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a little help-kinda long a little help-kinda long

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Unread 09-27-2005, 11:24 AM
a little help-kinda long

Hello all I have not posted in forever but I am going insame so I felt it was time. I had my TVH in jan- 04. left my overy's(come to find out later) he was suppossed to remove the left but surprise 5 months later when I was in the ER and they said cyst... Oh well water under the bridge.
Needless to say by August I was haveing that buger removed...Lapo, when in there the doctor said he found lots of ahedsions *sp?, one thing was attached to another and vice versa.... My doctor and I parted was after my post-op visit, by the time a month or two had passed I was in pain again a pulling snaping pain here and there, I ignored and and moved on I had not gone thru all of this to be sick again, was not putting my DH and DD thru any more.
It got worse and worse and worse . Could not ignore it any more made me a new appointment with a new OBGYN .He said you hardly have anything left from a OBGYN standpoint why are you here, he did a quick exam and referred me to a phychitrist *sp? . I almost died right there I though maybe I am crazy. So I want home and sulked till I had a fit where I couldnt stand up, it felt as though my insides were ripping to shreads. Went to ER and digonosis abdominal pain!!! Thats it !!! Anyways I found a new doctor very nice lady ran tests she thinks ahedsions, she refered me to a general surgon, Also very nice who is doing a lap friday to see what is going on.
I am so scared even though I am in pain every day- bad pain-It hurs to have a Bm it hurs to move at times my blood pressure is thru the roof for the pain- I cant have sex andymore for the next two days I am misserable.
What if they cant find anything? What if I am a little crazy. What I feel is real I know but what if they say its not. I just had to vent. I am at my wits end...
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Unread 09-27-2005, 04:38 PM
a little help-kinda long

's ell8 17,

I'm sorry you are suffering so much and wish I had some contructive help or advice to give you with what you are going through right now. I hope they get to the bottom of this for you with your lap on friday tho'.

If you are feeling pain then you are feeling pain and not crazy so banish those thoughts please. Your new dr's sound far more sympathetic and understanding so fingers crossed they will find out the cause for you too.

Hopefully someone else will be along really soon who can help more.
Unread 09-27-2005, 04:54 PM
a little help-kinda long

Oh ell816 I am sorry you are going through all of this again, believe me I have been in your shoes!!! I too was worried that they would not be able to find what was causing my pain because there was nothing left in my abdomen! I hope they find the source of yours during your lap. I am sure they will!
I am sending you many many 's It is normal to feel scared and exausted, esp. when you can't function because of your pain!! You are not alone!!

Best of luck!!
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Unread 09-27-2005, 05:48 PM
a little help-kinda long

Oh ((((Sweetie)))) I'm so sorry you've been throuh so much I know how frustrating it is to be in pain and to have all the tests come back negative

Your new doctor sounds a whole lot more sympathetic and sounds like a definate keeper!!! Hopefully the lap will reveal the source of your pain and you'll soon be on The Road to Recovery.
Unread 09-27-2005, 05:57 PM
Adhesions?? Oh yeah!

Based on the symptoms I would say...definitley adhesions, especially the pain with the bm. Good luck
Unread 09-27-2005, 11:29 PM
a little help-kinda long

I hope they find out what is causing your pain friday. We know when something isn't right inside of us. They just have no idea!
I just had a tvt 2 weeks ago and am leaking more urine than I was before. I have that awful tasks wed. to convince my gyn that stress incontinence wasn't my problem and I need to find out what is going on. I know exactly how you are feeling. Hang in there until you find the answer. You aren't crazy.
Unread 09-28-2005, 07:16 AM
a little help-kinda long

Thank you all for your kind word I am feeling much brighter today, had a long talk with DH last night and he said , If they dont find it we will find another doctor who will. It seems so strange that the people who we look up to in time of need, The doctors can fill us with so much doubt. Beond that I am off to my pre-op now, but wanted to thank all of you. I am confident today not a bundle of nerves like yesterday. Thank you all.
Unread 09-28-2005, 07:59 AM
a little help-kinda long


I'm sorry that you have had to go through so much! I know how incredibly frustrating it is to live with Adhesions. Some doctors look at us like we are crazy. I was really lucky to get my doc. She doesn't deny the existance of the adhesions! (Some doc's won't even entertain the idea) But she admits that there is little more she can do for me. SO I have had to see a Pain Mgmt doc. But she has been wonderful too. The daily discomfort level has been brought down considerably. And on my bad days - I have extra help from some meds she has given me.

The thing to remember is that pain is real. And it is a completely personal thing. Something that hurts you, may not phase someone else. And vice versa. You are not crazy. And the pain is not all in your head! But when it gets to be so bad - I know you can't hardly think of anything else. You spoke of having a DD - I have a young son (6). And the guilt I feel at times is overwhelming. I know I'm limited in what I can do many days. But by explaining things to him, he is a lot more understanding...he does just as well curling up with me to watch a movie or read, as opposed to going out and playing ball. Luckily he can do that kind of stuff with DH. The key to this is to remember that you have to help yourself feel better before you can be the kind of mom/wife you want to be. Cause if you aren't feeling well - no matter how much you try to hide it - they will know. I know I'm getting off topic here a little bit - but I just wanted you to know you are certainly not alone here. I've been there - and many other sisters here on the road have been there.

I hope that your lap give you some relief - as well as some answers.

Sending you lots of gentle s

Unread 09-28-2005, 09:01 AM
a little help-kinda long

He tried to send you to a shrink? Did you whack him a good one upside the head? Jeez, that was such an unkind thing for him to say. I guess they have to experience it before they become aware it can happen.
I'm so sorry he was such a jerk to you. I'm glad you found such helpful docs now. It seems like they are better equipped to help you anyway. Good luck with your lap.
Unread 09-28-2005, 11:18 AM
a little help-kinda long

It amazes me that some Dr.'s ever made it through medical school. I had adhesions a year after my uterus was removed that had attached to my right ovary and to my bowels. It pulled my ovary so far down into my bowels they didn't even realize when they looked at the CAT scan that it was my ovary! They thought I had a ruptured bowel or appendix. The pain was so bad I fell off the toilet onto the floor one morning while trying to have a bm!

Thank heavens I have been going to the same GP and Gyno for many years and they both know that when I say I am in pain I really am and they need to find out why. I will about bet your problem is adhesions also. I hope your new Dr. can help you because the pain is so depressing and just takes the joy out of life. Vickey

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