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First post-TVHBSO on 1-4-06 First post-TVHBSO on 1-4-06

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  #1  
Unread 12-25-2005, 02:20 PM
First post-TVHBSO on 1-4-06

I was just told about this site by a friend at work, and have been reading a lot of the posts. I have not found much information listed on the reasons why I am having surgery....?

I turned 50 this summer, became post-menopausal 3 years ago (or so I thought...) as did my mother at an early age. The last year I had periods were very scanty and was on birth control pills to help perimenopausal symptoms. My GYN then switched me to FemHRT and I never bled or spotted again at any time for 3 years. This summer I decided my symptoms were not bothering me much as decided to stop HRT and did so with success....still some hot flashes and night sweats but not so bad and nothing like I had experienced in the last 4-5 years.

Two months later I had some spotting. Vaginal Ultrasound done which showed a small fibroid and nothing else, uterine lining was thin. In apx 20 days I was bleeding as if it was a period in my 20's (my husband had to run to get pads and tampons since I had nothing!) Again a ultrasound with no new results. Since then, every apx 20-25 days I have a "period" that is similar to when I was young. I had a D&C which showed nothing abnormal. My GYN says post-menopausal bleeding is very concerning and says "periods" don't start up again and can't explain why I bleed every apx 20 days or so. She questioned if I really had menopausal symptoms those past years saying maybe I was put on HRT too early, but NO DOUBT (my husband was shaking his head yes when she asked if I had hot flashes, and other symptoms)...GYN also said that if I was not menopausal I would have had break through bleeding as my own body's hormones would have over-ridden the HRT since it was so low. I am just confused and don't understand what is going on at all. After 2 other opinons with GYN's I have decided to have the surgery. The other doctors offered other possible options that could delay a Hysterectomy (Ablation) but all said if I am truly "post-menopausal" they symptoms are concerning and the hysterectomy is a viable option. So...now I sit and wonder if all the years of night sweats, mood swings, hot flashes, and feeling like I was going nuts was/or was not really menopause and why am I having "periods" (or whatever they are) now?? I read how everyone feels so much better after the surgery...but I don't feel bad now, except I have to anticpate bleeding every month again after 3 years of not having to worry about it.

My GYN will take both my ovaries if it is possible during the TVH...she left it up to me. After talking to friends my age and older who had hysterectomies younger, they tell me they wish they had taken the ovaries (saying they arent' using them now and they wished they didn't have to worry about ovarian cancer), the my GYN will do so if it is possible during the procedure.

Does my story make sense to anyone out there? My GYN is one of the best in the state and has a top-notch reputation so I have decided to put my trust in her opinon. (I made the decision to do the surgery in Oct, but delayed until Jan 4 because my son was getting married in Nov. and I didn't want to be feeling unwell over Christmas.)

I am curious if anyone else has had a similar history? Thanks for any help. I am at the stage that I just want this over with!

GDCM
TVHBSO scheduled on 1-4-06 for Post-Menop bleeding
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  #2  
Unread 12-26-2005, 10:17 AM
First post-TVHBSO on 1-4-06

GDCM,

I began HRT a few years back due to peri-menopausal symptoms--extreme fatigue and insomnia. The HRT worked like a charm. Started out on Prempro and then switched to FmHrt.

Following an endometrial biopsy, my gyn diagnosed me as being post-menopausal.

After discussions with my gyn, we decided to have me go off the FmHrt. That's when the fun began!! I started having what I thought were monthly periods but the dr thought was breakout bleeding.

Have had three vaginal ultrasounds, the last one showing that my fibroids had increased and were growing at a rather fast rate. One of the firbroids was in my uterine lining.

This past year the bleeding has been awful. I've also experienced a lot of abdominal pain over the past few years. I tried a medical D &C (using drugs). Ugh!!

Finally did a blood test in September--turns out I was NOT in menopause yet! Did you have a blood test to check?

My doctor explained my options to me--I could have an ablation but it may not solve the problem (because of the location and amount of fibroids I had) or a hysterectomy. I opted for the hysterectomy; I did not want to end up having multiple surgeries.

Turns out I also had endo, an ovarian cyst and one of my ovaries was adhered to my bowel. I have no regrets on having the hyster. I'm feeling much better than before the surgery--even factoring in the recovery period.

FYI--I turned 53 this month. I began using the Climara patch (0.05 mg) the day after my surgery. No menopausal symptoms at all. Had a bikini cut with dissolving sutures.

My first post-op dr appt. is on 12/28. I took 6 weeks off from work and at this point will not return until 1/17.

If there is anything else you need to know, feel free to ask.

Good luck to you! Don't know what I would have done without this website. It's awesome!!

s

Judy
  #3  
Unread 12-26-2005, 05:57 PM
First post-TVHBSO on 1-4-06

Thanks so much Judy for your quick reply. I am still trying to figure out how this posting process works...so I hope this goes out okay.

I had blood work to test my FSH levels about 3 years ago when I was still on the pill (not for birthcontrol, but to help allevate my perimenopause symptoms) and it came back at ZERO. I never quite understood why, but my dr then switched me to FemHRT and did some more blood work. When on the pill, I had not much of a period but only very minimal spotting each month for a year...then with HRT all the time nothing at all happened for the 3 years I mentioned earlier. After my recent appt with the Dr. when she said maybe I wasn't really post-menopausal, I bought the drug store test and the results were blank with only the "test stripe" showing. I called the help number on the box and they kept telling me some light stripe should at least show and I kept saying it was plain white, held it under the light and also had my DH look at it too...nothing. Called my Dr. They did the blood work test and my FSH came back at a "2"..I was told this was very low and just lower than what is considered the low end of normal. Still don't know the answer to why..but my Dr said it didn't change her opinion that I had to have the surgery. So...still confused, I sure know that in the past I had horrible hot flashes and night sweats, insomnia, couldn't think straight, very moody, worse than any PMS I had every known...to not be in the midst of menopause! Over the last year, it begin to get better...which is why I went off the HRT. It just doesn't make sense to me, but seems the surgery is the way to go.

By the way, we used to live in PA (Kennett Square) for five years; my son and his wife live in Pittsburgh (he attended IUP.)

Thanks again so much for your thoughts and suggestions. I appreciate any and all info about similar a history. My situation seems so different from most of what I am reading. I think the waiting for the surgery will probably be worse than the surgery.
I hope you had a wonderful holiday!

Gretchen
(I will have to figure out how to use those cute animated characters in future posts...not sure how you do it!)
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  #4  
Unread 12-26-2005, 06:18 PM
First post-TVHBSO on 1-4-06

Gretchen,

The waiting is most definitely the worst part!
All the HysterSisters seem to feel that way. The anticipation is worse than the reality.

I have had a very easy recovery. Hardly needed any pain meds. Was in the hospital from Thursday a.m. (surgery) until supper time on Saturday. I've really tried to be a good . Just remember to take care of yourself when you get home. Listen to the doctor!!

My only problem was gas pain after the surgery. Still having some of that but it's much better.

I'll be thinking of you on January 4th. Keep me posted on how you're doing and how the surgery goes.

I live northwest of Kennett Square. I've been to Pittsburgh many times. Love it there.

& s.

Judy
P.S. To add the "smilies" just click on them. To get the whole list, click on "more" to the right of the box where you type your reply (using Post Reply, not Post Quick Reply).
  #5  
Unread 12-26-2005, 06:24 PM
First post-TVHBSO on 1-4-06

Thank you, I am sure all will go well...just very nervous about the whole thing. My sister had a VH in 1987 with a very poor outcome so I am very, very nervous...even though I know I should not be.

Thanks for the tips about using the smiley faces! I really am trying to get this figured out.



Gretchen
  #6  
Unread 12-26-2005, 06:56 PM
First post-TVHBSO on 1-4-06

Hi GDCM!
I also turned 50 this year. Had a TVH/BSO six months ago. It was the best decision I ever made! Had fibroids,endo,severe bleeding. Recovery was pretty easy, Had surgery on a Wed morning, I was home for lunch the next day, no appetite, just a little jello. You will find a wonderful group of supportive women on this website. Truly amazing! Do everything your Dr. tells you and lots of rest. Wish you the best of luck! Keep us posted. Love and Hugs!
  #7  
Unread 12-27-2005, 07:14 PM
First post-TVHBSO on 1-4-06

Thank you, Emmaleeann! This site has been a blessing. One more week to go and I am sooo ready to get this over with and move on.
  #8  
Unread 01-08-2006, 09:26 AM
Hysterectomy

I read your postop experience and would like to hear about your experience with epidural/spinal anesthesia. I am planned to have TAH this week with epidural/spinal and am REALLY scared.

Janet42
  #9  
Unread 01-08-2006, 08:43 PM
First post-TVHBSO on 1-4-06

Janet,
I was actually scared about the general anesthesia and being intubated as well as being neuseated afterwards (I have a tendancy to be sick to my stomach with narcotics, etc.) All of the past outpatient procedures I have had, were using a spinal.

They are less risky (especially for someone like me, with asthma...and also for a patient that gets sick to her stomach easily. You are not intubated, but heavily sedated so you don't know anything that is going on, plus they use a drug for retrograde amnesia so I don't recall anything but being wheeled into the OR and getting on the table...then I woke up in Recovery.

You have not feeling and can't move from your waste down for about an hour after you wake up, but it was no big deal to me.....there was certainly no pain during this time. (I had all 3 of my children the same way back in the late 70's...it was called a saddleblock then.) It is my preferred method of anesthesia and I will always request it in the future, and have fought to have it done this way in the past. Most surgeons want patients to have general anesthesia so the patient is totally out of it and they don't have to deal with them (the Anesthesiologist told me the same thing) where with a spinal a patient may still talk a bit or move around the upper half of their body if they come out of sedation a bit. But, as I said......I don't recall any of it if I did. They just make sure they keep you in twilight sleep as long as necessary. You still will wear an oxygen mask, and have all the heart monitors, etc...but no intubation and less risk of getting sick, and less risk all together. Any time the surgery is below the waist, it is an option available to patients.

I hope I have helped. Let me know if you have any other questions that I haven't answered.
  #10  
Unread 02-06-2006, 06:59 AM
Spinal/epidural

GDCM,

I just found your reply on spinal/epidural that you wrote back. I am having to search like crazy to find any doc or Anesthesiologist who is willing to perform my TVH/BSO this way. It is driving me crazy! I too had spinals with my two children in 1984 & 1990. I will keep on trying to find a good doc and A who is willing to at least try this for me. I know a lot of people who have had much more done surgically than I need and they have had spinal/epidural with Versed and it was successful. I think it may be the part of the country that I live in. Maybe they just aren't as "keen" on the idea as other places are. I guess if all else fails I will have to find a doc who is in another location that it comfortable performing hysterectomies this way. Thanks so much for replying back to me. This is very encouraging. I will let you know when I FINALLY get it scheduled with someone. Glad your doing so well!

Janet
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