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Where do you turn, and when do you just give up? Where do you turn, and when do you just give up?

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  #11  
Unread 10-07-2005, 05:14 PM
Where do you turn, and when do you just give up?

Hi Dany,
You sound just like me!!! I believe all along that it is my bladder that is causing me problems. I truly can't take anymore. Sometimes, I think I am losing my mind!!! I opted out of HRT because the risks scare me. But I don't feel like myself anymore. I made an appt. with my GP again, am going to have her do a blood, urine test and this time have HER set up an appt, with a uro guy, and tell them what to do. If this is going to be a life-long, chronic thing, which after two years I guess it is, I want to exhaust everything else before I just accept this. Maybe then I can deal with it better mentally.
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  #12  
Unread 10-08-2005, 05:24 AM
Where do you turn, and when do you just give up?

So sorry to hear that no one has yet been able to identify the cause of your problems. We have traveled a similar road with these bladder issues and hematuria. A recent USN showed my bladder wall was thickened and I had a terrible UTI which they gave me a month supply of Macrobid for. At the three week mark, my urine is still cloudy, but the swelling and pain under my belly button have subsided some. They finally did the cystoscope and didn't receive any calls, so I assume no news is good news at this point. It is so hard when all the tests come up normal and you body is telling you that you are not normal. In time...things seems to appear on their tests. In my thoughts and feel free to email me. Not sure if I still have the right email address for you. Take care and keep your head up. Something will eventually show up. I found that being a pest to these Drs gets them to pay attention and dig a little further.
  #13  
Unread 10-08-2005, 09:39 PM
Where do you turn, and when do you just give up?

Hi whatsnormal

Just wanted to say I know what your'e feeling expecially the mental part. It's really hard not to let the pain and discomfort control our lives. When it's always there. We just want it to go away and be over with. A doctor recently told me I was letting my discomfort control me. Well, that was true to some extent but she has never been in this situation and that's easy for her to say. But, it did help me in hearing that because I started doing things I wanted to do and that helped get my mind off my problems. I took 2 weeks off work and just worked at home. I did all the home maintenance things I needed to do. I sewed 6 pairs of curtains and I cleaned and did yard work. I did alot. I really hurt from all the physical stuff but mentally I felt great. I got a new kitten and she has been a real joy. As far as my medical stuff goes. I had the MRI 3 weeks ago and I have not yet scheduled the appt to hear the results. I'll do that soon. I am trying to lose weight now, anything to get a little self-esteem back. I guess what I am trying to say is that yes we have these problems and we shouldn't give up and we should try to maintain as much normalcy as we can while we are waiting to get answers. Just don't throw in the towel yet. Sending blessings your way.

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  #14  
Unread 10-21-2005, 08:33 AM
Where do you turn, and when do you just give up?

prayers to you! I can relate. I am sick, tired and hopeless. i am dealing with sick elderly parents, a possible divorce (I would lose my medical insurance, its through his job!), being unable to work due to pain, I cannot afford to be bumped around to different specialists, which is what they do to you........STILL......I will go on because i must!! I will trust God and ride out the storm. For me i have decided to wait until after the first of next year to go to another doc. I am seeking opinions on my problems from these forums and hanging on. I am not going to rush into anything, but pray, seek guidance, and live one day (heck , one moment!) at a time!! Blessings and healings to you in Jesus name.
  #15  
Unread 10-22-2005, 08:59 PM
radical

Dear Whatsnormal,
I'm so sorry you are going through all this pain and run around.
I, like you, was told I had no choice but to have the hysterestomy....Only took one doctors word for it... biggest mistake of my life!!! Doc told me NOTHING, and went home in surgical menopause, without ANYONE explaining that to me.
I had mine at 22 years old, and am now going on 37, and am worse off now than I was when it all started.
I had a couple of cysts on the ovaries at 17, then I was diagnosed with endo.
After about 20 ops, I was so full of adhesions, the gyno told me it was the only way...and like you...I believed him!!!
I now live in constant chronic pain, caused by adhesions, poor surgery, and my endo has returned with a vengence due to too much estrogen.
You are right about doctors sticking together, and don't want to "fix" other doc's mistakes...no surgeon has touched me in 8-9 years...my g.p. just gives me heaps of pills and VERY STRONG pain meds do deal with it. I have always had pains in the lower left hand side, and after all these ops, it is worse, and the pain has moved to the right, middle, and my back!
I agree it's a money thing, and I find it disgusting!!!
We look to them for guidance, and we trust in what they say...we are only human!
I am very shy too, and I think we both need to start speaking up for ourselves...IT IS OUR BODIES...
BUT GIVING UP ISN'T AN OPTION, BELIEVE ME, I'VE TRIED IT, STICK WITH IT, AS I WILL BE DOING, AS YOU HAVE DRIVEN ME TO FIND A BETTER WAY.
GOD BLESS YOU, REMEMBER JESUS LOVES YOU...
All the best, Radical. xxx
  #16  
Unread 10-23-2005, 08:41 AM
Where do you turn, and when do you just give up?

Can I join in. It has been almost 2 years and am still in pain. I have had two lap surgeries for adhesions. 1st adhesions were found, 2nd well nothing was found. I just finished tests with a uro gyn and basically was told everything is fine in the urological sense and that he is sure there is adhesions but not in the normal places. He thinks the adhesions are behind my bladder which unless you open someone up and get in behind the bladder you can't or won't see them. I have had the air bubbles as well. Mine aren't going away either. Pretty wierd feeling. Pain management hasn't helped because the pain is much deeper then they can reach with a needle. Acupuncture makes the pain worse after the treatments and PT just sends me reeling. I can't do pain meds either due to severe allergic reactions.

I am going to give up for a while. I need to heal my mind and regroup. Since my surgery in Dec 2003, I have yet to go one week with out a trip to the drs. Yes, some of the trips were due to my reconstruction surgeries but I am surgeried out. 8 surgeries in 2 years. I am not giving up but I am taking a break. I need to get my sanity back and give my insurance company a break. I am doing this because no one has been able to help me. I need to save some money as well. Just in the past two years I have spent close to $10,000. in out of pocket and and am the only one working in due to my husbands muscular dystrophy. I am in well over $200,000.00 for med bills and I thank god for my insurance.

I am not giving up and I don't think anyone should. In my case I need to take a break. Who knows, taking a break may make my drs look harder the next time I see them.

Take care, just adding my 2 cents.. Good luck in the journey. I am now finding out it may be an endless one.
  #17  
Unread 11-04-2005, 01:17 PM
hi again

Hi Sisters,
Thought I'd let you know, I believe my GP thinks I'm just plain crazy. She sent me for blood work & urine, then a chest x-ray, and all came back fine. Now she is telling me I'm having panic attacks and should have the GYN put me on HRT, as that will help with the insomnia. It has been two years since my TAH/BSO, I thought doctor's don't want you on HRT!!!! Why do it now, after I've gone through surgical menopause???? My problem is my abdmonin hurts CONSTANTLY, I can't wear jeans, sitting all day at the computer at work HURTS, and the left sided pinching pain that started me on this darn journey is still there! Some days it feels like someone has something in there in a vice grip. But, like a lot of you on the road, CT scan, IVP scan all come back fine, so we must be nuts, right? Why wouldn't you have a bit of panic, when you've been through all this crap, ruined your body and your sex life, and are in more pain than before your surgery? I am going to an APRN-GYNO on the 21st. Maybe she will listen??? This will only make #8 in two years!!!! Before women have this surgery, (unless it is to save their life) they should be made to go to a class or seminar that gives HONEST info on the things that "could" go wrong.
  #18  
Unread 11-04-2005, 01:36 PM
Where do you turn, and when do you just give up?

Whatsnormal

Wow. I wish I could do more for you than just send some cyber s. But I do want to say this - It's not all in your head. It really isn't. There are so many things that can be causing your pain and discomfort. (Adhesions, endo, etc) And these things aren't visible on exams. But just because you can't see them - doesn't mean they aren't there. Do you have a history of either???

I know it is incredibly frustrating to feel like you've been run down by a bus - and then no body will listen to you. Let alone validate your concerns. But we understand. We know where you are coming from - and what you are going through. So if nothing else, please count on us to be a shoulder you can lean on. And we will all get through this together. It is a tough road to travel, to be sure.

I hope that your appt. with the new doc will yield some positive results for you. Please keep us posted.


Cortney
  #19  
Unread 11-04-2005, 03:38 PM
radical

Dear Whatsnormal,
I feel for you, wanted to send you some BIG 'S AND
Did your doctor explain why she wanted to start you on H.R.T. now???
I had my surgery (TAH/BSO) 15 years ago, and am still on it, as all my menopause symptoms come back if I don't take it...
IT IS NOT IN YOUR HEAD, YOUR PAIN IS VERY REAL, AND I KNOW ALLOT OF US HAVE BEEN TOLD THIS, INCLUDING MYSELF.
Ask lots of questions, as there has to be something going on in there! Pain has to come from somewhere.
AND I HAVE TO AGREE WITH YOU THAT THERE SHOULD BE SOME KIND OF "CLASS" OR COUNSELLING AVAILABLE TO ANY WOMAN HAVING THIS KIND OF SURGERY...
HONESTY FROM DOCTORS WOULD BE A VERY WELCOMED CHANGE!
HANG IN THERE, AND KEEP US POSTED ON HOW YOU ARE DOING.
GOD BLESS
RADICAL. xxx
  #20  
Unread 11-04-2005, 07:11 PM
Where do you turn, and when do you just give up?

Hi whatsnormal,

Read my posts! We are walking on the same road. I feel the same way, of course we have anxiety, this is very frustrating trying to get a doctor to listen and when you are uncomortable and trying to work and carry on ((yikes)), I say they should walk a little in our shoes. It's their scapegoat to diagnose us with anxiety, I believe. I so understand your frustration. This last dr. I had was a real haughty jerk. I am again without a dr. and going to wait awhile again before I see another. I got good advice here on getting the "initial consult" with a new doctor and I will do that before I get treated like a cow again. You were so right my MRI showed nothing or so the doctor said.

Do you have any idea at all what might be causing your problem? Has anyone even given you some "maybes"? What helps relieve the pain or is it always constant? What makes it worse? I was keeping a journal with mine but stopped. I am going to start back with that and see if I can figure out what's what. I seem to have gotten worse since my last dr. visit. I just want you to know you are not alone and you can PM anytime if you like. I am sending you a big

Poofy
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