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Doctor refuses to do hysterectomy Doctor refuses to do hysterectomy

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Unread 09-20-2005, 09:27 PM
Doctor refuses to do hysterectomy

I changed my mind about having a laparscopy to a hysterectomy because of my previous cervical cancer issue (adenocarcinoma in situ), plus I have cervical cycsts, a growth in my uterus, possible endometriosis and pain in my ovaries. When I went to the doctor to tell her she essentially refused. She wants to go with the laparscopy, she thinks a hysterectomy is too radical. I'm 34 and don't want to have a family.

I agonized over that decision for over a month. My fear of the possible cancer is always on my mind, I've been told that there are next to zero good tests for those kind of cancer cells...

Normally I would get a second opinion but I am moving away in January and with Canadian health care, I wouldn't be able to get surgery before I leave and I am scared to leave that growth in my uterus for months and months.

Am I crazy to be shocked and upset that she refuses to do the hysterectomy? I don't know what to do with these feelings. I don't know what to do!

What would you do? I also worry about the credibility of this doctor. I put in my other post that she also wants me to go on the pill for the endometriosis but has never heard of a correlation between the pill and cervical cancer. I'm beginning to wonder if I should take my chances and wait until I get a new doctor in my new town in the new year but I'm so uncomfortable.

Please, any opinions on this would be very helpful!
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Unread 09-20-2005, 09:52 PM
Doctor refuses to do hysterectomy

It took me over three years to find a doc to do my hysterectomy. I'm 34 also, husband and I have four kids, I even had one doc tell me " if one child dies, you may want to have another".
try to find a doc that you are comfortable with and get a second opinion.
Unread 09-20-2005, 11:46 PM
Doctor refuses to do hysterectomy

(((autumnbronte))) I'm sorry you are so upset with your DR. Perhaps your DR really does have your best interests in mind? The uterus is so much more than just a place to hold a developing baby; removing it, for some women, can set off a chain of other health problems, and perhaps your DR is trying to spare you that possibility if she can?

There are other treatments for endometriosis; birth control pills is one of them, because the progestin in the pills inhibits endometrial proliferation. Or Megace... which has helped some women avoid hysterectomy because of cervical pathology. A hysterectomy is not a cure for endo, either... it is possible for tiny bits of endometrium to go undetected during surgery, and re-grow later on.

Unfortunately, it's not an easy decision - it's one full of tradeoffs. If you have the laparoscopy, that doesn't eliminate the possibility of a hysterectomy later on, if the diagnosis warrants it. However, if you remove your uterus now, you can't put it back if it turns out you're one of the unlucky minority who end up with complications or other related health problems down the line.

JMHO, of course... but I don't think going into surgery without the conviction on the part of DR, patient and family that the surgery is the right thing to do is the best idea. A second opinion, however, is always a good idea. You never know, the next DR might have a completely different view, or a different treatment alternative that might work for you.

In the absence of a cancer diagnosis, a few months is a relatively short time to wait to make the right decision for you. I'd take that time to research more alternative treatments, get another opinion (or two), and read more stories on these boards from ladies with both positive and negative hyst experiences. Then take what you learn with you when you meet with the new DR, and see what develops from there.

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Unread 09-21-2005, 02:34 AM
Doctor refuses to do hysterectomy

I think surferbabe's post is, as always, spot on.

You are only 34, now I say that because I was 34 when I had my hyst done and I thought I was ready after having ovarian tumors that couldn't be treated with hormones and endo since I was finally diagnosed at 16. All our backgrounds and problems may be different but I do want to say that I regret this surgery so much, I thought I was ready at 34, I was very, very wrong.

I do have many problems after this surgery and my tradeoff was huge. I basically traded off my orgasm and sexual self and just feeling different, almost like a door slammed shut when I was 34 years old.

I just wanted to give you my perspective and I agree with surferbabe about waiting and getting a second opinion, this can't be undone. I wish with all my heart that it could be.
Unread 09-21-2005, 06:13 AM
Doctor refuses to do hysterectomy

I was in the same situation as you were, only difference I am 10 yrs older than you. I had cervical cancer and they did 3 different procedure (the last being a cone byopsy). Well when she told me about the cancer and what it would entail I asked her to do a hyster, she said "no" (later found out that insurance co. want dr's to exhaust all other procedures before a hyster). Well what I was concerned about before happened, they are concerned about the cancer again, NOW they HAVE to do the surgery. It was just like my back, I now have permanent nerve damage in my leg because of a pinched nerve cuz my X-dr wanted to do other procedures and would not even think of surgery, even though the ER dr suggested that was the route to go. And yes I am very bitter.

Just remember everyone's body is different. Not all the same happens to everyone.
Good luck.
Unread 09-21-2005, 11:00 AM
Doctor refuses to do hysterectomy

Thank you all so much for your responses, I really appreciate it. It sounds as though most people would lean towards listening to the doctor and not having the hysterectomy. I just wish I didn't have to worry about the cervix cancer, it scares me more than anything.

CABOWOMAN, I can't believe the insensitivity of your doctor! Such an awful thing to say, I'm so sorry.

SURFERBABE, it is a big deal, I know that. I didn't take this lightly at all. Doesn't the birth control pill have possible negative affects for those who have had cervix cancer? That's what got me suspicious about her credibility, the fact that she had NEVER heard this before.

AUS CHICK, I'm so sorry to hear that you regret having the surgery. Thank you for sharing your painful experience with me, that does help me look at it differently. Thank you and blessings to you.

MAREZE, that is exactly what I'm worried about. Thank you for your post! Having to go in and have all those tests done on a regular basis, knowing that there is no good test for this cancer... I've wanted to have my cervix removed before and now I have this growth, endometriosis, cysts... I just feel like my body is saying honey, let it go.

My GP is finally back and I'm hoping to speak with her about this. I'll get her opinion since I probably won't have time to gether another gynecologist's opinion before the surgery. I trust her.

You are all amazing women! Thank you so much.

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