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Doctor # 9's opinion Doctor # 9's opinion

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Unread 12-26-2005, 08:37 PM
Doctor # 9's opinion


How do you forgive yourself for having a hyst that you didn't really need?

I've been struggling with that same issue myself for over a year now. I had a doc whose judgment seemed to be impaired by his excitement over the new Da Vinci robot we had at our hospital. He said I had a complex cyst and needed an oophorectomy. I'd had fibroids for years, but they were asymptomatic. This doc said that the fibroids were distorting my uterus so much that we might as well just take that too, while we were in there. I had chronic back pain which was becoming severe at the time, and also, I'd begun to bleed pretty much around my cycle, but it was very light and more of a bother than anything else. I asked if the hyst might relieve my back pain and he said that it was possible.

Also, just one year earlier, I'd had severe dysplasia/carcinoma in situ (pre-invasive cancer) on my cervix. This doc talked me into keeping my cervix! He would not have been able to use the robot if we'd done a LAVH.

My gut was pretty much screaming at me that this whole thing was going too quickly. I really didn't want my cervix, because it was about as high risk as it could be! I trusted him, though. I've had all kinds of nasty fallout due to this hyst, which I won't go into here, but... (BTW, he's misdiagnosed the cyst--it was a normal one which had ruptured and resolved before the surgery. I never would have considered the hyst in the first place if I weren't having surgery anyway).

You forgive yourself by realizing that you did the best that you could at the time. You didn't know that there was a reason not to trust this doc. I'd never had surgery before, except for a c-section, and I really had no idea what the ramifications could be.

Now I do. You and I (and many others!) have learned a lesson the hard way. It's not fair, but few things are, right? I've learned so much from my experience that I can't even relate to the person I was before the day that doc said I had to have my ovary out sooner rather than later. I will never let anxiety get to me like that again, unless it's a life or death situation. And, I'm sure you won't either.

I also encourage others strongly to get second and third opinions whenever I can. If others can learn from our mistakes, then we are providing a pretty great service.

I'm so sorry that all this has happened to you. It doesn't help to blame yourself. Would you blame someone else for doing the same?

Be good to yourself, and good luck with your next round .

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Unread 01-02-2006, 12:16 PM
Doctor # 9's opinion

Whatsnormal, I think this thread is so important it should be moved over to the Hyster/decisions side of the board. I too had an unecessary hysterectomy & suffered a serious complication. I beat myself up pretty bad also for trusting my doctor and not seeking multiple opinions on the strongly recommended surgery. I also shut out my inner voice! I think my doctor was a very good saleswoman for the surgery. I have come to the conclusion (and I don't know why I couldn't see it before) that hysterectomies are most likely the bread and butter of the modern gyn practice. So we are guilty of being susceptible to fear and sales tactics. This is not a high crime. Only proves we are fully human.

Recognize that you are human and as such are prone to making mistakes. It is very humiliating and humbling to find oneself in this position. My lesson was a very hard lesson learned and I concur with the others who have had this type of conciousness raising experience, get multiple opinions before allowing anyone to cut. Find out what all the possible risks are, take them seriously and minimize them by choosing conservative treatments first. You can always step up to the next level of treatment if the less invasive one fails.

Healing is a very slow process. I lost the ability to tell how full my bladder was after surgery. This is a weird complication. Lucky for me I seem to know when something is there but between 1 oz and 16 oz I couldn't tell you! I just go alot to take care of it. And at least I seem to be able to hold a full bladder! My addomen has been totally numb over my bladder up to just very recently, some of the nerves seem to be growing back, Yippee! I am hopefull that over the next few years this will continue to improve.
Unread 01-07-2006, 06:02 AM
Doctor #11 visit

Hi Sisters,
Well,, Doctor #11 (uro) "scoped" the bladder yesterday. I am VERY relieved and grateful that my bladder is "pink & Healthy"! He even got it up into the urehta (sp) tube and found the urine running right. Since so much of my pain seems to be right over the bladder, and I have micro blood in urine, I was scared. This is the problem, I am always scared, because this constant pain is NOT normal. Friday I have a colonscopy scheduled and if that comes back fine, then it has got to be adhesions doing this. I have an appt for 2/1/06 with the pelvic pain specialist to go over all the results. I have resigned myself to the fact that I will have to have a lap done. All these problems started with a lap 3 years ago, so I'm not looking forward to that. But one doctor said to me that not all doctors are "good" at laps, but they don't want to be left out, so the "jump on the band-wagon" and do them because that is what women want. He said if the doctor has the skills, and they need good skills to preform one without damage, they could work. So I pray this specialist has these skills.
Just wanted to up-date you all.
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Unread 01-11-2006, 07:20 PM
Doctor # 9's opinion

Dear Whatsnormal and others, I felt like I was reading my very own words when I read your post. I just had a test for IC today which came back negative. I have been suffering with post hyst (bleeding fibroids) pain for 4 years. My pain is directly over the incision site which is also over my bladder. I cannot sit or drive without terrible pain. I was totally convinced that I had Interstitial Cystitis and had already started changing my lifestyle. Now, I am back to square one. I get so tired of waiting 6 weeks between doctors visits. I have had a normal pelvic MRI & CT scan. Have not had a lap. I had a DVT in my ovarian vein with my hysterectomy so doctors prefer to avoid surgeries. I'm beginning to think adhesions are about the only possibility left???? I am so grateful for this helps know others understand.
Unread 01-13-2006, 04:26 PM

Hi sisters,
Well the colonoscopy came back fine. So, by process of elimination, it must be adhesions, right? There is nothing left down there! No ovaries, uterus, no HRT, inside of bladder fine, intestines fine. So why do I hurt? And why does my tailbone ache????? All this because of an ovarian cyst. Believe me, I would take the cyst pain back anyday!!!! Just thought I'd catch you up!
Unread 01-13-2006, 10:18 PM
Doctor # 9's opinion

I have pain all the time and I am 5yrs post op Jan 11th was just diag. with Fibromalgia. Not fun. No cure. Mostly lifestyle changes and whsi the winter and bad weather away, but i have pain all year long. Migrains, back aches,daily nausea, carpal tunnel pain, swelling of feet and hands. Stomach aches everyday. Basically this is what you have... See you!!! I hope you can find out what is going on..
Prayers and Luck.
Unread 01-14-2006, 05:19 AM
Doctor # 9's opinion

Hi Ladies:

My god we are all in the same boat without a paddle (that is how I feel at times)...

I've had cramps and pain for one year this month...No doctor can figure it out...Finally had a "LAP" done last week, they found one adh, and very little scar tissue, said that is not causing the problem...

I'm had every test done, ct, ultersound, mri, scopes (both ways), you name it I've had it...They know its something but can't find it, my blood count is also up 14,700 (white count)...

My wish the the new year was to be pain free, so far no luck...

I will pray for us all
Unread 01-15-2006, 03:09 PM
Doctor # 9's opinion

Shireen, It has been almost 5 yrs since my hyst and
it has been nothing but pain since then. I also have
most of the symptoms of Fibromyalgia, and chronic
fatigue syndrome so that may be a part of all this,
but I didn't have this pelvic pain until after my hyst.
Unread 02-04-2006, 11:39 AM
latest opinion

Hi Sisters,
Well, after a month from [email protected]@, went back to doctor #9, after proof that it wasn't my colon or bladder causing this constant pain. So he does a trigger point injection directly into the scar. Pain was so bad, I fainted! Took 45 minutes for me to come around enough for my vitals to return to normal. NOW, he wants to do a lap to remove "suspected" scar tissue and a "suspected" hernia. All my problems started with a lap three years ago, and I am afraid that this will just make matters worse! I asked him "what if the adhesions grow back" and his response was, "well, if they do, they do!" What kind of response is that? What kind of faith am I supposed to have in him or this surgery? The day after the trigger point, the entire incision was spasming real bad. I don't know which way to turn at this point. I also told him of the constant tail bone pressure I have and he said not his problem, see an ortho guy! Just great, add another specialist to the list??!!! I NEVER had any problems until I let myself be talked into this surgery. Now, I feel like I'm 100 years old. Don't know how much more, mentally or physically I can handle. My 77 year old mom is more active than I am! It is all I can do to work mon-fri, then it's home to the heating pad. Don't know if I should put it on my belly or butt, can't tell which hurts more. Now where do I turn?????
Unread 02-04-2006, 11:49 AM
Doctor # 9's opinion

I had to look back & see if I had sent your post! My symptoms and experiences with physicians are almost identical. After tests, waiting, more tests, I am back to square one. Last night I was so "down" about this situation that I started thinking maybe I DO neet to see a psychologist! Where can we go????Is this American medicine?#*#@*#!!!

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