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Fibroids--how large is "large"?, and other ?s Fibroids--how large is "large"?, and other ?s

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  #1  
Unread 04-17-2001, 04:48 PM
Fibroids--how large is "large"?, and other ?s

I had several tests today, trying to get info Dr. needs to decide what to do with me...

The ultra sound tech said that my fibroid was approx. 2 inches. I've heard and read about much larger ones.

I'm also having a hysteroscopy and endometrial biopsy on Friday, 4/20.

Have had very heavy bleeding with clots for a very long time. This doesn't happen with each period, but it does seem that each time it happens, it so much heavier, and clottier. I haven't had cramps since I first started having periods, but am having them again now.

I have bled so much twice that I became anemic and needed to take iron. It happened a year or two apart.

When it happened this last time, my gyn told me that I'd need to "work through it". Good grief...3 weeks later, I finally felt like I had enough energy to go back to work (1st grade teachers need lots of energy!!), plus I found a more understanding gyn (family doctor recommended). I'm not one to lay around or slack off...but my energy level was so low.

I've realized that I've had heavier periods with clots, and at least 1 or 2 (sometimes more) a year that were "never-ending", for the last 9 or 10 years.

Also, I finally admitted that my urine leaks are probably more than is "right". The new gyn agreed at my pelvic exam.

Has anyone had experience with symptoms like mine and still had their gyn recommend a hysterectomy? In a way, when I read other women's stories, I feel like "what am I complaining about", but on the other hand, bleeding to anemia is no fun, having this go on for years is no fun...

DH and I agree that we wouldn't say "no" to a recommend of hysterectomy. I've been all over the Web looking for answers to my different questions, and I have found the most support and help from this site. It's awesome.

Anyone have any advice for me?
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  #2  
Unread 04-17-2001, 05:25 PM
Hi db!

Here is a link for fibroid info.

http://thefibroidplace.com/

It is about the best I have found on fibroid info so far.
I would say bleeding so much that it causes anemia is a serious condition. Does your Dr. ever prescribe pills to stop your bleeding?

Some of your symptoms sound like adeno also. The heavy bleeding, clots and prolonged periods I had as well and my path report came back with adeno present.
Here are some adeno links to look through. Perhaps you can ask your Dr. if it is possible adeno might be the source of some problems you are having. I am not diagnosing you. I am just relating my situation.


http://my.webmd.com/content/asset/ad...ase_adenomyoma

http://www.hystercity.com/illnesses.htm

Both of these links have some great info also.

I do hope you get a resolution to this soon. Its sure no fun to bleed like you are!

{{{{{{{{{{big hugs}}}}}}}}}}}

kaatie
  #3  
Unread 04-17-2001, 05:38 PM
Fibroids--how large is "large"?, and other ?s

Whether or not you should have a hysterectomy or not really depends on your doctor's recommendations and how much you can put up with, assuming you do not have a life threatening situation. 2" fibroids are not considered huge but there may be more lurking in there that can not be seen. I was on iron for anemia for about 2 years prior to my TAH. I had fibroids and hyperplasia which caused severe periods, cramping, and cronic backache. The symptoms took years to get to the unbearable stage. Read whatever you can before you make your decision so that, when you do decide, you feel comfortable with your choice.
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  #4  
Unread 04-17-2001, 06:28 PM
Fibroids--how large is "large"?, and other ?s

Thank you, thank you for replying! I checked out all the sites recommended and easily and quickly got some of the info I've been wondering about for ages!!

Yes, my previous gyn had prescribed medicine for me. However, she was treating hot flashes which seemed to help my periods somewhat. However, I was hot ALL DAY LONG, which doesn't seem to be normal for hot flashes. Probably isn't, since a blood test revealed that I have a thryoid problem. Since being on medication for that, my so-called hot flashes or times of being extremely hot are not troublesome very much at all. So, I quit taking the medicine from the gyn.

My new gyn has mentioned that at the post-op visit, we might get into some more discussion about medication that might help. Prior to this last period, the doctors could get me stopped bleeding with Provera. For my last "never-ending" period, though, it took one week of birth control pills, taken 3 a day, to get me stopped. That was after a month of heavy bleeding.

Have also realized through searching the web that my lower back aches may be part of all this. Do I mention the back aches to the Dr. or wait for him to ask? I don't want to seem like a whiney person with 152 things wrong... Plus, I'm embarrassingly overweight, and I've just kind of thought the back aches could be because I need to lose weight...

With the increasing pain, length, and heaviness of periods, plus back pain, plus the anemia, I don't know if I am up to going through first trying this and then trying that. I feel I've already been through trying different things to some extent.

I've just got to take this slow, as slow as I can stand, and really think through my options. At least I feel I do have options which is a plus!

The advice to research and really feel comfortable with whatever course of action is taken is good. Deep down, I know that, but I've just been "on a mission" to know what's going on and understand (hopefully!) what I learn.

I am the kind of person who feels a lot better hearing from other people and their personal stories. I know that you all aren't doctors. Believe me, I am depending on my drs. intelligence and good advice (I have great faith in both my family doc and my new gyn). Still, hearing from others is like extending my circle of friends.

I really appreciate everyone who contributes to this site. I read a lot of the messages and get a lot from them. THANKS!!!!!!!!!!!!!!!!!!!!!
  #5  
Unread 04-17-2001, 07:20 PM
Fibroids--how large is "large"?, and other ?s

hello,

I can only tell you from my experience. I had a large fibroid and had been hemmorighing and it was getting worse every month. I was also put on provera and that was unsuccessful. I was seriously anemic frommy periods. I had a hysteroscopy with an ablation edomertial.. it did not help, actually made my bleeding worse. I am so very thankful that I had my hyst. I dont have to worry about bleeding to death anymore. I wish you luck on your decision. I waited 3years on my decision and went thru every treatment offered. I know it is confusing.


Tina
TVH 3/5/01
  #6  
Unread 04-17-2001, 08:48 PM
db...

Yes, by all means tell the Dr. about your backaches. I never mentioned them to my Dr. because I have a job where I stand and lift all day. I thought 32 years of doing that was just catching up with me. After surgery
when my Dr. came to my room I told her my backache was gone. She said 'What backache?'. Thats when I told her I had a backache for over a year. An enlarged uterus can cause a backache. All the testing I had been through came back negative until my d and c. If my Dr. had known about my constant backache she would have been alerted and suspected an enlarged uterus, indicating something was amiss. I am 51 and my Dr. was checking for everything but suspected it might just be menopause.

Menopause {natural} is like puberty. Lots of hormonal surges, therfore causing abnormal and heavy bleeding. I was alarmed because of large clots, which is why I was going for testing. My mom has had clotting disorders and I remember her Dr. telling us that any clotting is an indication of trouble and needs to be investigated.

My d and c indicated that I had uterine cancer and that is why I had a TAH/BSO. When my path report came back it also showed adeno, fibroids in my tubes..{possibly why I was unable to conceive}.. and numerous fluid filled cysts on my ovaries, uterus and cervix. None of this showed up on ultrasounds, bloodwork, uterine biopsies or in a lap procedure.

Thats my story! I urge you to continue to search all the info you can in order to make an informed choice. Please make a list of all your symptoms and all of your questions. If you think you sound whiney..{I have felt that way too!} just hand him/her your lists. After my surgery I told my Dr. I always felt so whiney and she told me ...not whiney enough! If I had 'whined' a bit more she would have known all my symptoms and it would have helped her know what to look for.

Hope this helps you!

{{{{{{{{{{hugs}}}}}}}}}}}}

kaatie
  #7  
Unread 04-18-2001, 05:51 AM
Jeannie

My DD told me that my backache was caused by the fibroids. They were located at the top posterior part of my uterus which caused my uterus to tilt foward and away from my back. This put a strain on the nerves that attach the uterus to the spine so, hence the pain. Definitely tell your DD ALL of your symptoms. I also think you are wise in researching eveything. Knowledge helpes you stay in control more.
  #8  
Unread 04-18-2001, 06:12 AM
Fibroids--how large is "large"?, and other ?s

Hello
The first thing you need to understand is that everyone's case is different. My fibroids are only 3 cm., but I have multiple ones in an already tipped uterus (backwards). I started getting bad back aches about 6 months ago. Last year during my annual checkup I complained to my dr about heavy periods, terrible cramps, etc. He said i was perimenopausal and to also "work through it". At this years annual, and subsequent v/ultrasound, multiple fibroids were found. Yes, I could probably still "work through it" until menopause, but I am 42 and probably have 8 more years to go. I choose not to wait it out. I'm scheduling my surgery in a couple days for sometime in early June. You have to do what's comfortable for you and NO ONE ELSE!!! It's your body. This site will be very helpful to you, as all of us sisters are going through basically the same thing.

Good Luck
laura j
  #9  
Unread 04-18-2001, 07:08 AM
Fibroids--how large is "large"?, and other ?s

Hi jeannie, I think I could have written your post. I was going thru the same thing and also was put on Provera. It worked for a while and then was no longer effective, then we tried prometrium, it didn't help at all. This was over a period of about 5 yrs. It finally got to the where the meds weren't helping and I was bleeding constantly for months at a time. I had a vaginal/abdominal ultrasound, and it indicated fibroid tencencies, and an enlarged uterus, oh and also thickening of the uterine lining. I had my hyst on Feb 16, 2001 and have not regreted it. After surgery my doc said I had huge fibroids that didn't show up on the us. because my uterine lining was so thick. Well, I just wanted to share my story, I hope it helped a little. Ultimatley, you have to make the decision that is right for you. And talk to your doctor, get his/her opinion on the success of alternative treatments and if it is a good option for you. Stay well, and good luck.
  #10  
Unread 04-18-2001, 12:12 PM
Fibroids--how large is "large"?, and other ?s

Hi Kaatie,

I kept seeing visitors coming from here to my site, TheFibroidPlace.com, so I had to stop over and say Thank-you.

Donna
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