just told i had stage 1 uter. cancer, but don't know the grade. should i call the dr? | HysterSisters
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just told i had stage 1 uter. cancer, but don't know the grade. should i call the dr? just told i had stage 1 uter. cancer, but don't know the grade. should i call the dr?

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  #1  
Unread 02-13-2006, 05:54 AM
just told i had stage 1 uter. cancer, but don't know the grade. should i call the dr?

Hi,
I posted a few days ago. I am new here, newly diagnosed. Had a hyst 2/3 - they left ovaries. My doctor is sending me to a gyn-oncologist, appt to be made today. I do not have a copy of the pathology report. All he said was I had stage 1 - early) and didn't give much information (grade,etc). I don't even know if it is endometrium or uterine (how dumb is that?!) He did say the tumor was 3mm. I have been thinking about it all weekend. Do you think I should call him and tell him to explain it to me further or just wait for the appointment with the ob/gyn? If I should call, what specific questions should I ask? I am worried, don't want to drive myself crazy, but now I am reading there is more to just a stage 1 cancer (grades, etc). I didn't ask him if he checked the lymph nodes. Was that something I should have done? Thank you for your help!
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  #2  
Unread 02-13-2006, 06:18 AM
just told i had stage 1 uter. cancer, but don't know the grade. should i call the dr?

Dear Sammaria,
You can either call the doctor and explain that it was a shock and at the time you do not remember everything he told you concerning your case or you can do as I chose to and go to the facility where your surgery was performed and request your pathology report. I only had to pay one dollar per page and it was 2 pages. It is a very good idea to have these reports in your possession for future doctors questions, etc. The report should have in detail descriptions of what was found including the info you are looking for. After my surgery all I was told was " no cancer, totally healthy". Six months later, when I was having a few complications, another doc asked me to go pull the report. Only after that did I find out that I had endo that could very possibly be causing my continued pelvic pressure and occassional pain along with vaginal bleeding. I was taken off the Premarin I had been on for a few months. I am now going on the 16th to a Specialist. My point is that I am tired of finding out things that pertain to me concerning my health only after the fact. I am trying to be proactive. I am going in for a laparoscopy which has yet to be scheduled but is planned in the near future. And as far as your post, hindsight is always 20/20. When you are being given info sometimes with the shock you were given about your diagnosis, it is a good bet that your doctor realized you were shocked and may be calling for more info. Also, you may be able to get a copy of your path report from him for free. Good luck with your recovery and getting the info you need to be free of worry. Just know we are all here for you and are behind you 100%. Your sister... Tami S. in Florida
  #3  
Unread 02-14-2006, 04:53 AM
just told i had stage 1 uter. cancer, but don't know the grade. should i call the dr?

Hi sammaria,

I could not find your previous post to learn of the circumstances of why you had a Hyst, but thankfully the surgery discovered your cancer although no doubt a terrible shock to you

I suspect your Gyn did not elaborate information beyond your cancer stage although this lack of info is terribly anxiety producing for the patient, but likely wanted to defer this to the GynOnc who will be planning your further individualized care because you will have lots of questions regarding further treatment which is beyond the expertise of your Gyn to answer.

You certainly have every right to review your pathology report prior to seeing the GynOnc, but this may produce additional anxiety because you will not have the expert present to explain the specifics to you and how this will determine if any further treatment is indicated for you. But if you decide to review your report prior to your GynOnc appt., which will no doubt produce many questions about it's content and implications, try not to go searching for answers on the net or in related forums, but defer them to the GynOnc who is the only one who can provide you with the correct and appropriate answers to your questions.

Take Care
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  #4  
Unread 02-14-2006, 08:39 AM
just told i had stage 1 uter. cancer, but don't know the grade. should i call the dr?

Sammaria,

--See how quickly you can get into that gyn-onc's office, then call and ask for copies of the pathology report, the surgical notes and your discharge summary.

The doctor who performed the surgery should be willing to review this with you - either by phone or by appointment, especially if the gyn onc appointment isn't going to happen very quickly.

Write down all your questions and bring them to the gyn onc visit. It is a good idea to bring another person with you to that visit. Getting all the info you need can be overwhelming and it is useful to have another person to make sure you ask all the questions you intended to ask, and to review the information you get.

Dorrie
  #5  
Unread 02-14-2006, 11:36 AM
just told i had stage 1 uter. cancer, but don't know the grade. should i call the dr?

Hi Sammaria,
If your appointment with the gyn/onc is not very soon and you would feel better getting more information, I suggest you call the gyn and have him answer any questions you have now.
Stage 1 endometrial cancer often is cured by the surgery alone but different doctors may follow different protocols sometimes influenced by the stage and grade of the cancer.
I hope your appointment with the gyn/onc will be soon so you can get better peace of mind including re what may be recommended for follow-up care. At the least most women follow a "5 year plan" consisting of doctor visits every 3 months for the first two post op year, changing to every 6 months afterwards until 5 years post op.
Please come back and let us know when your gyn/onc visit is and how you are doing.
s
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