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Doctor # 9's opinion Doctor # 9's opinion

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Unread 12-05-2005, 02:02 PM
Doctor # 9's opinion

Hi Sisters:
Well, Dr. #10 wants me to have a lap to remove suspected scar tissue. He also said I have so much scar tissue at the cuff that he can't believe I even have sex. He also feels (although he never came right out an said it) that I didn't need this surgery to begin with. He wants me to have a colonscopy before we go any further, as left sided pain that I had the TAH/BSO for is still there. I had been back to my GYN at least four times since my surgery, and all he said was "do sit-ups", never and ultrasound or anything. This Dr did an internal u/s and said he can "see" the scar tissue on the cuff, it is so dense. So Why didn't the other dr. say anything about this? Also, I told my GYN's office to fax everything to this new Dr. All they faxed was a one page thing listing dates of surgery and present pain problem. No surgical reports, no pathology reports, nothing. This new dr kept asking me "was it endo, was it cysts" etc. It really makes me think that my GYN is hiding something. So, after the colonscopy, and I'm insiting on a cystoscpy (sp) also, because no on is cutting me open again unless they know what they are going in for. Then he want's to do lap and remove scar tissue. I'm afraid of that causing more problems, as each surgery has done that, or was it just a poor surgeon? It is so hard to wrap by head around all this, and I keep blaming myself, because I always knew I didn't need this surgery, but I just believed that **** doctor and did it!!!! How do you forgive YOURSELF for allowing yourself to have this done, and not listening to your inner self?
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Unread 12-05-2005, 02:46 PM
Doctor # 9's opinion


You have been thru alot. I feel so bad for you. You said that the dr now thinks your pain is from scar tissue and was wanting to do surgery to remove it?

My experience is ...short version..I had a LSH and a started having pain about a year and a half later. US found cyst but wasnt where my pain was. Dr suggested explor surgery to see what the problem was. Had the surgery and he found scar tissue and removed it. I had other things going on so every little ache and pain made me a nervous wreck but SOOOOOOO glad i had the surgery and he removed it. Have been pain free from it since 4days or so post op. It was done laparoscopicly on a Wed and could of gone back to working by the Monday. Have any of the dr's suggested doing a exploratory surgery to see what is going on? I had never heard of this until my dr suggested it and now I am a firm believer of it. Yes it is a surgery. Mine was same day and I was home a hr after waking up in recovery.

My heart breaks everytime I hear about dr's that dont listen. I am so fortunate to have one that does. Keeping you in my thoughts.

Unread 12-05-2005, 04:12 PM
Doctor # 9's opinion

I'm sorry you are still in so much pain and struggling to find answers. I'm over six years post op and am in more pain now than I was before the hyst. Life is a constant struggle.

That is not to say that the hyst wasn't necessary. There really is no way to go back to truly know if it was or if it wasn't. About 4 years ago I had one doctor look thru my records and question the necessity of the hysterectomy. My immediate thoughts were that she had not seen me during the five years I struggled with female problems, she did not see my actual test results; only what was written. For her to make an assumption based on some words written on paper was and is not a proper diagnosis.

I also realize that I cannot go back, if I chose to dwell on the what ifs I would never be able to move forward and continue to seek answers for my current problems. The stress of questioning your decisions can also make your current problems worse. Stress has a powerful impact on pain. We made the decisions we had to make at the time.

Good luck with the new doctor. I will say a er that this is the one that will show you the path to wellness and painfree days and nights.

Many s
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Unread 12-05-2005, 11:09 PM
Doctor # 9's opinion

Your message is something that I could have written myself. I had a horrible pelvic surgical experience a few years ago and have been on a constant search to alleviate the pain and problems I now have.
I had the same feelings of anxiety for not listening to my inner self. The overwhelming feelings of quilt and regret were causing me a great deal of sadness until I started to tell myself that what the doctor did was not my fault I went into the surgery with complete trust in the Doctor and he let me down. He did not disclose everything that he should, he did not do the necessary testing that other doctors do and I have been physically hurt by his poor care. If I had been given all the information I needed to make an informed decision, I would have decided to not have the surgery.
We cannot blame ourselves when it is not our fault.
I now try to look at the experience as just a terrible misfortune, like being injured in a car accident that wasn't your fault.
It has made it all a bit easier once I stopped blaming myself so much.
Take care and I wish you all the best in finding answers.
Unread 12-06-2005, 03:51 AM
thank you

Thank you so much for responding. I know I need to get over the "blame" thing and move past it, put when this surgery affects every part of your life, from sleeping to sex, emotions (just gone), it is very hard. Have they found any reason for your pain? At least this new guy didn't make me feel like a nut case like some of them do. He knows there is a reason for my pain, but BEFORE he goes in there, he wants to make sure that he is going in for the right reasons. There is a reason we all still have pain. And doctors need to take it seriously.
Unread 12-06-2005, 10:11 AM
Doctor # 9's opinion

Hello Whatsnormal!

This is AWESOME... a doctor who is validating your symptoms, and showing compassion. At least, it reads that way! Hip, Hip, hooray!!!

If it were me, I'd go to the hospital and request that the reports (surgical, lab, etc) be sent to this doctor and schedule a consult after this doc has had a chance to review everything. Take in a list of all your questions and make sure they are answered before you schedule surgery.

Keep us posted. #10 might be the keeper!!!!

Unread 12-08-2005, 08:27 PM
Doctor # 9's opinion

I too have a lot of guilt, about my hyst, only had a prolapsed urterus, and a little back pain. It has been
5 yrs and nothing but misery. I have just about had to
give up my sex life, and I can live with that for myself, but
it is my husband I feel for, it has changed so much of
my life. I have to take pain meds everyday for my pelvic pain, and I am sure it is adhesions. First thing in
the a.m. after a bm the pain starts and goes all day.
After I have a couple of meals in me sometimes it is
better, when the bowel position changes in there, even
when I urinate I start to have pain, anytime anything
moves in there, the pain is worse.
Thank goodness you found a Dr. that is interested in
helping you! They are rare as hen's teeth. Seriously
that is a big plus. I haven't found one yet. Good luck
to you, I know your pain.
Unread 12-09-2005, 05:12 AM

hi slt,
have you had a colonscopy & cystoscopy (looking inthe bladder)? That is what I have to have done, have consult set up for Jan. with GI & uro. I see you had adhesions surgery, that is what this new guy wants to do after these tests, if they come out OK. Did the adhesions surgery make things worse? That is my main concern. And I don't want him to "fix" my vagina, as I can have sex. It is not much "fun", and there is no desire on my part, but my husband "needs" it, and he is very good about it, maybe once a month. If it was hurting me, he wouldn't insist, I'm sure. He just makes sure to be very gentle, and quick!
Unread 12-09-2005, 09:40 AM
Doctor # 9's opinion

I had continued to have pain after my hyst, felt like it
was at the cuff, my Dr. just thought I was whining I think, but anyway he did an exploratory, did find some
adhesions, and the artery to the ovaries was still vital
and he thought that might be part of my pain so he cauterized that, but I
still had pain and the feeling like something was stuck
up thru me, the feeling of a baby's head in my vagina,
which continued to get worse and worse. My Dr.s
response was "I'm all out of tricks" so I continued to suffer. Thought well maybe if I get a good general
surgeon he can go in there a clean things up, or find
what the problem is. He did a colonoscopy, and when
he got in about 3 ft. there was a kink, gave me something, a hormone, to relax the colon which was
kinked from an adhesion. He found no other problems
with my intestines, but there was the adhesions causing
the kink. I had surgery, and he took down every adhesion, in by inch. Well I felt better until my bowels
filled back (emptied by colon prep for surgery) then I
started having the pressure in the pelvic area (baby's head) I was so discouraged! What is going on? I continued my search, finally found a Pelvic Floor specialist ( of my insurance net-work) saw him, and he
found the problem immediately, enterocele. So I had
2 surgeries and that was not found, go figure. Well I
had the repair for that, good bit of cutting and sewing
and was done by laser, and he is suppose to be a great
surgeon. Well the pressure in the vagina was gone but
I am still left with a lot of pelvic pain, and pressure in
my rectum, which he said I didn't have a rectocele, so
I don't know. But when I empty my bowels or urinate
the pain starts, so I am thinking the adhesions are pulling when things change in there. But I am miserable most of the time, one way or the other, if
I don't have a good bm, I am uncomfortable, but if I
do I am in mucho pain all day long. Recently I have had
a bladder infection, and after sex my Urethra throbs
terribly about 12 hrs later, infection after sex? I don't
know, but this week I had a culture done, nothing growing. I have a cystoscope sched. Mon the 12th.
That was done over a yr. ago when my repair was done
and was said no problem there. So there is my story.
Pelvic problems can be so difficult to diagnose, and with
the medical field being so glazed over, makes it even
Unread 12-25-2005, 10:30 PM
Doctor # 9's opinion

I totally know what you are going through. I have been to so many docs and have basically been told I didn't REALLY need the hyster. I had blood drawn last week and saw my DR again and he said everything came up normal. I said I still don't feel normal, something is still worng I feel ill all the time. He said stress and anxiety and I'll give you antidepressants. I said, no I don't need that. He said well then I can't help you anymore. I said I think the Thyroid range is off from the research I've done. He said Us docs can only do so much go se an Endo specialists. So I will. I hope you can find what you need and feel better. Why can't docs listen to us????

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