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Will this ever end? Will this ever end?

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Unread 10-16-2005, 08:25 PM
Will this ever end?

After so many years of doctors saying nothing was wrong with me, I was diagnosed with stage 3 endo in Sept 2000. At that time, any endo found was burned (I know better now!) off. Within 2 months, the pain was back and I went on Lupron. This only made things worse and in March 2000, I had a LAVH with BSO. Even though I had been on Lupron between the 2 surgeries, more endo was found.

After the surgery things were somewhat better. But, I still felt like I was cycling. My GP gave me pain meds to make it through the tough days that we thought were probably just adhesions and scar tissue.

Fast forward 4 years, the pain has been steadily increasing to the point where I spent most days in tears trying to get through the days. I couldn't be the mom and take care of kids, drive them around and do all that was expected of me if I took any meds. So my choice was lots of pain.

I went back to the original surgeon who said it couldn't be endo or anything gyn. because "I took everything out."

I went back to my GP who sent me to a new GYN surgeon. The first thing done was hormone blood tests which showed that my levels were abnormal for someone who had a hyster and BSO. The cat scan showed a "normal left ovary". I was stunned. So, last week, I went in for another LSO. The doctor found more endo, adhesions and an ovarian remnant. All were removed and I am now on the recovery process again. Surgery this week was done abdominally so she could check and hopefully nothing was missed.

OK - now help! I wish I had come here before all this!
I am feeling better than I did before except in one area. On my right side, near the incisons, I have an intense pain any time I walk or stand up. It doesn't hurt when I am sitting or lying. But it is enough to almost drop me to my knees. I am used to dealing with pain but this is sharper and more intense than the 15 years of pain before. It is very focused.

It was not there until the day after my surgery. During a walk around the hospital floor that evening, it suddenly started and hasn't let up since. My surgeon sent her associate who had not idea or suggestions.

Anyone have any suggestions or ideas for me to ask or try?
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Unread 10-17-2005, 06:34 AM
Will this ever end?

Aw Angela
You sure have been thru the mill. You are still very early in your recovery and need to be resting. You say it doesn't hurt when you are resting, take your cue from that hun. It wouldn't hurt to give the doc a ring either, just to be on the safe side.
Lets hope they've sorted you out properly this time. Lots of
Big s
Unread 10-17-2005, 06:44 AM
Will this ever end?

Hi Angela!

I'm so sorry that you are still having problems after all this time! I agree with ((Sue)) on this one - you need to make sure you are getting plenty of rest. I know I've had more trouble with each subsequent surgery (it has taken much longer to heal, more pain involved, etc). So perhaps your body just needs the extra time to heal. But I would actually keep track of when the pain comes - What are you doing specifically - and does it come every time you do that? And does anything help to alleviate the pain? Then call your docs office and tell them specifacally. I know it's frustrating to keep going through this. But I do believe there is a light at the end of the tunnel. (Although it could be a train........... )

Please take care of yourself. Get lots of rest - and make that phone call!

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Unread 10-17-2005, 08:46 AM
Will this ever end?

Lets hope it's a fast one eh!

Another thought Angela - are you managing to go to the toilet ok for a BM? You say you had adhesions, were they attached to your bowel? Just some ideas you could also ask your doc about. Good luck and keep up the

Unread 10-17-2005, 09:50 AM
Will this ever end?

Thanks for the advice - My surgery was Wed and on Thursday I was still quite out of it when the doctor visited. I had a load of ??s to ask before discharge on Friday to be stunned when my doc didn't come but sent an associate who wasn't familiar with any specifics of what had been done. I am going to call this morning and see if I can get some questions answered.

My doc said 2 weeks of doing nothing - rest unless going to the bathroom. I am being very good about that. I have been attached to the sofa but those trips to the bathroom are killing me.

I have had several BMs so I know those parts are working. There was no endo or adhesions on the bowel 4 1/2 years ago but I haven't gotten a good report to know where they were this time.

I also have to mention that I have the best husband - staying with me - doing anything I ask and my mom is coming tomorrow for a week to help.
Unread 10-27-2005, 02:15 PM
Will this ever end?

Still hurting...

I am now 2 weeks out and still hurting in that one area - but nowhere else.

I went into the surgeon's office on Tuesday and she seems to think that it is a slipped knot from the beginning of the stitches that torn through the fashia?? layer.

I did get a lot of my questions answered and she seems to think that I shouldn't have any more problems with ovarian remnants. I hope she knows what she is talking about.
Unread 10-27-2005, 03:31 PM
Will this ever end?

Hi Angela
I hate when doctors just brush over our concerns. We have been waiting so long, anxiously, to tell them and then they make us feel stupid for telling them! They so obviously have no idea what it is like to be in pain.
Is there any treatment for what she described? Does it go away? Did she say when? I mean a little hope wouldn't have gone a miss! On the bright side, she does sound rather confident that you will be ok - that's a good sign isn't it. I hope you get some relief soon.
Keep up the resting, at least then you know that you are doing nothing but good for your body so
Unread 10-27-2005, 04:21 PM
Will this ever end?

I have to say that she didn't gloss over my concerns when I went in - she seemed genuinely concerned that I was still hurting. She gave me a time frame of a couple more weeks and lots of rest. So, I am just watching lots of TV and working on school work. I am trying to get better in time to student teach in the spring!
Unread 10-27-2005, 04:48 PM
Will this ever end?

I'm glad you are resting. Stay focused, you'll get there yet!
Big s

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