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Has anyone else had their ureter tied off and lost the kidney as a result? Has anyone else had their ureter tied off and lost the kidney as a result?

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  #1  
Unread 01-04-2006, 01:08 PM
Has anyone else had their ureter tied off and lost the kidney as a result?

After continuing pelvic pain and other issues post hyst, while having a CT scan done for a completely unrelated issue, it was found that my right ureter was blocked and a renogram showed that the kidney was no longer functioning. Three weeks ago today, I had it removed laparoscopically.
I fully understand that complications and errors can happen, but many doctors have told me that it is common for this to happen. I just don't know how they missed it, when the symptoms of elevated BP, high creatinine levels, protein levels, etc. presented themselves less than one month after surgery. Now that the kidney is out, my BP is back to normal and many other things I was experiencing have magically vanished...
I guess I didn't actually feel the pain of it at first because I had just had major surgery and was in serious pain anyway! Just wondering if there are any others who have gone through this nightmare or if it's just me.
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  #2  
Unread 01-05-2006, 09:53 AM
Has anyone else had their ureter tied off and lost the kidney as a result?

Hi There,
I wonder if you could tell me your symptoms? I'm having a lot of pain around my left kidney/flank area and there has been blood in my urine for the past few weeks. My GP is sending me to a urologist for testing. Did anything specific stand out when you look back at your symptoms?
  #3  
Unread 01-05-2006, 10:26 AM
Symptoms

My symptoms from my ureter being tied off were: elevated blood pressure, elevated levels of stuff only checked in blood and urine (creatinine/bun/protein). More long term issues. I didn't have blood except when I actually passed a stone a few months after my hyst.

Now that the kidney is out and my body is re-adjusting to not having the adrenaline gland constantly irritated, I'm off of the following and have lost almost 30 pounds:
bp meds
acid reflux meds
vitamins (can't have the extra calcium)
caffeine (accounts for the lost weight too, 3 cups with cream and sugar daily really add up!!)
AND I'm not hot all the time anymore!!! That was a major issue that I can only assume was associated with this issue since now all of a sudden I seem to be fine.

Your symptoms sound like classic kidney stone symptoms. Flank pain/blood in urine... ugh! Been there, done that - and will be going back again, I'm sure! (I've had stones for almost 20 years now...) Bottom line - get to a urologist asap!! If you've never experienced kidney stone pain, you do not want to be without pain meds. Your doc should have at least done a KUB (really just an x-ray) to look and see if there is obviously a stone. Sometimes they are too small to be detected with just the x-ray. They will really be able to get a good look with a contrast dye CT scan or an IVP (intraveneous pyelogram - but that's now considered old fashioned) If the blood has been present for weeks, then you absolutely need to get to a specialist. What happened to me (acute then chronic hydronephrosis leading to the kidney dying and having to be removed) can also occur naturally by a stone sitting in the ureter for too long. And "too long" can mean weeks in some cases. I was always advised to drink plenty of water and lemonade, stay away from caffeine and tea. I have found over the years that drinking water through a straw is the quickest way to "down" it without getting too sick of it. And if you do get the contrast dye CT, go with the berry flavored stuff and only - only - use a straw!! It's improved over the years, but nothing can mask the chalky taste completely!

And of course, I'm not a doctor, but with 20 years of kidney stone issues under my belt I feel like I can at least pass on my experiences. Only a urologist and a nephrologist will truly be able to sort it out for you.

Take care and keep us updated!
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  #4  
Unread 01-05-2006, 01:59 PM
Has anyone else had their ureter tied off and lost the kidney as a result?

Hello:

Glad you are feeling GOOD AGAIN...

Quick question...I have 2 cysts on my kidney (they cause me no problems) they are called simple cysts...However I'm always HOT like I'm burning up with a fever but I don't have one...Is that how you felt...

Thanks
Julie
  #5  
Unread 01-05-2006, 02:39 PM
Has anyone else had their ureter tied off and lost the kidney as a result?

((diohall))

I am so sorry this happened to you. Come to think of it, this was on my doc's laundry list of possible complications. Haven't seen it around here before.

Glad you are feeling better. Isn't it awesome to have your health back after feeling bad for so long? Is for me
  #6  
Unread 01-05-2006, 04:13 PM
Possibly and yes, but...

Hello ((jujuju and michelle35))

((jujuju)) The constant issue of feeling hot all the time could be anything, but if your cysts are aggravating your adrenaline gland, then it sounds likely to me. Of course, I'm not a doctor, but sometimes I sure feel like one!! I know we all do, since we become experts in our particular areas of trouble. You didn't mention if you were on HRT. I was on 2mg. estradiol orally and my new gyn switched me to the vivelle dot patch and estrasorb cream and that helped tremendously. It's just that now that the kidney is out, not only am I not hot all the time, I'm actually cold all the time!! Argh... at any rate, I can relate totally. When I was working, after going through the whole process of getting ready, I would need another shower from working up such a sweat just moving around!! Another cause I've heard about is rare, but may be related to your thyroid. The aspect of being hot all the time is related to things like unexplained weight loss. I did feel as though I had a fever as well. I kept taking my temperature over and over and I found out that I have a regular temp. lower than normal, so even normal would be high for me. I know your frustration, though. I never realized just how sensitive and intricate our systems are. One thing gets out of whack and everything else follows! I'd definitely talk to your urologist about that possibility, though.

((Michelle35)) Actually I was just thinking exactly your sentiments this morning! Now that relief seems to be in sight, I'm not as insanely angry about what happened to me, just thankful that maybe I'll get to have a normal life someday!!
  #7  
Unread 01-05-2006, 09:38 PM
Has anyone else had their ureter tied off and lost the kidney as a result?

Hi, sorry you had to lose a kidney. My Dad had one removed 20 years ago and has done well, thank God.
Fear of losing a kidney is one big reason I had a hyst. Occasional blood in urine, no infection, burning--exray to find stone showed a fibroid. I read on the net that
the only danger of having fibroids was that they could lay on the ureter and kill the kidney. Yikes!
Wonder if this was going on with you before your hyst??
How did you do with kidney removal surgery?
  #8  
Unread 01-06-2006, 04:05 AM
Has anyone else had their ureter tied off and lost the kidney as a result?

Hi:

Yes I'm on HRT Vivelle DOT....I see my doctor this month and will ask alot of questions...Like you I always take my temp, NORMAL or below NORMAL....I hate the HOT feeling...

Glad you are doing so well...

Julie
  #9  
Unread 01-06-2006, 01:46 PM
Lost kidney

Hello ((stardancer and jujuju))
((stardancer)) I don't know about the fibroid situation - do you mean uterine or one literally on the ureter? I've had so many tests and none have shown anything like that. So far my doctors all agree that it was tied off during my hyst. I am doing really well so far with the kidney removal. I had it done laparoscopically on Dec. 14 and am just working on healing now!

((jujuju)) I would request a consult with a urologist to go over all of your other panels. They can see if some things are elevated or what then go from there. Or, maybe you just aren't on a high enough level of estrogen? The always hot feeling is so rare. I searched on here for a long time and always found that if people had temp trouble it seemed to be they were cold and not hot. My gyn was stumped and did a thyroid test, but only one type and when this came back normal, she just gave up - oh well!! So that's when I gave up on her. Oh well! Just don't give up. Insist that you get the best care. If you have to go to another doctor, ask the person who answers the phones their opinion and listen for what they both say and DON'T say! I grilled several people and was fortunate to get a great gyn, then we relocated -

Be well ladies, we'll all get through this!!
  #10  
Unread 01-19-2006, 09:28 PM
Has anyone else had their ureter tied off and lost the kidney as a result?

Hi, was speaking of common uterine fibroid
possibly laying on the uterer.
How did your docs manage to "tie off" the uterer??
/Sounds like sabotage!
Leigh
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