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Anyone have to stop working? Anyone have to stop working?

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  #11  
Unread 08-23-2005, 10:12 AM
Anyone have to stop working?

((Poofy))

I assumed you were a full time employee of the state. I have no idea what options are available to temporary employees. I hope the ADA helpline was indeed helpful to you. Please come back and share what you learn about ADA and SSDI (Social Security Disability Income). Perhaps this would be of particular benefit in the "In Search of Support" forum.

s to all of you facing the difficulty/inability to work.
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  #12  
Unread 08-23-2005, 04:57 PM
Anyone have to stop working?

Poofy,
Here's a thread with some links about disability, not sure if they will pertain to you, but thought you may be able to find some helpful information:
Anyone out there on disability?
Working or disabled?

I'm sending s and hope that you can find some relief from your ongoing pain.
  #13  
Unread 08-23-2005, 06:42 PM
Anyone have to stop working?

((michelle35)) Thank you. The ADA number was very helpful and I was referred to the EEOC. I will have to call to my HR department at work. I am going to wait to see how thngs go after I see dr. Thursday. But now I know where to get the information I need thank you. Take Care.

((Kim M)) I am going to the links now. Thanks.
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  #14  
Unread 08-30-2005, 07:09 PM
hi

Hi Poofy,
I have a question about this PFD. Is your pain constant, or do you notice it more at specic time, like wearing jeans, sitting for long periods, doing phycial work like raking, washing floors etc. Also, is it in one spot, or does it seem to "move"? Do you have good days, when you almost feel normal, then "bam" it comes backs? How didthey dx you??? Sorry for so many questions, but after seeing 7 doctors in 2 years, I have been told, scar tissue, abdominal wall sydnrome, yada yada, but no real answers!!!! Good luck.
  #15  
Unread 08-31-2005, 07:28 PM
Anyone have to stop working?

((whatsnormal)) Since surgery I have had one spot in my vagina that feels like something was in there. It burned for months and months. I too was told just scar tissue. This feeling has never gone away. I was diagnosed with PFD with a regular very thorough vaginal exam with the speculum. They say the muscles are just constantly tense and hard. I went to PT and thanks to the therapist upon her observations about my redness and oneside being so much larger than the other, my doctor did an exam without the speculum and he felt the mass I have been feeling. Evidently the speculum had been pushing it away.I have got to the point now where it's hard to urinate when I swell so much. I am scheduled for a MRI on 9/10 and I do hope it shows what is going on in there. Okay about your questions. I just started wearing jeans again this summer, sitting for long periods at a time is killing me, when I had all the burning going on I use to sit with my legs crossed tight a reaction to the pain I guess and that has also caused these muscles to tighten I believe. I am not allowed to do yard work or even exercise right now because it makes it worse. The pelvic floor muscles affect your abdomen and your back. I have had alot of back pain. I have had good days when I felt almost normal and I keep asking myself what is different about today. But, I always have that feeling that there is something in there. I can feel the swelling on the outside and my vagina is usually so so sore. There is some good information on the Internet about PFD. I know how you feel because I have been to many many doctors and I was so so happy when my new doctor felt what i have been feeling every since surgery. I just hope this MRI shows what it is. I'll be sure to post when I find out.
Take care
  #16  
Unread 08-31-2005, 07:40 PM
hi

hi again, thanks for the answers. Sometimes, don't you feel like your going to go crazy? I mean, I know many women, my mother & sister both who had this done and were fine in 6 weeks. Neither one had a TAH/BSO though, they both kept there ovaries. Sometimes, when the pain starts, mine is more like a "pinching, squeezing" sensation on my very low left side, I think, "oh no, not again!" Then it leaves after a few days, then the soreness comes back, then leaves. It is so frustrating, that I have given up. I found that chiro care, along with some Xanax to help me sleep and put it all out of my mind helps. Don't be suprised if nothing shows on the MRI. I had a CT scan, x-rays and IVP dye test all done at the same time and nothing showed. Well. good luck, and keep me posted!
  #17  
Unread 08-31-2005, 08:37 PM
Anyone have to stop working?

Hi whatsnormal.
Yes, I have really felt like I was going crazy at times. I feel right now it's all about getting answers and then I can learn to live with it. Accept it and try to be the best I can be. It's been a real hard trying time. It is for anyone living with pain. This is so annoying like something in your eye. Sometimes I feel nothing will be right in my life until I get answers and then I can move on.
Yes, the pinching feeling is what I have too! I even showed the dr and PT by pinching my arm and not letting go. That's what it feels like when it is at it's worst. The PT says the muscle is in spasm. I always have discomfort it never goes and the swelling. Ice helps the swelling and the pain. If the MRI doesn't show anything at least I know the dr. finally felt it. I am having to take Xanax again to sleep too. Too much worry. Xanax helps also because it's a muscle relaxant. But now I have this problem with urinating that's the worst thing. I am waiting til after the MRI before I take leave from work now. I was going to do it to work on my PT more but now the dr. says I will need the PT if I have to have more surgery, so I need to save my visits. I know your frustration because I have had good days too. Then the bad comes again. Right now it's bad all the time and I just want to go into hibernation. I'll keep you posted.
  #18  
Unread 09-01-2005, 01:33 PM
Anyone have to stop working?

Poofy,
I am SO sorry to hear that you have had such a hard time of things. I tried returning to work several weeks post-op-I worked as the PM of the I/T Dept. of a nuclear power facility 83 miles outside of Ft. Worth-it was when most were off for the holidays, and I was the ONLY person in my building...which I thought was going to be Grrreat for getting some things done! I was proved very wrong when I began getting sick and started bleeding vaginally. I had to drive myself 83 miles to the ER, only to be told immediately that I was prolapsing! It is very important to give your body time to heal, regardless of what your employer may thinkis adequate time for you to be "gone." I moved to Florida a month after my final repair surgery from my TAH-and got a job I loved. A few months into my new job, I found out that my cancer was back, and I have not been able to work ever since. My husband kills himself at work to keep our family in the comfortable lifestyle that we have, here. I feel AWFUL because I am unable to bring home a paycheck-BUT, your health is THE most important thing, here! I hope that you are able to get some assitance with the entire situation you're having in relation to your job. Hippchick, I also feel for you, and am wondering if you have found anything out about Your situation-since you are a fellow Floridian, I want to offer to help you tracking down any info. that may help you. Feel free to PM me if you'd like some help. I feel so badly for all of you Sisters who have had issues with employment and your surgeries and pain. I send you all s and LOVE.

Christy
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