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pelvic rehabilitation-what is it? does it work? pelvic rehabilitation-what is it? does it work?

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  #1  
Unread 09-16-2005, 07:35 PM
pelvic rehabilitation-what is it? does it work?

I went to a pelvic pain management specialist on Wednesday. She said I had knots all in my muscles in my pelvic floor. A little history--I had my hyst. and then three other surgeries for more endo and adhesions and I am still living with pelvic and lower back pain. ANYWAY--The doctor wants me to have pelvic rehabilitation and biofeedback with a physical therapist. I have never heard of this before.......

Is there anyone who could give me some insight or your own personal story (good or bad!) of this? I am a little nervous at the thought of someone 'manipulating' my lower abdomen and insides!! Her exam alone has caused me days of pain and discomfort. I just can't imagine having someone 'working me over' down there!!

Anything anyone could share with me would be much appreciated. I am just not sure if this is the course of acion I want to take, but then again, I don't have many options left.

Thanks for listening and God Bless.......
Crystal
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  #2  
Unread 09-16-2005, 11:26 PM
pelvic rehabilitation-what is it? does it work?

Every woman undergoing a hysterectomy should be referred to pelvic PT. A hysterectomy wreaks havoc on the pelvic floor and w/o proper instruction its extremely hard to regain strength. Having a strong pelvic floor helps to keep prolapse problems from occuring (its not a 100% guarantee).

From personal experience a physical therapist is much more gentle than a GYN. A PT checks the muscle tone of the pelvic region and when doing an exam is only interested in the muscles, so dont fret about being "worked over"--its nothing at all like a pelvic exam done by a GYN. Upon/after esamination, which by the way will probably be from head to toe, the PT will be able to offer you a diagnosis, treatment option(s), and prognosis.

I'm not sure exactly what you want to know, and even if i did, it would be hard to say exactly what would/will be done during your PT sessions since everyone is there for different issues. Any specifics youre interested in feel free to PM or repost.
I'm sure others will share their experience(s) as well.

good luck
diana
  #3  
Unread 09-17-2005, 06:52 AM
pelvic rehabilitation-what is it? does it work?

Crystal!

I personally have not had to go to a PT for Pelvic therapy - but know there are many women on this Road that have. And I know they will be along to share their stories with you. It's important that you keep an open line of communication both with your PM doc and your PT. Share your concerns with them. Ask a lot of questions. The more you know, the better prepared you are going to be.

Take care, and let us know how you are doing!

s
Cortney
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  #4  
Unread 09-17-2005, 07:16 AM
PT therapy

Young American, has been recieving treatments for
a while, maybe she will see this post, but in the mean
time I will try to contact her, we have e-mail several
times.
  #5  
Unread 09-17-2005, 09:08 AM
pelvic rehabilitation-what is it? does it work?

Hi Crystal

I've been referred to a PT for persistant incontinence issues since my hyst. As Diana mentionned, my PT also expressed concerns that women were not automatically referred for PT after a hyst

Since, in my case, I wasn't referred for pelvic pain, my experience will, probably, be a lot different than yours. However, I can say that, in my case, there was no pain involved, not even discomfort (other than the unease brought forth by having a probe inserted in the vagina). My therapist is very thorough in her examination, but also very gentle. And it works: there was improvement right after the first session.

I know that there are others who have consulted PT's for pelvic pain. Hopefully they'll be along soon to share insight.
  #6  
Unread 09-18-2005, 05:06 AM
pelvic rehabilitation-what is it? does it work?

When I had ny urodynamic testing done at the uro/gyns office in July the practioner mentioned pelvic floor therapy. I seem to have alot of dysfunctioning in there. we have figured out it is most likely due to back problems, with nerves being pressed on. I will most likely be needing back surgery. I am thinking I may need pelvic floor therapy to try to strengthen those muscles in there since the nerves haven't been signaling for them to work correctly. I am gaim if it will help.I read where this type of back injury can cause loss of sensation in the crotch area. I would think the therapy would help to increase that sensation, at least I am hoping so.
It might be worth looking into.
Peggy
  #7  
Unread 09-18-2005, 11:45 PM
Physical Therapy

Well ok. I haven't thought this through much but I was diagnosed with Interstitial Cystitis since my hysterectomy and I got the "IC survival guide" and in it is a description of pelvic floor disfunction and boy did it describe most of my symptoms to a tee. I found a Physical Therapist who specialises in Women's Health and takes my insurance. More difficult than it sounds I really put up a fight to find her. She has worked me over like nobody's business. She has worked on my bikini scar and old episiotomy scars. she has worked on my adductors. She has helped me so much I can not tell you. Some of it is painful but I have gotten so much better with her help. not all of these people who say they are pelvic floor rehab people are. Some of them only work on incontinence but that is not all there is. In fact I had the opposite problem I was having retention. Good Luck! PM me if you want more info.
  #8  
Unread 09-19-2005, 03:30 PM
pelvic rehabilitation-what is it? does it work?

Hi Crystal Lady Bug!

I'm Stacy, the one that was mentioned a few replies ago. I am currently going through pelvic floor physical therapy, and all I can say is its been a complete GOD SEND! I have been suffering for over 4 years and I was finally diagnosed this May with pelvic floor spasm. My pelvic floor was also in spasm all over the place, and that is what was causing my pain. Of course, the initial problems led to this issue and the multiple surgeries didn't really help... I mean in my case, not necessarily yours. I know its scary, and I understand how you feel. I was the same way. And it seems awkward, but if you can bear it, and if the therapist is good, you should be very comfortable. I'm assuming its a female physical therapist, mine is. I also have been getting trigger point injections. I know they sound scary too, but they make you numb so you don't hurt during PT. Oh, and I'm also on vaginal flexeral, which I completely recommend! You get it from a compounding pharmacy. Its a capsule that you insert at bedtime. I think its part of what is making me feel better. All I can really say about PT is that it hurts, but its a good hurt. You feel worked over when you leave, and that might hang on for a few hours, but after that you feel better! I look forward to my therapy because I know each time I will feel better. My case was so severe she had me doing PT and TPIs twice a week. I'm now down to once a week and we're weaning off the TPI's. Last week was my first without and I did ok. Yes, the PT will be intravaginal but that is the only way to get to the muscles. If you were a guy they'd have to go in the other way, so which do you prefer? I'm glad I'm not a guy. You will most likely need extensive therapy beyond the pelvic floor because the years of tension have affected the neighboring muscles. My inner thighs, abdominal, and side/back muscles are all so tight. They should be soft, not hard like they are now. If those items are not addressed they could cause the pelvic floor to go back into spasm. I went through my first 12 allowed PT appointments very quickly, but my ins. approved 12 more since there has been significant improvement. She's got me schedule for therapy all the way through to the first week of December, and I started at the beginning of June. Its not a quick path. We had great success with the initial spasms and they let go but these last three or so have been buggers! Last week she said they were starting to let go finally. I suspect those were the ones that started everything, hence they'll be the last,and hardest to let go. I could go on and on and on. This has been so significant in my life. I'm so grateful because nothing until now has worked. My therapist keeps having to remind me that I'm getting better. Its hard to accept when you're used to everything failing to help you feel better. I recommed a book that my therapist recommended to me, it will help you understand what you're dealing with. One of the authors, a man, suffered with pelvic floor pain for over 20 years, can you imagine? So even tho it feels horrible to you, it could always be worse. The book is called A Headache in the Pelvis. I bought it on Amazon.com for like $20 or so. Read what you can on the website, I think it has some excerpts http://prostatitis.org/aheadacheinthepelvis.html. I found that some of the descriptions of the pain fit me perfectly. I finally felt validated that everything I had ever said about my pain was right! I don't know about you, but I was questioning myself as to whether or not the pain was real. Try searching for my other posts where I talk about the book and what it says... they have other links in them too. We (or I rather) could write forever on this topic since its become my life, but please, feel free to email me and we can compare notes. I wholeheartedly recommend that you go through with the PT. If you're anything like me you will be glad you did. You can email me at Oops... please do not post e-mail addresses. As the others have mentioned, this PT can go both ways, either for strengthening like what's needed for incontenence, or to relax like is needed for us with the spasms. And for PT, I haven't had any kind of probe involved. To be blunt, she uses her hand. And that is actually very important because she can then feel when the circulation has recovered in the muscle. She says it gets warmer and she can tell when its loosening up.

As usual, I've written a novel! That's just me! Please email, I'd be happy to go into greater detail. Heck, you could call me, or I you, if you wanted. Oh, where are you located? I could recommend some great doctors if you're near me. Hey, it took me 4 years to find the right people, including the PT specialized in this, so be grateful you were able to find anyone. This is a relatively new diagnosis and treatment so its not widely available or known.

I look forward to hearing from you. Sorry I didn't get to you sooner.
Stacy
s
  #9  
Unread 09-24-2005, 08:46 PM
pelvic rehabilitation-what is it? does it work?

When I went to my pelvic pain specialist she also told me that my muscles where in spasm (well you can read my sig line). I went to a physical therapist and the first time she tried to measure the strength of those muscles, theydidn't even register onthe screen. My brain and muscle connection was lost so I had ot work a lot to get that back. Yes it hurt some time, but it did not cure my pain, mine is from adhesions, but I figured that since this was broken I might as well fix it. I also did a lot of work in a pool too. My personal opinon would to have a physical therapist that deals with chronic pelvic pain and myofascial pain etc....not all of them do it. Even when I started they told me it might take months for it to get healed, but like I said that is not the source of my pain. I wish you the best.
  #10  
Unread 09-25-2005, 12:55 PM
pelvic rehabilitation-what is it? does it work?

Hello ladies, thank you for taking the time to reply to my thread. This site is so wonderful and really helps me feel not so alone in what I am going through.

You have given me hope and I appreciate your care and concern for me. Thank you for sharing your stories. Prayers to all and God bless.....

Crystal
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