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has ANYONE had good luck with adhesion removal surgery??? has ANYONE had good luck with adhesion removal surgery???

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  #21  
Unread 02-17-2006, 09:00 PM
has ANYONE had good luck with adhesion removal surgery???

Dear SlapmyGynie-How many people do we know who would take the time to write such sweet, encouraging notes to others-within a few days of their own surgery??!! I can not tell you how much I appreciate your message. After going for so long with only immediate family to ventilate to...it's a relief to have a listening ear from those who truly have "been there". I'm confident that I am getting closer to an answer--hopefully one that is treatable. If not, the pain management doctor better get his door open!! Either way, I thank all of you women for sharing your personal stories. I'm an only-child and don't have a sister to confide in--now, I do!!!! Hyster-sisters!!!
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  #22  
Unread 02-17-2006, 10:31 PM
has ANYONE had good luck with adhesion removal surgery???

Hi
I was told I have adhesions, when last month the pain was so unbearable, I was in bed for a week. My hmo says they don't do any laps for adhesions, and won't do anything but give me pain pills. Again, I want to know: How do they know I have adhesions if they don't look and see. I am worried that the bad pain will be back again and I will be down again. I agree that if a man is in pain like that, right away they try to help them. I am sooo sick of Drs. right now.
Berni
  #23  
Unread 02-20-2006, 01:03 PM
has ANYONE had good luck with adhesion removal surgery???

Dear Whatsnormal
I am hoping to have luck with adhesion removal operation!! I had TAH/TBO 2 years ago now but have been in ever increasing pain for the last year or so. Like others on this forum, it also seems forever since I've had a 'normal' bowel movement!
My gyno is sending me to a surgeon who specialises in adhesion removal - I really hope this works...
Hopefully, I will be able to answer your question with a resounding 'yes'! Good luck with your decision.
Cheers
Linda
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  #24  
Unread 02-20-2006, 04:17 PM
has ANYONE had good luck with adhesion removal surgery???

Hey everyone..I have had 2 adhesiolysis. My hyst was in 2001..had pain on the left side continuously, couldn't really eat much, bowel problems, etc. My gyn would not listen and blew me off for almost a year. Finally I went to my PCP in total desperation..I had been checked out for everything under the sun...colonoscopy, cat scan, etc. Nothing showed up so it was my PCP's idea to have a diagnostic lap done. He called my gyn and told him he wanted it done. My gyn did it..it started out as a lap, but he had to open me up. He couldn't find my left ovary or the tube and said I was a mess. Intestines were covered in adhesions..everything was stuck together. All this after acting like I was a raving lunatic for almost that whole year! He used an adhesion barrier. I was ok for awhile and then started having pain again. In 2005 I had my vaginal vault prolapse surgery. My urogyn said my left tube was still in there covered in adhesions and my intestines were as well. He lysed the adhesions and took the tube out. Again I was a mess. Now I know they are back. Yesterday I was in alot of pain and today am trying to figure out which route to go. The surgery only seems to help me for a while..I can tell you this though..I am sick of it and very discourgaged. I am trying Vitamin E now as suggested by one of the chiropracters I work for. I have had myofascial release, I exercise, do some yoga, have had acupuncture and Reiki done. I don't know what the answer is. I only know that it was worth it to me to have those surgeries just to be able to say "I told you so!" It is more discouraging to have all these Dr's think we are crazy and hysterical women than the pain is sometimes. I need to figure out what I am going to do next..this is really getting me down. Hope everyone finds answers to their pain!
Sherry
  #25  
Unread 02-20-2006, 04:34 PM
hi

Hi all,
This is all so upsetting. I know we are Not to "dr. Bash" here, so I will try to hold back. But there should be some law or something. Why must we be made to feel like "hysterical woman?" Why must we be made to feel like we are going nuts? Why can't we be taken seriously? Haven't most of us held down jobs, raised children, paid our taxes and bills on time? I had my gyn tell me to see a therapist. I told him I'm not nuts, I'm in pain, and he said "well, the surgery didn't turn out like you expected, so maybe you need help dealing with that!!" No what I need is honesty. I think that is what we all need. My husband actually just said to me tonight, "so, ya got a doctor's appt this week" like this is NORMAL, like most people go to one doctor after another!!!!! I know I am venting, but all you ladies have been through so much, and we continue to search. When do you give up?
  #26  
Unread 02-21-2006, 12:36 AM
has ANYONE had good luck with adhesion removal surgery???

I was just talking to my sister about this!! I don't want to give up. I am not nuts, and I don't feel to take pain meds for the rest of my life.
I am 52 and that is a awful long time if I live that long. I was up last night in pain, and today it is on the edge trying to get there. I made up my mind, when the pain is really really bad, I am going to my hmo ER and document my pain. I feel that is all I can do. I have had the CT scans, the colonoscopy, etc and I am sick of it too.
  #27  
Unread 02-21-2006, 12:55 PM
has ANYONE had good luck with adhesion removal surgery???

I am off to my urogyn this afternoon at 3:00. I can't decide whether to bring up my pain or not. I am actually going because I think I have yet another UTI, but this pain in my left side is killing me. It is effecting my outlook on life. Just got through speaking with a chiropractic student who has been in our office doing his preemptership and he was telling me there are chiropracters who do visceral manipulation which is kind of like moving the organs around to get them unstuck (in layman's terms). I have a name of a woman to go to so I guess I will give this a whirl. I really don't want or need to be cut on again! It seems a shame to me that we wonder whether we should bring up our pain at a Dr visit for fear we will not be taken seriously. Something is definitely not right with this picture.
Sherry
  #28  
Unread 02-25-2006, 08:54 PM
has ANYONE had good luck with adhesion removal surgery???

Whatsnormal -
I don't know when we give up....I guess we never should, even though we are tempted! The thing I need to do is toughen up and try not to let any doctor's comments get me down. I cry easily, so that is a bad trait to have when you're in a doctor's office trying to get them to take you seriously. My new favorite show is "Mystery Diagnosis." If you ever want to get motivated NOT to give up and to BELIEVE IN YOURSELF and BELIEVE THAT YOU DESERVE TO FEEL BETTER, then watch that show. They have cases on there that are amazing. In a recent one, this mom spent 5 years trying to find someone to help her daughter who was suffering in agony. She just kept on going to doctor after doctor until she found ones that took her seriously and now her daughter is healed (after some pretty major surgeries). I realize that not all of us will be healed and we may have to at some point accept a certain level of discomfort if there is no other way, but at the very least we deserve to be treated with compassion and respect and I will search indefinitely for a doctor who can offer that. I have found an Endocrinologist who is wonderful and a great Gastro doc, it seems that the gyn is the missing piece, but I'm getting closer. Good luck with your search for pain relief and a good doctor...keep hunting because you are worth it!! I hope we all can find the answers we are looking for....take care!

Lisa
  #29  
Unread 02-28-2006, 10:23 PM
has ANYONE had good luck with adhesion removal surgery???

Oh, you poor sisters! I know that there are people who are more inclined to form adhesions, and that additional surgery can aggrivate them. I heard an undercurrent of anger with "male" gyn's. You'd think there could be some study on use of anti-inflamatories to stave off adhesion formation?

Several of you have spoken about nerve involvement - possibly because of adhesions. Just remember that if you have nerve involvement and the adhesions are treated, it could take a couple of months for the nerve pain to totally go away. Nerves are very slow healing. I agree with the suggestion to do as much as you can to find the cause and eliminate it! My heart is with you all.
  #30  
Unread 03-05-2006, 01:39 PM
has ANYONE had good luck with adhesion removal surgery???

Hi,everyone, anyone know of any non-surgical techniques to get rid of adhesions. Had my laparoscopy on Wednesday and it appears that I'm a disaster area in there. The gynae.said that he thought that he had punctured my bowel when he introduced the laproscope and had to wait until he could get a clear view to proceed. Appearently my bowel is stuck all over the place and is even stuck to the top of my vagina whaich explains some of my symptoms. He said that he coould not get access to look around very much because of adhesions. He's gone away to consult with another gynae. who specialises in laparoscopic operations to see if he thinks that it can be that way, if not then he thinks that I will need a laparotomy,either way he says that it's major surgery again!!! I am not a happy bunny!! He did say that some women may have as many adhesions but have no pain which made me feel like a real wimp!! I've had difficulty coming to terms with the hyst. anyway and this just feels like a double whammy! Any advice on excercises ,diet or whatever would be appreciated
Take care,

Ann
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