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adenomyosis - anyone else? adenomyosis - anyone else?

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  #1  
Unread 01-27-2006, 11:30 AM
adenomyosis - anyone else?

It seems from this site that in America women are automatically given their pathology reports. It gave me the idea to write to my surgeon and ask for mine and also to ask if she had seen adhesions during the abdominal hysterectomy. the reply was interesting. I had a transcervical resection of the endometrium in Jan.2005 which left me in a great deal of pain,terrible bladder problems and did not help at all with my periods. She said that when I had my hysterectomy she found that my bladder had adhered to my cervix and as it was a total hysterectomy they had to be unstuck. This apparently will have been caused by the TCRE. the pathology report said that I had adenomyosis and also had firoids in the muscle wall which all explained the ongoing pain although they had removed fibroids and polyps during the TCRE. it's funny but I'm relieved to know exactly what has gone on. Anyone else with adenomyosis?
Jean
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  #2  
Unread 01-27-2006, 11:38 AM
adenomyosis - anyone else?

I had this too but only found out after surgery- needed to have it explained to me as i hadn't even heard oof it before. I also had small fibroids discovered, does this mean they would have got larger in time?
  #3  
Unread 01-27-2006, 12:16 PM
adenomyosis - anyone else?

I had it too.. My uterous was the size of a 20 week old baby.. It would push on my bladder so I had to pee every 5 minutes and the leeking was aweful.. No leaking and life is good.
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  #4  
Unread 01-27-2006, 01:37 PM
adenomyosis - anyone else?

It depends on your age. Fibroids feed on estrogen so they shrink after menopause, which is why hysterectomy is not the automatic answer for every woman who has them.
  #5  
Unread 01-27-2006, 07:35 PM
adenomyosis - anyone else?

I had it too.
I also found out from the pathology report. I wasn't glad that they "found something", however, I remember feeling validated.
I have complained for YEARS of symptoms that were all ignored. "Well, you are a woman and that's just how it is at your age..." Cramping two weeks out of each month, periods from you know where, lower back aches, on and on. After awhile, I felt like it was in my head or my lack of dealing with it, that there wasn't anything WRONG with me.
Researching adeomyosis, since surgery, I discovered that I had many of the symptoms. Since surgery, no more back aches, cramping, etc. I can hardly wait until I am completly healed so I will know what NORMAL is!
  #6  
Unread 01-28-2006, 07:29 AM
me too..

I also had adeno and it is interesting to see other older women who suffered for years and finally just lived with it after being dissed by Drs..( me since I was 14...now 57)...feel vindicated finally with a Dx ..The pain was no joke or an exageration. It got worse after my 2 pregnacies...and I even hemmorhaged and ended readmitted back in hospital after second baby. I also had fibroids that GREW after menopause...and the bleeding kept happening too..
Life is better already...but I am so tired since going back to work...
How long before my energy comes bck so I can have all of my life again?
Kaegea
  #7  
Unread 01-28-2006, 07:37 AM
adenomyosis - anyone else?

I also had adenomyosis. (LAVH on 1/20). Very painful and non stop periods with alot of bleeding that gradually got worse. Doc didn't say how enlarged my uterus was though. I had my last period 1 week before surgery and my first thought was, this is the LAST ONE! No more crawling in bed for 2 or 3 days with pain and all the other awful symptoms that go with this disease. Considering my age (39) since everything was okay he left my ovaries. Anyone else with adenomyosis still have theirs?
  #8  
Unread 01-28-2006, 07:46 AM
adenomyosis - anyone else?

I had my 5 wk post op appt on Thursday and the reviewed the pathology report with the dr. I, also, had this. No wonder my periods were long, painful and heavy and my lower back pain was no stop. I am truly thankful that my doctor of one year believed my when I explained my problems and was proactive in getting me well (TAH) . I feel terrific! I own and operate a commercial embrodiery business and have been working since week 3. No heavy lifting, but producing jobs. This is the best I have felt in years!!
  #9  
Unread 01-28-2006, 08:29 AM
adenomyosis - anyone else?

I too had adenomyosis, which I didn't know either until after the TAH. I had huge fribroid tumors and within the last year started having heavier periods along with the cramping. Thankfully when I went for my yearly check up, my enlarged uterus was detected. After the ultrasound detected large fibroids and several smaller ones, I finally was able to understand why I had been feeling so bad for nearly a year. From what I understand, having adenomyosis isn't detectable until a hysterectomy is preformed and the uterus is examined afterwards. Just glad not to have the heavy bleeding and painful cramps and running to the bathroom every 5 minutes also from the fibroids pushing on my bladder. I'm looking forward to feeling like my old self again.
  #10  
Unread 01-28-2006, 09:24 AM
adenomyosis - anyone else?

Hi, First post for me. I am 43, TAH on 1/12, had severe adenomyosis, had many polyps removed from cervix all at regular yearly exams, and 15 fibroids, 3 large the rest smaller. I also kept my ovaries. First 2 weeks after surgery were pretty miserable but am feeling better every day. My ovaries have not kicked back in yet as I am still having teriible night sweats but the Dr. says within 6 weeks should be back to normal. Has anyone else had a hard time withovaries "waking up" after surgery - how long is typical?? I would appreciate any feedback! Thanks!!
  Quote:
Originally Posted by Velvet85
I also had adenomyosis. (LAVH on 1/20). Very painful and non stop periods with alot of bleeding that gradually got worse. Doc didn't say how enlarged my uterus was though. I had my last period 1 week before surgery and my first thought was, this is the LAST ONE! No more crawling in bed for 2 or 3 days with pain and all the other awful symptoms that go with this disease. Considering my age (39) since everything was okay he left my ovaries. Anyone else with adenomyosis still have theirs?
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