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10 months after total hysterectomy, bladder suspension, and cyst removal (large) 10 months after total hysterectomy, bladder suspension, and cyst removal (large)

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  #1  
Unread 12-04-2005, 07:50 PM
10 months after total hysterectomy, bladder suspension, and cyst removal (large)

I am still experiencing difficulty with back pain, and constipation. The doctors say now I have a prolapsed anus! I will begin biofeedback in the hope my pain will leave. I seem to have pain in the lower buttock leg area.

Any suggestions would be beneficial! Although I do feel great not having to contend with clots and heavy periods each month, I still cannot deal with the 14-inch vertical scar which is full of "keloids"... I know next year I need to see a plastic surgeon.. because, well, mentally I cannot bear looking at it. Then you add the horrible surgical experience I had at a local hospital!
Anyone wants to communicate with me I welcome your supportive words. <Oops! E-mail address removed from public Message Board for security reasons.>

Bless you all...
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  #2  
Unread 12-05-2005, 03:20 PM
10 months after total hysterectomy, bladder suspension, and cyst removal (large)

Hi I'm so sorry you're still having problems. It sounds like your DR is saying you have a rectocele - has he/she indicated whether or not surgery is an option if the biofeedback doesn't work? Have you consulted a colorectal specialist about this?

I'm also sorry you're dealing with a big keloid scar - I have had that experience, too. Not from my hyst, but a year later from colon surgery, I had a 12 inch vertical incision that formed one huge keloid. First the DRs had me try Vitamin E on it - felt good, but didn't do anything really. Then they had me try the scar sheets (there are several brands available now at major drugstores). They did help soften it a bit but not all that much, and it sure was an ordeal cutting and piecing them to cover the entire thing Plus, they are quite expensive. Then I was referred to a plastic surgeon, who prescribed Aldara cream. It's an off label use but works well for some keloids. It was REALLY expensive because it comes only in teeny packets and my scar was huge. It did significantly lighten and soften and flatten the scar, but it still bothered me a whole lot. I couldn't stand to look in the mirror every day. Then I tried this herbal scar paste which, surprisingly, did a better job... it didn't get rid of it but it did lighten and flatten it more. However, after I'd used it a while it started to irritate the skin too much and I had to stop. Next, I used Mederma. Went through several tubes of that. Now I use a scar gel from the health food store which has the same active ingredient as Mederma (onion, basically) plus aloe and Vitamin E. It keeps the skin there soft. Gradually, it is fading... plus I have been losing weight so now the scar is only 8 or 9 inches long instead of 12. And, since it's now been two and a half years, I'm adjusting to the way it looks, which isn't nearly as bad as it was the first year or so.

All this is my way of saying... hang in there. Go see the plastic surgeon. You may be told what I was, that scar revision surgery isn't really a good option, because if you formed a keloid the first time, chances are pretty good you'd form another one. I was also told my last option was cortisone injections into the scar, which can help, but do hurt quite a bit. I haven't opted to try them at this point and it's not likely that I will. Plus, my insurance won't cover them (considered cosmetic, grr).

Please don't give up... and do get referrals to specialists to help you deal with these two problems. I hope you'll find help and be able to put all this behind you soon.

s,
-Linda
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