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Painful painful painful!!  Ovarian cyst Painful painful painful!! Ovarian cyst

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  #1  
Unread 11-14-2005, 07:43 PM
Painful painful painful!! Ovarian cyst

Hi guys. I went to the ER late Sunday night with pelvic pain. I've had ovarian cysts before and I was feeling pretty certain that's what was wrong. The pain started Saturday and got worse as the day wore on, on Sunday. Then, I noticed I had to pee like every hour! So I looked up a little info on cysts and saw that if you are having frequent urination with a cyst you should go to the ER. So off I went. Got an ultrasound, my left ovary is 5.6 x 5.9 x 4.6 cm and I have a cyst inside that is 4.9 x 3.7 (they only gave two dimensions). The report does not specify what type of cyst, but it does say "color doppler reveals some flow within both ovaries." I was not able to reach my gyn today I'm hoping he'll be reachable tomorrow. Does anyone know what the significance of "some blood flow" is?

What types of cysts can arise inside the ovary? ie endometriomas, etc

If this cyst were to rupture, being that it's inside the uterus, would my ovary rupture too?

Any ideas on what can help the pain?? The ER doctor gave me pretty strong pain meds to take home and they aren't helping at all neither is heat

PS - What should I expect from my doctor tomorrow as far as good care? In other words, should this cyst be further investigated? I'm in a lot of pain and can't imagine living like this for even a week!

Thanks.
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  #2  
Unread 11-15-2005, 03:59 PM
Painful painful painful!! Ovarian cyst

Stucker:

A pain med that works for one patient might do nothing for another. Call your doctor's office and tell them it is not controlling the pain and ask for advice/help. No reasonable physician will want you to suffer and will thank you for keeping him/her informed. They don't know it isn't working if you don't tell.

I'm curious, what med are you taking and how often?

What should you expect in the way of care? A plan of action.

Ask:
What does he/she suggest now?
What is next?
What is after that, etc. It may be fair for the doctor to say "we'll cross that bridge if we get there" [in a nice tone, of course].

You should expect to have all your questions addressed patiently and to your satisfaction. (TIP: Write the questions down and take them with you).

All patients have a right to the most effective pain management possible. Your doctor should acknowledge your pain and help you to manage it in the most appropriate way for you (according to your preferences and what is realistic for you].

Best of luck. Please keep us posted. We do care!!

  #3  
Unread 11-15-2005, 08:05 PM
Painful painful painful!! Ovarian cyst

Hi, thanks for the info. They prescribed Percocet 10 mg. I was told it was the strongest thing they could give me. I got dilaudid (sp?) at the hospital and even that just took the edge off and only helped for an hour . I've suffered with pain for a long time and they alwasy say "there's nothing else we can give you." I'm thinking my only option is surgery. I've done Lupron, Depo Provera, birth control and the cysts still come back. The thing is, all the other cysts were either smaller or ruptured before they got as big as the one I have now. This is the only one that I truly feel I can't handle the pain, and it pressing on my bladder is sssuuuuccchhh a pain!!

Anyone know of any other treatments for ovarian cysts? Thanks!
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  #4  
Unread 11-16-2005, 09:30 AM
Painful painful painful!! Ovarian cyst

I don't know how to spell that med (dilaudid)either, but I know it did absolutely NOTHING for my sister after her c-section but make her throw up and it was supposed to be the BEST medicine available for pain control (not for her). Pain meds do not effect every one the same way. That doesn't mean something else will not work. Why not ask your doctor to switch you from percocet to something else equal (just different active ingredients)? It's not a question of stronger or more, just different.

Just something to ponder ...if your doc gives you the brick wall on pain management, how difficult will he/she be when it comes to hormone replacement, if you have to have your ovaries removed? Lots of women around here wish they'd noticed the warning signs of a not so compassionate doctor before the situation became out of hand. Maybe your doctor is really a great compassionate person and its just not coming across that way in your post to me. If that's the case, keep 'em. A doctor you trust is worth his/her weight in gold.

If you have a choice (and some do not), get another opinion.

and let us know how your appt goes!
  #5  
Unread 11-17-2005, 03:32 PM
Painful painful painful!! Ovarian cyst

Hey!
I am in the same boat as you are...don't be scared, i know exactly what you are going through...have you ever been diagnosed with endometriosis?
I have also been on Lupron, Depo, ortho evra patches, the list goes on!! the only thing that has worked for me since having my left ovary removed because of massive cysts is a new treatment called Depo Sub-Q. It is a shot you can give yourself in the stomach or leg every 8-12 weeks. This is the only method that has slowed down the endo so that cysts don't form on the ovary I have left. It has even helped with my cramps that normally left me immobile (and in the ER). Hang in there and write back!
Lots of love,
LeAnn
  #6  
Unread 11-17-2005, 06:24 PM
Painful painful painful!! Ovarian cyst

Wow thanks LeAnn! I will have to look up Depo Sub-Q!

I had my appt today. My doctor was rude at first. I gave him the ultrasound report and I said "I have a large cyst on my ovary" he looks at the report and says "it's not that big". So I said well I'm in a lot of pain. "In fact, the doctor gave me percocet and it's not helping at all." So he says "well I'm certainly not giving you any more percocet (like he thinks I'm a druggy or something!!" I said "I'm not asking for percocet. I'm asking for something that works!" No answer, he just says I need to examine you. He touches right on the ovary and I burst out in tears it hurts so bad. So now he's taking me seriously. He said it needs to come out, but due to it's size, he can't do it laproscopically so he wants me to see a specialist monday to see what he thinks and if he can do it via lap. I don't know if I can even make it to Monday much less wait after that for a surgery date. I have no meds to keep me comfortable! I hope the doctor Monday is a little more compassionate
  #7  
Unread 11-17-2005, 10:29 PM
Painful painful painful!! Ovarian cyst

I totally know, i had to switch doctors for that very same reason...this is what most people don't understand: the pain blows the word "cramps" right out of the water. The pain is the thing that makes you completely immoble. You can't even move, and it hurts to breath/talk/cough. Concerning surgery, he won't be able to take it out with a laproscopy if it is solid. If they can drain it first, then you are golden and the incision scars are very minimal. So, let's hope for the latter. Hang in there and let's chat soon!
  #8  
Unread 11-18-2005, 12:42 AM
Painful painful painful!! Ovarian cyst

Hey,

I know exactly how you feel. I was battling several ovarian cysts this past year, I was actually put on birth control (Ortho Evra) to keep them from forming, but they still formed and grew. However, mine liked to burst. My largest one was 5.0 x 5.0 x 4.1 cm (Aug 2005), at last measure, I was actually in the ER getting ready for an emergency removal, when it burst.

Here is some advice I have. If your obgyn or gyn isn't answering your questions, go else where. Find a second opinion. I know how bad these hurt. If you get extreme or sudden pain, you should go in to the ER, this is because the cyst may be twisting called torsion. This is very painful. I often found myself sitting around crying because it hurt so bad. Pain meds made me feel really sick, I was limited to morphine in the hospital, and tylenol with codine at home. I liked the codine because it helped me sleep. If one medicine isnt working for you, call the doctor and have him perscribe another, don't sit in pain. Warm showers helped me, or sitting in the bath tub. (hot water bottles) Try not to be too active, it can cause sudden pain and may burst. (As what my obgyn told me)

If the pain is so bad, they should have an alternative plan. As in an emergency removal. Make sure you are honest, if it hurts call. Don't wait it out, this shows your doctor you are really in pain, even if you have to call every hour.

The 'dark spots' may or may not mean anything. I had them in my last rupture in October, not the large one. And they just drew blood to check various levels. In my case it didn't mean anything.

There are many articles and information on the web, just by searching for ovarian cyst. They even describe the kinds. Let me know if you need help finding them.

In short, do what you can to make your self feel comfortable, get some answers (even if you have to go else where- when you call say you have a large cyst and you were in the ER- it gets their attention), and relax when you can. Be aggressive, let them know you will go else where if you need to.

I hope you feel better!
  #9  
Unread 11-18-2005, 08:36 PM
Painful painful painful!! Ovarian cyst

i guess im sorta in the same situation...i am 30..have 7 kids...i have had cysts since i was 16..horribe horribe periods the whole nine yards...1 months ago i ended up in the er with the most horrific pain possible...ct done..dx-a cyst on my left overy the size of 2 golf balls smashd together....went to my gyno(A WEEK LATER FOR THIS EMERGENCY APPT)...he did a pelvic ultra sound which actually showed a simple cyst the size of a egg on my right overy,and 2 complex cysts on my left overy...ive already had to have thermal choice balloon therapy due to hemoraging caused from fibroids(7 of them)...so,my gyno,sayd he knows im in extream pain,however,he dont believe in pain medication....he also dont believe in hysterectomies,and he also dont believe i could have cancer for the only reason that im 30!!he does however,have me scheduled for a lap procedure,and he beieves he said that i have severe endo,....i called another gyno,called yesterday,explained the situation,and told them im in severe pain 24/7,have 7 kids to take care of and dont know what to do..the doc called back and said...."I WANT YOU IN MY OFFICE MONDY MORNING"OH,YOUR ON MEDICAIDE??IT DONT MATTER,GET HERE MONDAY,I WILL HELP YOU!!!...so,im hoping this doctor will help me.......
  #10  
Unread 11-19-2005, 12:57 AM
Painful painful painful!! Ovarian cyst

You guys are so great!! Quakes99, thanks for all the info!!!

Soniek, I was horrified reading about your experience with the first doctor!!! What a horrible man to dismiss you like that and not even investigate cancer!!!! I'm so glad you called another doctor! Are you going this Monday or did you already go? I have my appt with the specialist Monday too.
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