I'm pretty scared | HysterSisters
HysterSisters Hysterectomy Support and Information
Advertising Info HysterSisters Hysterectomy Support Tutorial

Go Back   Hysterectomy HysterSisters > Hysterectomy Support Posts > Preparing for Hysterectomy (pre hysterectomy)


HysterSisters.com is a massive online community with over 475,000 members and over 5 million posts.

Our community is filled with women who have been through the Hysterectomy experience providing both advice and support from our active members and moderators.

HysterSisters.com is located at 111 Peter St, Toronto, Canada, M5V2H1 and is part of the VerticalScope network of websites.

With free registration, you can ask and answer questions in our HYSTERECTOMY forum community, get our FREE BOOKLET, access Hysterectomy Checkpoints and more.

You are not alone. The HysterSisters are here for you. Join us today!
join HysterSisters for hysterectomy resources and support
Reply

I'm pretty scared I'm pretty scared

Thread Tools
  #1  
Unread 09-08-2005, 12:09 PM
I'm pretty scared

Hello ,
Back in 2003 I had a partial hysterectomy just my urterus and cervix was removed. Because I was diagnosed with prolapse. About a month ago I started having pain down by my left ovarey and down my left leg. I went to my Gyn. and he sent me to get a sonogram. I ended up getting a internal sonogram done. The Radiology report read as followes. In the left adnexal region there is a 5.2 x 4.2 x 4.1 cystic lesion which has avascular mural nodule. It goes on to say the nodule could be related to a dermoid tumor however there was no fatty component identified on a prior CT I had done in Feb. 2004 where they found a kidney stone and a ruptured cyst on my right side. He also says the differential diagnosis includes endomerioma, hemorrhagic cyst with mural clot, or even a cystic adnexel malignancy. He says it is difficult to define ovarian tissue around this lesion but this is probably related to the ovary. At the bottom of the page he states his impression is there is a dominant, complex cystic lesion in the left adnexa. I had the CA-125 blood test done and it came back at 31.4 which my Gyn says it should be below 20.

I'm 46 years old and have 3 children, breast cancer runs in my family (my mother and sister) but ovarian cancer doesn't that I know of.

Should I be worried about ovarian cancer?

gma3xs
Sponsored Links
Advertisement
 
  #2  
Unread 09-08-2005, 12:22 PM
I'm pretty scared

I just wanted to send you some hugs gma3xs -- and let you know that while you are waiting for a response here, there is a Hyster Sisters forum for cancer concerns that you might find helpful as well.

cjcj
  #3  
Unread 09-08-2005, 01:18 PM
I'm pretty scared

cjcj,

thanks for the hugs I needed them. I will check out the cancer forum.

thanks again,
gma3xs
Sponsored Links
Advertisement
 
  #4  
Unread 09-08-2005, 09:02 PM
I'm pretty scared

My guess is that you can't help but worry about ovarian cancer. It's too scary not to. But, CA 125 is not a reliable diagnostic and I'm not sure your doc did you a service by saying it "should" be below 20. Lots of things can cause it to be elevated that aren't cancer. And, some women turn out to have OC and never had an elevated CA 125.

What does you doc propose should be the next step?

I'm sending this with best wishes and good thoughts.
  #5  
Unread 09-08-2005, 09:55 PM
I'm pretty scared

gma3xs
s I can understand why this is scarey for you.

Should you be worried about ovarian cancer you ask. The only way to know for sure if this is cancer is removal and a pathologist to look at it. Your CA 125 is slightly elevated by the scale your doctor uses. This does not always indicate cancer. The CA 125 may be useful in the future. If it comes down after the removal of this mass then it may be useful for you. The doctors look for the trend, not just the number.

My personal opinion is that you would have another opinion from a doctor who is a gyn/onc. These doctors are specialists in pelvic problems and are the most experienced in knowing what to look for during surgery.

We are here for you 24/7 to answer your questions. Take one appointment and one test at a time. It is easy to look beyond the next step and think "what if."

s and ers
Jane
  #6  
Unread 09-09-2005, 04:57 AM
I'm pretty scared

I'm scheduled to have my ovaries taken out on the 19th of Sept. Could someone explain to me what a complex cyst is? When I had my uterous taken out the same doctor did that operation and he told me my ovaries were fine then. I had told him before that operation that if my ovaries were good than I didn't want them taken out, because I didn't want to go into medopause. I guess I should have had him taken everything out then.

Thanks for the replies, It feels good to be able to talk to other women who have been in similar situations.
  #7  
Unread 09-09-2005, 12:46 PM
I'm pretty scared

  Quote:
Originally Posted by gma3xs
Hello ,
Back in 2003 I had a partial hysterectomy just my urterus and cervix was removed. Because I was diagnosed with prolapse. About a month ago I started having pain down by my left ovarey and down my left leg. I went to my Gyn. and he sent me to get a sonogram. I ended up getting a internal sonogram done. The Radiology report read as followes. In the left adnexal region there is a 5.2 x 4.2 x 4.1 cystic lesion which has avascular mural nodule. It goes on to say the nodule could be related to a dermoid tumor however there was no fatty component identified on a prior CT I had done in Feb. 2004 where they found a kidney stone and a ruptured cyst on my right side. He also says the differential diagnosis includes endomerioma, hemorrhagic cyst with mural clot, or even a . He says it is difficult to define ovarian tissue around this lesion but this is probably related to the ovary. At the bottom of the page he states his impression is there is a dominant, complex cystic lesion in the left adnexa. I had the CA-125 blood test done and it came back at 31.4 which my Gyn says it should be below 20.

gma3xs
Your pathologist is basiclly saying that your cyst could or could not be benign. Which means you have two choices one would be a larposcopic done to look at it or take the ovaries out. So yeah I would say you might have something to be worried about. However your doctor has you scheduled to have them removed which is a good thing and your worries will be over. I'm really sorry you to have to go through another surgery and worry that it might be cancer.

And yes studies have shown that breast cancer and ovarian cancer are related in that your mother could have breast cancer and because of that you could either develope breast or ovarian cancer.

Risk factors for ovarian cancer include:

A family history. Between 10% and 20% of women with ovarian cancer have a close female relative who had ovarian or breast cancer.2 These women may develop ovarian cancer at an earlier age, such as in their 40s, rather than at the more typical age of postmenopausal women in their 50s.

Increasing age. Ovarian cancer most often affects postmenopausal women.

No full-term pregnancies. Long-term uninterrupted ovulation increases your risk for developing ovarian cancer.

Early onset (under age 12) of menstrual cycles and older age at menopause.

Infertility. Long-term unprotected sexual intercourse without becoming pregnant appears to be a risk factor over time for ovarian cancer.

Long-term use of estrogen. Studies have shown an increased risk with long-term (more than 10 years) estrogen use but no increase in risk with combination hormone (estrogen and progesterone) replacement therapy.

Use of talcum powder in the genital area. Experts have seen an increase in ovarian cancer in women who routinely use talc (magnesium silicate).6

Polycystic ovary syndrome (PCOS). Elevated levels of male hormones (androgens) commonly found in PCOS may increase a woman's risk for ovarian cancer.6
A history of breast cancer. Women with a history of breast cancer have twice the risk of developing ovarian cancer than women without a history of breast cancer.4 Women with a family history of breast cancer also have an increased risk for ovarian cancer

I don't mean to scare you but you are having your surgery so thats a very very good thing. Good luck to you in all ways. I hope everything turns out for you.

I know your scared I had one when I had my larposcope done back in july and I had to have a chest xray they found spots on my lungs so I was sent for a ct scan and sure enough I have three nodules in my lungs but they were compared to a ct scan I had a year ago and there was no change in size so they are assuming benign. So now I am watch and wait and will have another ct scan in jan if they change in size then on to biopsy to see if they are cancer. So I can throughly relate to your scare. I take one day at a time and pray that they are just a few bumps in my lungs.

Huge huge to you
  #8  
Unread 09-09-2005, 12:55 PM
I'm pretty scared

Oh and one more thing then I will be quite

Complex cyst:

Debra writes: I have recently received results from an ultrasound indicated that I have a adnexal septated complex cyst versus simple cysts on my left ovary. I have had several surgeries in the past for cysts and endometriosis (mild). I have left discomfort constantly and intercourse in certain positions is uncomfortable. My doctor is repeating the ultrasound in a couple of weeks. I question this due to my history or repetitive cysts. Almost every couple of years I have to have a D&C because my bleeding becomes so very heavy.

What does complex adnexal septated exactly mean.... This culprit that brought me back to the doctor this time was clotting and leg aches.

It sounds as though the ultrasound isn't clearly showing whether there is one complex cyst or more than one simple cyst (presumably close together). A simple cyst would be one "sac", usually filled with fluid. Simple ovarian cysts are very rarely cancerous - various types of simple cysts are quite common during the childbearing years.

"Septated" means that the cyst is divided into segments. The significance of this is partly in how thick the walls ("septa") are between the parts. A thicker wall is thought to be a higher risk of being malignant, as is a complex cyst (which has solid and non-solid areas in it). Usually when there is a simple cyst, another ultrasound will be done in month, whereas with a complex one they would remove it and evaluate it for ovarian cancer. It sounds like in your case, not knowing which it is, the recommendation is to split the difference.

Adnexal just means it's in the area near the uterus, which includes the ovaries and fallopian tubes.

Endometriosis sometimes produces its own kind of cyst on the ovary, called an endometrioma, or "chocolate" cyst.

Another test that can be done to possibly give clues as to the malignancy of a cyst is the CA 125 blood test, although this test is not infallible.

I hope this helps
  #9  
Unread 09-09-2005, 01:19 PM
I'm pretty scared

Jan,
Thanks for the information. I will pray for you that everything comes back ok. I know you have to be very scared also and I don't blame you. I noticed that my risk would be higher if I was younger than 12 when I started my period. Well I guess that's another mark against me because I was 10. But I'm gonna keep my chin up and if it comes back as cancer then I will deal with it then.

God Bless
gma3xs
  #10  
Unread 09-09-2005, 01:22 PM
I'm pretty scared

gma3xs - my thoughts are with you. My mother-in-law was diagnosed with ovarian cancer earlier this year... her CA-125 was like 17,000! I'm not sure of the exact number but it was incredibly high! A lot of things can cause a slight increase in the CA-125 numbers and I think that it is pretty standard that anything below 35 is considered to be cancer free. However, I think that it is good you are having things taken care of. These docs just want to cover all bases so they have their ***** covered... that's why you don't get a definite is it malignant or benign. Just my opinion :O but I see it all the time. I hope you get some answers and are able to feel good soon. Take care and keep us informed on how you are doing. Maria

P.S. My mother-in-law underwent TAH BSO in March 05 and 6 chemo courses... she's feeling great and cancer free!
Reply

booklet
Our Free Booklet
What 350,000 Women Know About Hysterectomy: Information, helpful hints as you prepare and recover from hysterectomy.
Answers to your questions
Register




Thread Tools

Forum Jump

Similar Threads
From This Forum From Other Forums
23 Replies, Last Reply 09-30-2008, Started By dcastleb
4 Replies, Last Reply 08-05-2008, Started By trickyt
9 Replies, Last Reply 07-09-2008, Started By scarrycat
11 Replies, Last Reply 12-27-2006, Started By chardy
9 Replies, Last Reply 09-29-2006, Started By SuburbanHermit
21 Replies, Last Reply 01-21-2006, Started By time2grow
6 Replies, Last Reply 11-14-2003, Started By sdf
6 Replies, Last Reply 06-26-2003, Started By Bugg
4 Replies, Last Reply 06-09-2002, Started By Mich1199
12 Replies, Last Reply 04-12-2002, Started By Selina
2 Replies, Last Reply 10-08-2000, Started By kh20
6 Replies, Hysterectomy Recovery (post hysterectomy)
5 Replies, Hysterectomy Recovery (post hysterectomy)
8 Replies, Hysterectomy Options and Alternatives
5 Replies, Hysterectomy Recovery (post hysterectomy)
3 Replies, Hysterectomy Recovery (post hysterectomy)
2 Replies, Hysterectomy Recovery (post hysterectomy)
5 Replies, Prayer Requests for Hyster Sisters
3 Replies, No Uterus - No Ovaries - Yes HRT - Surgical Menopause
3 Replies, Hysterectomy Recovery (post hysterectomy)



Advertisement

Hysterectomy News

October 18,2021

CURRENT NEWS

HysterSisters Takes On Partner To Manage Continued Growth And Longevity
I have news that is wonderful and exciting! This week’s migration wasn’t a typical migration - from one set ... News Archive

TODAY'S EVENTS

Calendar - Hysterectomies - Birthdays


Request Information


I am a HysterSister

HYSTERECTOMY STORIES

Featured Story - All Stories - Share Yours

FOLLOW US


Your Hysterectomy Date


CUSTOMIZE Your Browsing  


$vbulletin->featuredvideos is not an array!
Advertisement


Advertisement