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diverticulitus? coloitus? chrons? diverticulitus? coloitus? chrons?

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  #1  
Unread 11-11-2005, 08:15 AM
diverticulitus? coloitus? chrons?

Any one out there w/ these?

I had a weird uncomfortable feeling around my left pelvic bone, so bad I couldn't wear my jean b/c of the pressure. Felt like I was overly constipated but had been regular 3 days previous and that day. The pain got worse, the site was tender to the touch, and warm. I went to the Dr that day, she gave me cirpo and an antifungal (can't remember which) took blood and my white cell count was 1500. I was put on a liquid diet, taken off work for a week, and told if it got worse go to the ER, but it should get better. A scope was scheduled (next Tuesday) w/ a specialist. It got better and a week later I was cleared to eat real food and go to work. I did both and by the next afternoon the pain was back. My doctor gave me more cipro, put me back on the liquid diet for a couple days and I'm off work indefinitely until the specialist says it's okay to go back.

So, here's my question does this sound familiar to anyone? How are you doing? What did the doctor do to make you better?

I just need to know that there's someone out there who has been thru this and is okay.

I'm not too worried. I've researched this online. Looks like I will have to change what I eat. Basically eat like I should have for the last 33 years of my life. At worse I will have a colostomy bag, but that seems unlikely, way out there.

Thanks for reading and posting. I knew that I can count on the sisters here.

Ginger
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  #2  
Unread 11-11-2005, 10:06 PM
diverticulitus? coloitus? chrons?

Hi, yes, I had aggravating pain several times a week for months--same area close to the left pelvic bone--no warmth to the touch, tho. Thought it might be obstructed bowel--or diverticulitis-After listening to a doc on the radio, I tried betaine hydrochloride or HCL (any healthfood store carries the stuff). It worked really well...
thank the Lord!!May not be the same as you seem to have an infection. Did your doc say what would be causing this? Get better, girl!
Leigh
  #3  
Unread 11-11-2005, 10:08 PM
diverticulitus? coloitus? chrons?

Hi Ginger Yes it sure sounds familiar to me. I had diverticulitis. HAD because I no longer have much of a colon to have it in.

A few weeks after my hyst, I started having severe pains in my lower left abdomen, sometimes radiating down into the groin on that side. The area was extremely tender to the touch. The pains had me doubled over and I had to breathe through them. I also had cycling fevers - I'd be normal most of the time, and then spike up to about 103 or 104 a couple of times a day.

Because I was fairly newly post hyst, we (DR and I) assumed it was probably related to the hyst. My poor DR racked her brain trying to imagine what could have gone wrong - could she have nicked a ureter, or the bowel, or ??? However, she got inspired when I told her the pains were worst right before I had a bm, and improved somewhat immediately afterwards...and called a colleague of hers who is a gastroenterologist. He told her to get me on Cipro and Flagyl right away and have an abdominal CT with contrast done.

The results of the CT were that I had diverticulitis. It was a bit hard to visualize the extent of it though. I was on the antibiotics for 10 days - it's soooo hard to eat a soft, bland diet with no dairy (calcium interferes with Cipro), and of course I could not even enjoy a glass of wine, because drinking alcohol while on Flagyl makes one

Almost as soon as the antibiotics ran out, the pains returned; I ended up going back on them and staying on them for a month. The gastroenterologist scheduled a colonoscopy for about six weeks later. He said that doing it before then, right after a recent diverticulitis attack, could potentially cause the bowel to puncture, because when it's inflamed with the infection, the walls get quite thin.

Anyway, when I went in for the colonoscopy, after he started it he found that the scope would not go up very far. He was afraid to push it too hard given the potentially weakened state of my colon, so he sent me for a barium enema instead. Yuck. However, that test showed much more of the extent of the problem - he said at that time that I had many diverticula over about a foot or so of the colon, and that an area showed that there had definitely been a bad infection there. We also found out that the reason the colonoscopy didn't work is that I had a congenital defect called a redundant colon - basically an extra corkscrew turn in my colon down near the sigmoid. This would have been enough to create a back pressure in my GI tract, causing me to have to strain to have a bm (sorry). And years of that (which I didn't know I was doing because it was *normal* for me) is what caused the diverticula to form - and probably also contributed to the prolapse for which I had the hyst.

At that point the gastroenterologist told me that perhaps 25% of Americans have diverticulosis, but most don't ever get diverticulitis; that of those who have one attack of diverticulitis, about 75% never have it again as long as they watch out not to eat nuts or seeds; and that if I had a second attack, the odds were that I would keep having them. Given that every time there's an infection, the walls thin more, increasing the odds of a perforation, he recommended that I watch what I eat, and that if I had another attack within a year, he would insist that I have the diseased portion of my colon removed.

About ten months later, on my first hysterversary, I had another infection - the pains felt identical. This time I went straight to the DR and they got me on Cipro and Flagyl immediately, and I only had to stay on for the ten days for it to work. However, my time was up... the gastroenterologist sent me to a surgeon to have the colectomy.

Once the infection had cleared, I had to do a very extensive bowel prep (preparation to hopefully avoid a colostomy). Then I had the surgery. I was in the hospital five days and had a vertical incision from breastbone to pubic bone. The surgeon told me that when he got in there, he had a shock. It turned out most of my colon was diseased - only about a foot or so was salvageable. He removed the corkscrew loop too. And, in the area where the bad pains had been, he found a mess. There were adhesions all over there, and under them, indications that the colon had indeed perforated during the first attack, and lucky for me, it had formed an abscess around itself. So, I had had a localized case of peritonitis. If I'd jostled it the wrong way, I could have ended up with peritonitis all though my abdomen. That also explained why it took a full month on antibiotics to stop the infection that first time.

All that happened two and a half years ago. I am just now starting to feel really good. I couldn't exercise at all for the first year after the surgery - it was a long, difficult recovery for me. But I can now eat all the nuts and seeds I want!

I hope this helps. Let us know what you find out, OK?
s,
-Linda
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  #4  
Unread 11-12-2005, 07:26 AM
Thanks Linda!

Hello Linda ~

Wow, you've been thru alot! And alot of it sounds familiar.

My doctor originally thought the infection was caused by diveritulitus. But b/c of my age 33, she thinks it may be something else. She said that this is something that usually happens in older (sorry, don't mean to offend you!) people b/c their colons have had more wear and tear. But I have always had a tough time w/ bms. And like you, not knowing any different, thought it was normal.

In reality I'm hoping it's anything but colitus. I work w/ a woman who has colitus and she's already telling me how I should be feeling and what I should be doing. She's one of those people who seems to have had every disease out there and still have a perfect attendance record! Urgh!

So my question is, after you got the colostomy were you able to go back to your job? We you able to perform all your tasks or were you put on light duty? I work at a grocery store in the produce department. There's alot of heavy lifting involved and I walk at least 4 miles a day. I'm guessing I won't be able to go back to this job for fear of putting to much pressure on the colon. I wouldn't mind a transfer out of there to a less physical job in the store. But I am worried that they won't let me go back there at all. There aren't alot of jobs in my area, I was lucky to get in there.

Thanks for the post! I will let you know what the specialist says. Although I'm seeing him on Tuesday, it's a 2-3 hour drive away from here, so we won't be back until Wednesday afternoon.

Ginger
  #5  
Unread 11-12-2005, 08:42 AM
diverticulitus? coloitus? chrons?

  Quote:
But b/c of my age 33, she thinks it may be something else. She said that this is something that usually happens in older (sorry, don't mean to offend you!) people b/c their colons have had more wear and tear.
No offense taken! I was told the same thing, and I was 46 at the time. It's much more common in people 60 and older. However, in my case, years of constipation (which I didn't realize I had because it was normal for me) put a lot of stress on my colon and weakened it prematurely. It happens.

I don't blame you for not wanting to have the same thing as your coworker. Who wants to hear that all day?

I wasn't working outside the home at the time of my colon surgery. I think if I had been, it would have been a very long time before I could have done any manual type work at all. Even desk work would have been tough before about 2 or 3 months post op, because it was very very uncomfortable to sit upright for a long time. I could do it now, however... but I wouldn't, because I had my hyst for prolapse and don't want to go back there again.

I hope you're able to get through this with a minimum of disruption... but I'd try to at least mentally prepare for the possibility that you might have to look at switching jobs, at least for a while, depending on what they find out.

s,
-Linda
  #6  
Unread 11-12-2005, 11:21 AM
diverticulitus? coloitus? chrons?

Thanks for all the support.

I've started nesting. Today I've cleaned, purged and rearranged my studio. I use it for just about everything. Beadwork (which I might try to turn into a paying gig, if needed) reading, Bible study, bill paying, watching tv, etc.

Next is the kitchen, living room and laundry room. I'm looking at all of it and thinking how bad will this be in 2-3 months if I can't get to it? DH will do the minimum, but not much more. He's got his own health issues to deal with.

I'm hoping for the best, but have started to think there is a possibility it could be the worst.

Thanks for your posts! I will keep you updated!

Ginger
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