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? about Neurontin ? about Neurontin

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Unread 12-08-2005, 08:14 PM
? about Neurontin

txfriend, it took 3 years, I just kept going to Dr.s and
and nurses ( I work at the Health Dept. as a dental assistant) Urologists,everybody including my primary
care Dr.. I would be sitting in the waiting room waiting
to see the Dr. and squirming, and finally by the time
I got in to see her I had just broke down crying. Some
days were worse than others, depending on how the
bowel was situated in there. But I just kept researching
the web, and Dr.s, and finally found a Pelvic Floor specialist, and he found it immediately, I was so grateful!
Finally someone could fix my problem, I had been in pain
for so long, and I too thought maybe this is just in my
head, or maybe someone else could deal with this better, I felt guilty thinking that I was just a wimp, or
something. But at night I had no pain at all, at least I
could get relief then. I work on my feet all day, and the
pressure of that pressing down made it worse, and I had
to drive about 35 mi to work, sitting. One of the other
things was when I would sit down at night for dinner I
would start to dread to take the first bite because it
would make me more uncomfortable and kind of sick,
or something, can't really explain it. The Dr. said that
most women don't have pain with these just the discomfort of the fullness in the vagina, felt like a baby's
head was in there. But I had a lot of pain. He said I
didn't have a rectocele, but I do think that the colon has
just re-distributed, because I still feel pressure in my
rectum and I still have a lot of pain. I think it must be
adhesions, because after I have a bm in the a.m. the
pain begins and last all day. Sometimes by the time I
have had a couple of meals, and things change in there
I get relief. But the emptier my bowel is the worse the
pain. If I don't have a bm at all, that's the only time I
have no pain. But before the enterocele was found, I
really thought I was going crazy, and so did everybody
else, they pretty much blew me off. I am sooo disappointed in the medical field I don't know what to
do. I still don't know what I am going to do for this pain
I've been left with. When I choose another Dr. (the PF
specialist is not in my insurance, can't affort him anymore) I will send them my records and ask that they
study them before I arrive, and give me a extended appt. time (I will pay extra) and if they can't do that
just forget it, don't waste my time or his/her. The last
Dr. I saw shuffled thru my papers, and kept saying sure,
sure, sure without even looking at me once. The last
surgery I had made the 3rd since my hyst. The other
2 were for supposed adhesions, neither of them saw the
enterocele, go figure. Lots of time, money, and pain.
And there are a lot more sisters just like me. You are
welcome to sent me a PM or e-mail. I know your pain.
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Unread 12-09-2005, 04:56 PM
? about Neurontin

Can I take it with my pain meds, until it starts to work?
I would give your doctor a call and ask.

I am currently taking Neurontin 400mg 3x a day ( I have been on it about a month). I also take Darvocet during the day and Vicodin at night.

You should consult with you own doctor because if you are taking any other medications the can be drug interactions.

Unread 12-11-2005, 08:36 PM
? about Neurontin

cmharmon, Can you tell me what side effects you experienced on Topamax as my pain doc wants me to try it. I've heard it can be really rough at the beginning but gets better. What do you think? Neurontin did increase my appetite and I gained weight but the pain relief was worth it. Did you lose weight on Topamax and did it relieve burning pain like nerve damage pain?
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Unread 12-14-2005, 12:11 AM
? about Neurontin

I think you should see a uro/gyn. My Gyn referred me to one. He specializes in pelvic problems. I had a cystocele and tvt done in Sept.2005. I kept complaining for months following my hyst.(may 2004) that I felt shooting pains like in my vagina. I also felt them in my rectum. Boy, did they hurt. My gyn had no clue, except it could be from scar tissue rubbing on nerves. (He did a rectocele and enterocele repair on me in Jan. 2005) I continued with bm problems following my posterior repair surgery. We had no idea as to what the problem was. I was taking extra fiber, colace, Miralax and eating right.I even saw a colon rectal surgeon who did tests and couldn't find the cause.
Now I am convinced the pain was from nerves being pinched. I think my back problems (herniated discs compressing nerves) was causing all of these problems.I have degenerative disc disease in my neck and had it in my lower lumbar spine until he fixed it with surgery in Oct. Since the back surgery ay which time he also did a nerve decompression procedure, I am now feeling the urge and be able to have a bm with out taking so many lax atives. Now I only use colace twice a day. I am also feeling the urge to empty my bladder. This is the first in many years. I have lost sensation in my vagina and am hoping that will come back in time.
I guess what I am saying is if you have nerves being pinched on by anything in there you could feel alot of different pains. I sure did and I know how much it hurts. Sometimes I would be out walking and one of those pains would hit in my vagina and I would have to double over until it passed. Since my back surgery these feeling have quit. If any of you have back issues I think it would be worth while to have it checked out.
I've been to a gastro. colon rectal surgeon, general surgeon trying to figure out the bm issues. I was even diagnosed with IBS, which I do not have.
Good luck and keep looking for a answer. It took me forever to get the help I needed. I just kept pushing!!!You deserve to feel as good as can be.
Unread 12-26-2005, 08:48 PM
? about Neurontin

I know you will all find this hard to believe... but it's working for me...

I used to be on Neurontin and it worked very well for me; a bonus is that it also lessens hot flashes. However, I was always unhappy about being on such a strong medication without knowing what all the long term side effects might be.

Then I read about a study about cod liver oil for rheumatoid arthritis and how the researchers could see an improvement in the inflammation markers in the blood of 87% of the test subjects. (Better yet, nearly all of the test subjects reported feeling better within 3 weeks.) Since rheumatoid arthritis is an auto immune disease and I tested positive for it, along with other auto-immune problems, I decided, "What the heck? How could it hurt?" and started taking two 500 mg capsules a day.

Believe it or not, I started to feel better within a few weeks! Then, I reasoned, that since my nerve damage is inflammation of the nerves, maybe I could ease off the Neurontin. It worked. I gradually reduced the amount until I weaned myself off (never stop this drug cold turkey, you must wean off it or you can have convulsions or other problems). The cod liver oil is working so well for me, that I sometimes forget how much it's helping... until I run out! Then I realize how well it works!

I know it sounds too simple... but think about aspirin, probably the most miraculous drug in the world, which comes from willow bark. The Native Americans used to chew it for medicine. So simple, yet so powerful.

Here's to a better and healthier New Year for all of us!

Best wishes to all,

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