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has ANYONE had good luck with adhesion removal surgery??? has ANYONE had good luck with adhesion removal surgery???

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  #41  
Unread 03-12-2006, 07:47 AM
has ANYONE had good luck with adhesion removal surgery???

Whatsnormal -
I am so very sorry that you are having so much pain. I wish you the best of luck and will be sending some prayers your way that the laprascopy will help solve your pain problems. Take care of yourself and hang in there!!!

Lisa
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  #42  
Unread 03-12-2006, 10:37 AM
has ANYONE had good luck with adhesion removal surgery???

Pursue, pursue, pursue answers! Keep the faith and the persistence. And above all else trust your own instincts about YOUR body. It has to pay off in the end.
Sherry
  #43  
Unread 03-12-2006, 12:02 PM
has ANYONE had good luck with adhesion removal surgery???

Hi Whatsnormal. You said you wish you could turn back the clock. I never felt that way until this morning. I have had pain everyday since the hysterectomy 7 months ago. Yesterday was such a beautiful day that I overdid it outside raking the lawn. The pain was so bad that I felt I couldn't take one more step. This morning, I had to force myself to want to be intimate with DH, I was dry and in so much pain I could hardly move. That was when I started to cry and wish I had never had this done.
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  #44  
Unread 03-14-2006, 11:45 PM
has ANYONE had good luck with adhesion removal surgery???

Dear Candyapplelady and whatsnormal,

I posted on this post earlier on in my struggle for answers back in February. I went to the specialist and he said a diagnostic lap was necessary and after thoroughly reviewing my other tests over the past months, he decided a cystoscopy with ureteral stents would need to be done also. I agreed with him and he was almost sure I had adhesions also due to "bilateral streaking calcifications" that were noted on my CT scan from January. Well, I gave the go-ahead to do whatever was necessary, if he felt it would lessen my pain and make life more enjoyable, then he had my blessings. I went into the castle on March 6 and came home on the 7th. I remember signing alot of paperwork and I distinctly remember him telling me he "could not guarantee no more pain but he would do anything to help me". I remember telling him I trusted his judgment and I appreciated his honesty. Well, when I woke in the recovery room, some 8 hours after my surgery, thinking I would be going home, I was told I had a disaster area inside me. I was told by a nurse later in the night(when I was asking for more pain meds) that the original surgery had increased from 2 scheduled procedures to 5 or more!!! I was shocked, but relieved, that the new pain on the left side I was having had at least a reason to be there. I ended up having the diagnostic lap, stent placement, adhesiolysis, a vaginoplasty and removal of my left tube and ovary and right tube and part of the right ovary. I had never had endo, just fibroids, which caused me increased bleeding during my periods for years and I finally had enough. I was on the brink of losing my job due to the daily pain and pressure I was having which made it virtually impossible to do my job after my surgery. I had used all of my personal time last year with the hyst. and was on a leave of absence but knew they were as tired as I was of having no answers. I had diarrhea every day 5 to 10 times per day. But worst of all, I had never stopped spotting after my vaginal hysterectomy and I knew something was wrong. I thank God I never gave up. I wanted to many times but I just had a feeling that something was wrong, and BOY was I right. I have my follow up appt. in another week and I will post what I find out. The doc who discharged me the day after surgery scared me when she told me that all "unhealthy" tissue and organs were sent for pathology and that I would get the answers I was looking for when I return for my follow up. I can honestly say that the IBS dx I got back in Oct.(4 mos.post op) was a bunch of crap, along with my GP saying it was stress related psychosomatic illness!!! Basically, all my docs were saying that I was making myself sick by worrying which in turn was causing my diarrhea. I disagreed with them and had good reason to. I am imploring everyone who has pain to seek medical help by a doc who takes you seriously. See a specialist or a gyn/onc but do not give up. For many of us, the reason for the surgery was to get rid of pain in the first place, not have more or worse pain. Trust your instincts and do it. We can not go back and change what we have done but we can change the future. I am in pain still from all the cutting but I am no longer having the diarrhea and the spotting stopped while I was still in the hospital, so the way I look at it is at least that's better. I will have to wait and see what the dr. tells me next week. Hopefully I will be feeling great then and will stay that way. But if not, I will embark on this journey again, in a heartbeat... Good luck you guys! I know how it is. Been there, done that! Take care. Always!

Tami S. in Florida
(Sorry so long-winded, but I had alot to say! )
  #45  
Unread 03-15-2006, 07:59 AM
has ANYONE had good luck with adhesion removal surgery???

Tami -
Wow!! That is an amazing story!!! Thank you for sharing your info to encourage the rest of us to keep pursuing the reasons we are having trouble. I hope that you will continue to improve every day and that your pathology results will all be normal. Take good care of yourself - you have been through a lot!!!

Lisa
  #46  
Unread 03-15-2006, 09:42 AM
has ANYONE had good luck with adhesion removal surgery???

Tami,

I agree with you that we all must be active in the care we receive. It's amazing how uninformed many doctors are about things like this. They fail to look at the whole person, thereby missing the true cause of the problem. How simple is that?

I'm happy to hear that it worked out for you and you are getting better. All the best on your follow-up and patho results.

I'll be undergoing some procedures in a couple of months and don't look forward to them, but I feel so much better knowing some of the complications that may arise. Thank you all for sharing your experiences.

Purified
  #47  
Unread 03-15-2006, 04:51 PM
going to do it!

Well sisters,
After every test, and one doctor telling me I have bladder cancer, and another sending all his own testing out and telling me NO WAY, I am scheduled to have my lap a week from Friday. This is a fertility specialist who will be doing this. He told me to plan on it lasting 2 1/2 hours, and his plan is not to "break" down adhesions, but to actually pull them out, along with the incisional hernia and freeing the possible trapped nerve. After 3 1/2 years with this pain, that really plays with your mind, I am ready for this. I really like this doctor and have confidence in him. The time has come, I can't live like this anymore. The only way for me to have piece of mind is to have someone go in there and LOOK! Even if I don't get all the relief I am praying for, at least I will have a different pair of eyes look, ya know what I mean? Seems silly to "look forward" to surgery, but after all these doctors, all these test, all these conflicting opinions, I NEED someone to look. Anyway, wish me luck please, and I will make sure to let all of you lovely ladies know how I make out. Maybe there is hope for all of us on this road.
God help us all to find the right path.
  #48  
Unread 03-15-2006, 05:36 PM
has ANYONE had good luck with adhesion removal surgery???

Whatsnormal -
I wish you the best of luck with your surgery!!! I pray that you will get some relief from your pain and will feel better soon. Glad you found a doctor that you are happy with! Take care,
Lisa
  #49  
Unread 03-15-2006, 07:26 PM
has ANYONE had good luck with adhesion removal surgery???

Whatsnormal, I am so happy for you. I know what you mean about "looking forward" to surgery. We're not "intervention freaks", we're just looking for relief. My thoughts and prayers are with you. I hope you get answers to your questions and you sail through recovery. Take care of yourself
Hugs,
Michelle
  #50  
Unread 03-15-2006, 07:35 PM
has ANYONE had good luck with adhesion removal surgery???

Tamisinfl, thank you from the bottom of my heart for sharing your encouraging story with me. I have been so lucky to have a wonderful Dr who has stayed by my side and researched, e-mailed specialists across the country and referred me to the best of the best. Unfortunately in medicine, Dr's like to rule out the simple things first and progress to the more invasive things when those simple things are ruled out. Which means that we go through so much before we finally get the cure that we have searched so long for. Maybe it shouldn't be that way but if I were a heart patient I'd rather start with angioplasty before a heart transplant if you know what I mean.
I am so happy that your Drs have found the cause for your pain. I am praying that this surgery was the answer for you and your recovery is uneventful. Please keep me posted.
Michelle
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