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Any other fluffy sisters w/nerve pain? Any other fluffy sisters w/nerve pain?

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  #1  
Unread 12-01-2005, 05:16 PM
Any other fluffy sisters w/nerve pain?

The reason I ask this is I want to know if I am alone. My pm doctor (4 one I've had this year as they keep leaving this office for some reason only seen the first two 2x each the 3rd one 1x and the 4th one 2x) The 4th one has dismissed me as his patient. He said since the nerve blocks did not help it must be my weight.

When I called back Monday 10 days past my last nerve block I was greeted by the nurse saying we've talked about your case & we can no longer help you. We will not prescribe pain meds, but cause the doctor does not feel comfterble prescribing pain meds to treat pain. We feel that you should loose some weight & maybe your nerve pain will go away.

My nerve pain is in my lower left groin area & radiates down my leg and has started effecting my private area as well & buttacks on both sides. I have had eposotes were I fall. # 3 pm doc wanted to put in a spinal cord stimulater.

I've been told my the 3 prior PM doctors that my pain was more then likely caused by the endo & the 3 surgerys I've had, especially the last one with the inscisional problems. But even before my last surgery nerve damage was suspected my uro, gyn & family doctor. I had been going to the health club 3x per week until after my LAVH when the pain became to much. That's when the nerve intrapment was suggested.

Any others have doctors refuse to help you because your fluffy? I know I am over weight 5 foot 5 and weigh between 265 & 270 I would love to go back to the heath club, but the pain would just do me right in.

I have been at this weight since my periods stoped cause of PCOS (age 19), my whole metabolism just seemed to change.

How are my other sisters dealing with nerve pain?

Kim
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  #2  
Unread 12-01-2005, 05:22 PM
Any other fluffy sisters w/nerve pain?

Kim,
While I'm not fluffy, I do have nerve damage. The thing that has helped me the most has been accupuncture. She has also helped the problems with the numbness and tingling in my hands.

You say you've been told by 3 prior PMs that your problem is from endo and prior surgeries. Are they also not willing to help you? I've not heard of a PM doctor who won't prescribe anything to help with pain. That is what they do!

I hope you can find the help you need.
  #3  
Unread 12-01-2005, 05:37 PM
Any other fluffy sisters w/nerve pain?

Kim, acturally I have seen 5 pm doctors in the last year. #1 I can't see because we changed insurance's & he moved (he had me on topamax, wanted to do water theropy & pain meds when needed) #2 & #3 are husband & wife & they took their practise up to #1's office when he went out of state (they were doing nerve blocks & trying to get a special needle made to burn the nerve, but that ended up not being FDA approved). The guy that took over for #2 & #3 quit after one month and went back to chicago.(he wanted to try a spinal cord stim and prescribed utram) And the new guy said there is nothing he can do for me after doing two nerve blocks.

They said they dont prescribe pain meds. They have told DH this too, they said I need to see my family doctor for that. WHich my family doctor then says that's what he sent me to them for. Been down this road for the past year as the husband & wife did not prescribe anything either said they could not do so.

The doctor had given me a list of treatments that they do and they are all types of diffrent blocks. I think thats all they do.

I have an apt with a new family doc on 12/29. So I guess I just have to be tough.

Kim
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  #4  
Unread 12-01-2005, 07:59 PM
Any other fluffy sisters w/nerve pain?

Even without a PM doc, a GP can prescribe meds that help reduce nerve pain such as antidepressants(Cymbalta, Effexor, Elavil, Nortriptyline, etc.), anti-convulsants (Neurontin, Klonopin, Trileptal, Topomax, Tegretol) to help while waiting for a better PM doc.
  #5  
Unread 12-01-2005, 10:51 PM
Any other fluffy sisters w/nerve pain?

Hi Kim

I've been having undiagnosed abdominal and vaginal pains for a long time now. I had 2 lapros looking for causes. Nothing ever showed up. I just had a double back fusion a month ago. I have been having terrible pain which starts with a spasm. I had to go to the hospital in a life squad because it got so bad. I had a cat scan which showed nothing so I was sent home. a few days later I had a MRI and had a terrible pain, spasm episode when they put a pillow under my neck. I finished the test and the radiologist called my neurosurgeon who said he wanted me admitted to the hospital. I just got to my room when my dr. came in. He said he saw me mri and there was nothing wrong with the rods and screws, etc he had put in. There was no nerve damage, pinched or compressed nerves. He did a 2 area nerve decompression during my 8 hour surgery. He said he couldn't do anything for me at the hospital, so I was not admitted. He feels me pain is from a combination of anxiety, nerve roots misfiring and fibromyalgia. I have the symptoms. He said unfortunately there is no test to show misfiring nerves or fibromyalgia. He is weaning me off of valium and putting me on Neurontin. It is supposed to help with pain due to nerve problems. This is something you may want to explore.My dr. is very hopeful it will help me. I have these type of pains in my buttocks, lower back, thighs, knees sometimes, heal, foot. He said once my back gets better he wil refer me to a rhuematologist to help me with these issues.
I am hoping this med will help with the battle I've had with the abdominal pain.
Here is a site I've found about neurontin:http://home.tampabay.rr.com/lymecfs/nfaq.htm.
I think it is just terrible that ant pain dr. refuses to help you. They need to be fired!
I hope you get relief soon.
s Peggy
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