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Could use some advise!  Help!! Could use some advise! Help!!

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Unread 08-22-2005, 11:45 AM
Could use some advise! Help!!

Hey Everyone!
I really need some advise and support! As some of you know I had another Lap 4wks ago. They found endo and ORS. Well I went for my post op appt. and talked to my doc and she suggested that I have another surgery to remove both masses where my ORS is. She informed me that she would have to cut my incision to get to it that she wouldn't recommend doing it with the lap scopes that it is too risky. I am still in a lot of pain. My question is has anyone gone through this surgery and did it help? I have done some research on this but have yet to find a personal story from anyone who has gone through this. When I left the office today, I told the doc I would call her back to let her know my decision. I just couldn't make one today, I am sooo scared to be cut on again. I had my incision from my hyst open and it took 6 months for it to close!!!

Help!!! Mel
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Unread 08-22-2005, 12:10 PM
Could use some advise! Help!!

Tool Girl has been through this and so has IZCOCO. You might try emailing or PM'ing one or both of them.

I am so sorry that you are looking at having to have another surgery. I go today for an ultrasound with my new GYN who suspects that I too have ORS and she is going to get a consult scheduled with an oncologist surgeon. They are much better skilled at dealing with this type of thing and are much more thorough than a regular gyn surgeon (this came straight from my gyn and from others who have repsonded and from what I have researched so far).

I wish you the best! I had my hyst in 2003 and then lost my left ovary last year where the suspected ORS is now and again facing another surgery!!!!

Feel free to email or PM me if you need to vent and I would be glad to help you gather some information regarding the ORS!!!!

Unread 08-22-2005, 03:28 PM
Could use some advise! Help!!

Mel....I'm sooo sorry your looking at another surgery! I really hate this for you! I'll say a prayer for you!! Take care Netty
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Unread 08-22-2005, 04:02 PM
Could use some advise! Help!!

Mel and Jody -
Oh girls! I'm so sorry! I hate that you are both having so much trouble! Mel - I agree - it is a huge decision! And you have so much going on in your family right now.......just to make it that much harder to concentrate on yourself.

Both of you - please take care. I'll be thinking of you!
Unread 08-23-2005, 07:18 AM
Could use some advise! Help!!

First of all I just want to thank all of you soo much! I don't know how I would get through all of this without the support and concern of all my sisters!!

I have decided with much struggle and reluctance to go ahead with my surgery! I just can't stand this pain any longer, (I know nothing is 100%) I just have to try! I talked more with my doc and she felt I was making the right decision, I also talked with DH and he also said he just wants me to be pain free and to have my life back for him and my children. My surgery is scheduled for Sept. 29..... Once again I play the nervous waiting game!!!
I can use just a little more advice on how to handle another issue...I talked with some family members and close friends about what was going on and they seem to be blaming my doc for what is happening to me! I find myself getting very defensive and angry, I do feel very comfortable with her, she has given me no reason to doubt her abilities and trust...she has done everything in her power to make me pain free. I know it is my decision and my feelings and they should just butt out, how do I tell them without them getting upset or mad at me? (I know I am a worry wart!).
I just want them to respect my decision! I want them to want me to be pain free...(sound weird?).

Thanks for listening!!

's Mel
Unread 08-23-2005, 09:22 AM
Could use some advise! Help!!

What similar creatures we seem to be! LOL I just wanted to tell you that I know exactly what you mean about the family blaming your doctor. Mine are also very accusatory towards my doctor. I guess what they don't realize is that if I didn't trust her 100% I wouldn't go back to see her! Nobody knows what it's like, unless they've walked in our shoes. I know that's a little cliche, but sometimes it's just the plain truth.

Try to find things to occupy your time/mind while you wait for your surgery. Sitting around and thinking about it will only drive you insane.

Take care - will talk to you soon!
Unread 08-23-2005, 05:22 PM
Could use some advise! Help!!

Mel, Maybe if you could give your family information on ORS it will better help them understand what your going through. Of course if you are totaly comfortable with your Doctor thats what is really important, but I can understand you wanting your family to back you up on your decision.
The Doctor who did my last operation(the one where everything went wrong!) I still after had faith in her. At least she tried to help me!! Unlike all the others!! And even a year later I called her and told her how none of these Doctors will touch me here and she asked me if there was any way I could come back there so she could help me! I understand your "trust"! I really wish you the best Mel! Please keep us updated and know were all here for you!! Take Care.....Netty
Unread 08-23-2005, 05:37 PM
Could use some advise! Help!!

Hi Netty,
Thank you so much for your kind words. It really helps to know that there are others out there who understand and know what I am going through.
I have talked more today with my family and they seem to understand the urgency of my operation, they now realize that I need to be pain free!! It's such a major decision. I just wanted to make the correct one! If you can't lean on family and friends, then who can you!

Take Care!
Unread 08-23-2005, 07:49 PM
Could use some advise! Help!!

Mel, I'm sure you've made the right decision, and I glad your family understands now. It sure does help to have someone to lean on! Take Care ....Netty

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