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2.5 yrs post op-TAH- now pelvic congestion, I'm miserable 2.5 yrs post op-TAH- now pelvic congestion, I'm miserable

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  #1  
Unread 01-25-2006, 06:05 PM
2.5 yrs post op-TAH- now pelvic congestion, I'm miserable

I'm 2.5 years post op from TAH, had to have another surgery to remove remaining cystic ovary. Now I'm having ridiculous pelvic pain. It comes and goes in sort of a cyclic manner. I thought that I was through with this with the TAH. Any thoughts? thanks M
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  #2  
Unread 01-25-2006, 11:10 PM
2.5 yrs post op-TAH- now pelvic congestion, I'm miserable

(((Megeler))) I'm sorry you're still having problems with pelvic pain. When you say it's 'sort of' cyclic, what does that mean? Are you keeping track of when the pain is worst?

I'm wondering if perhaps you might be having problems with either an ovarian remnant, or endo regrowth? Either one could be causing cyclic pain, which could be worse if you also have adhesions. Either an ovarian remnant or endo could be making its own estrogen, which would account for the cyclic nature of the pain.

Have you considered seeing an endo specialist or a gyn/oncologist (no they don't just deal with cancer, they are skilled at handling endo cases as well) to see if they have any ideas?

s,
-Linda
  #3  
Unread 01-26-2006, 08:49 AM
thanks, and yes

thanks babe, for your consideration.

I mean that it is cyclic like it comes and goes about every 30 days. I just saw my OBG yesterday. He said that my bladder was really irritated, so he tested my urine to check for UTI. I haven't had UTI S/S, but I'm thinking he's doing a process of elimination. All of the things you suggested, I've thought about. Just freaking lovely. I am a nursing student in my last year of school. I'm doing peds and labor and delivery right now. It would just suck if I had to stop in the middle. I'm supposed to graduate in May. I will be happy if my test shows that it is a Bladder infection and antibiotics will put me back on my feet. If not, then I don't know what I will do.
Sorry that was all very long winded. I'm taking another day off from school to let the antispamodic work on my bladder. Just class today.
Thanks again
Meg
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  #4  
Unread 01-26-2006, 07:36 PM
2.5 yrs post op-TAH- now pelvic congestion, I'm miserable

((Meg))

If it's your bladder that's causing your pain then it would be a good idea to go see a urologist (although many GYNs are quite knowledgeable about bladder issues, they're not the experts). Good luck.
  #5  
Unread 01-27-2006, 09:50 PM
Confusion

So I went to the ED today to have a CAT scan. Still in cramping pain in the pelvis, and twingy in the right kidney. Bloods normal, great even. UA show no indication of infection, and the CAT scan was within normal limits; no masses, no stones, no indication of anything that would cause me this cramping pain. the doc said that there could be smaller nodules of widespread endometrial tissue that wouldn't be picked up on the CAT. My OBG doesn't think that it is a recurrence of the endo after my TAH. The diagnosis of pelvic congestion syndrome is still pretty vague and hard to put together. So what the hay!.
I'm a nursing student up to my eyeballs in flaming ducks with clinical, class and home work, and currently having trouble on the home front. Cheeses, cherries and jujubees, I feel like in Monty Python "Run Away, run away".
I have this weekend this weekend to regroup. But is that enough? we'll seeeeeeeee. I need some cheese and crackers with my Whineeee. Thanks for all of y'alls support. As we say in Utah, "'preciate-cha"
Happy Saturday! M
  #6  
Unread 01-28-2006, 08:49 AM
2.5 yrs post op-TAH- now pelvic congestion, I'm miserable

Meg -
Sorry to hear about your situation. I've been having some trouble lately and am fearing my endo is back. When I first saw my gyn before knowing I had endo, one of my symptoms was very frequent urination that would get worse before my cycle and I would feel like I was getting a UTI or bladder infection, but they were always negative. When I told him this, he said those are classic symptoms of endo on the bladder. After my laser surgery and hyst (uterus only), it was better. Over time, I have noticed more urgency/frequency, but didn't think too much about it...until now as I'm waiting on the kidney ultrasound to see if they are blocked. I also was telling a fellow hystersister about my urinary issues and she said the exact same thing happened to her prior to her hyst and they sent her to a urologist who told her it was a female problem and they were trying to pass her off. After her hyst (ovaries removed, too), that problem went away. Obviously, I'm not a doctor and don't know if that could have anything to do with your situation, but just thought I'd mention it. I know you said your remaining ovary was removed, but I suppose if you are on hormones they could be activating the endo, right? Best of luck! Hope the weekend goes well!
  #7  
Unread 01-28-2006, 10:56 AM
Hit it on the button

Yep, yep and yep!

I don't know what to do. It sounds like the only definitive diagnosis would come from a laproscopic inspection of my insides. I will have to deal with being uncomfortable until May because of my student schedule. I am just wondering how prevalent the recurrence of endo is in women who've gone through the whole hyster/bilateral oopherectomy process. I have no organs producing hormones, but I have put on weight. The hormones like to hang out in fat cells. And I have had the hardest time losing weight. My body does not want to lose weight and I get crazy trying.
thanks for your thoughts. I would love to be in touch with you or anyone else who might be experiencing the same problems.
Meg
  #8  
Unread 01-30-2006, 02:04 PM
2.5 yrs post op-TAH- now pelvic congestion, I'm miserable

Just dropping by a ! I, too, have endo, and we think it is growing--I kept my ovaries. I have the pain and achiness in my pelvic region, along with burning, pulling in my ovary regions, that comes and goes, pretty much depending on my very unregular cycle. I know your schedule sounds hectic, but if it is endo, the only way to detect it will be a lap. Have you sought a 2nd opinion with another GYN about the endo?

Best wishes to you with your schooling and your health.
  #9  
Unread 01-30-2006, 10:43 PM
Sometimes I just don't know

You've all been great with your support. I'm having a difficult time with my OBGyn. He says he doesn't think it's recurring endo, and has referred me to a pain management clinic instead. It sort of feels like I should get a second opinion, someone who is willing to order an MRI, or laproscopic look see. Has anyone had their endo (recurring or 1st diagnosis) confirmed with MRI? I'm still having wicked right kidney pain. I hope that I'm not killing my kidney. I sort of like the thought of having two kidneys instead of just one. And I get to miss more school. Oh Joy! Yes I'm a little cynical right now. Apologies.
M
  #10  
Unread 01-31-2006, 06:39 AM
2.5 yrs post op-TAH- now pelvic congestion, I'm miserable

I would definitely get a second opinion. I have been wondering the same thing about an MRI. From what I understand, it doesn't show up on much except during a surgery, but I was thinking an MRI would be worth a shot. Of course, getting someone to order one is another storey. I'm still having my right kidney pain, too!! I had my ultrasound on Saturday and picked up the results yesterday - normal. Nothing on it. Not that I really WANT something to show up, but at least a red flag would MAKE someone go look. Nobody has done bloodwork yet and to me, that seems like it would be a good idea. Has anyone done the Complete Metabolic Panel on you to check kidney function? No apologies necessary for being cynical - I think we ALL get that way. I am going to spend today calling the about 20 various gyn offices in the big town near me and am going to try to find one who specializes in Endo. I may also break down and call the old gyn just to be seen and get an idea. ARGH!! Sorry you will have to miss school. I feel like I'm hardly functioning at this point. I keep trying to use the Metro-Gel the doctor gave me for the bacterial vaginosis, but I think it is not agreeing with me. I feel worse today after using it last night. My stupid body seems to absorb EVERYTHING no matter where you put it. Hang in there and keep me posted if you find anything good. I found a website (I think through the resources on this site) that I am going to check out some more. It is http://www.endometriosiszone.org/quilt/endo.cfm

Talk to you later!
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