn't find anything during surgery, he says
that she probably wasn't looking for that. What in
the world was she doing in there, that is simply a no
brainer, I am just shocked and amazed! I am terrified
to do another surgery, I'm just afraid,that not only will
they not fix the problem, but create another problem.
Well I didn't mean to get carried away but I am sooo
frustrated, and just don't know what to do! slt
Unread 08-06-2005, 09:43 AM
pelvic pain

agape, I wished I had read your profile before I just
posted, You have had almost the same thing that I've
had, I am more angry than I was before, do you think
these drs just want us coming back and back? And for
what reason? I guess it could be for the money but, my
gosh, surely they have enough to do. And to put us thru
this in so many ways. I also discovered you are from
Ga. I live in north Ga. up near Helen. Who did your surgery? My dr was in Atlanta. I know you can't say names on the site, but I would welcome a PM or e-mail,
just go to my profile.
Unread 08-06-2005, 12:07 PM
Just when I thought it was over....

Thank you for sharing. Yours was the most "uplifting" post I read yet. I guess because you said things I have thought and felt for some time. The first time I went this year to my regular GYN, she too said she didn't see a return of my prolapse problems, but I knew how I felt. After many tests and several doctors, I finally had the surgery. The weird thing is she always examined me lying down. When I examined myself standing up, I had no trouble seeing the problem. I just hope this new uro-gyn has fixed it for good or at least 20 years. I know I probably will have to give it the full 3 months to know for sure. Thanks again for replying...misery does love company. I wish you the best and hope you find the relief we all are searching for.
Unread 08-07-2005, 02:34 AM
Just when I thought it was over....

Hi Fallingstar

I can totally relate to your problems with pain, as i am 10 months post op from LAVH & BSO & suffering too!

I started experiencing pain at about 5 months post op, which was very alike endo pain i had suffered with for 18 years pre hyst. At first i thought it was still recovery pains, as this is normal, but they started getting to the 'agonising' stage, where i couldnt even walk or do everyday tasks easily. Intercourse was also agony.
My GP prescribed pk's & referred me back to Gynae & also a TVS scan. The scan was agony, which proved things were not right. As it is, the Gynae thinks i have residual endometriosis, which affects 5% of 'total hyst' women.
I had a fibroid that was removed during hyst, which had endo over it, he thinks that a small amount could of been left behind & the HRT that i'm on is stimulating it.

So since May, i have been composing a spreadsheet for him, with a detailed daily info on when i get the pain, what degree it is, & what things i have done that could of set it off. He also wanted to see if there was a pattern or cycle forming, even though my ovaries have been removed.
The longer i have been filling this in, i can see a pattern & its a 4-5 weekly severe pain, mild during the month!!! I was astonished. So i'm back next month to see him, then back in for a lap!

Well, thats my story, but by the way you are describing things, i think you should keep a detailed account of everyday things you do in relation to the pain, then maybe go see your GP & show him/her?

A year is a long time to put up with this pain, its awful after going through so much surgery wise & still suffering.

I hope you can get this sorted & if you would like any advice on the spreadsheet etc, or the things i detail on it, please send me a private message

Take care

Love Sophie xxx
Unread 08-07-2005, 09:09 PM
Just when I thought it was over....

I am finding that my pain is tollerable during most of the onth then it flares up for awhile. It has a lot of discomfort and pressure especially in my viginal and rectal area. The pain is mostly on my right side. I really do no want to go back to the doctor that done my hyst. for the fact that what he said. It was almost like he knew I would get pain and/ or discomfort back. My hubby wants me to go see his Dr. but money wise we can not afford another Dr. bill. Sex is bad for me as well. It's like playing poker for me. You take a gamble wether or not it's going to hurt or not. Well I wish each of you well and maybe someday soon we all can be pain free!

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