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Nerve damage from vaginal hysterectomy Nerve damage from vaginal hysterectomy

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Unread 02-23-2006, 07:58 PM
Nerve damage from vaginal hysterectomy

Hi everyone...I'm new here. Never thought I'd be in this situation. I'm only 38 yrs. old. I started having some minor bladder leakage and the gyn. told me my uterus was prolapsing and that was the cause. He said I needed to have it removed so I did. It was a vaginal hys. and now I'm in constant pain. My entire vagina burns constantly. It has been over a year now. This is so hard. I go to a pelvic pain institute in Philadelphia and they think I have pudendal nerve damage from the surgery. This has changed my whole life. I don't know what to do. Please is there anyone out there who can offer any hope?
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Unread 02-23-2006, 09:08 PM
Nerve damage from vaginal hysterectomy

Hi Looking4hope. I'm so sorry you have had such a difficult time. What have the Drs done to try to get you some relief? Are you on any medication? Have you had Pelvic Floor Therapy? Have they tried nerve blocks or trigger point injections?
I know that constant pain does change your life. I have ilioinguinal neuralgia which is also nerve damage.
I have been very lucky. I have a wonderful Gyn who has been very proactive looking for anything that will help reverse the nerve damage. He has sent me to physical therapy, a neurologist, a pain management specialist and he has even contacted a specialist half way across the country who performs neurectomies just to see if it's an option for me.
If you don't have a Dr that is really taking your best interset to heart you need to find one. You must not stop looking for a cure and you must not give up hope, there's a lot of living we have left to do!! 's
Unread 02-24-2006, 08:07 PM
Nerve damage from vaginal hysterectomy

Sorry to hear that you're having such a tough time. Have they tried any medications specifically for nerve pain such as Neurontin, Lyrica or Cymbalta? If not, this would seem like a good starting point. Many women on this board do have experience with these medications and you may want to do a search and dig up additional info. Just a thought...Best of luck to you!
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Unread 02-25-2006, 12:38 PM
Nerve damage from vaginal hysterectomy

Hello looking4hope!

I am very sorry to read about the difficulty that you are having after your hyster. Are you on any HRT? Has your doctor suggested a vaginal cream to soothe the burning? If you are not already seeing a URO/GYN I HIGHLY recommend that you make an appointment to get another opinion. A Uro/Gyn has additional training and education in WOMENS incontinence issues, prolpases & pelvic floor dyfunctions. Trust me on this...a Uro/Gyn is worth his weight in gold. Take care of yourself and keep us posted!
Unread 02-25-2006, 02:52 PM
Nerve damage from vaginal hysterectomy

There is a website concerning pudendal nerve (entrapment) damage. I am considering going to one of the few (that I can locate) PNE doctors for injections and possibly surgery. I cannot find any doctors who specillize in PNE in my local area. "Sitting" is the magic word in PNE! For 4 years I have described horrific pain to my gyn, pain management doctor and neurologists-they never mentioned the possibility of PNE. I found this condition on the internet. When I suggested it to my doctors they just ignored me. I don't fit the profile of a patient with my doctor on the pedestal! They would rather see the uncomplicated, trusting, quiet type!! I'm on a mission... I WILL get some answers...and not quit until I do!!
Unread 02-27-2006, 06:43 PM
Nerve damage from vaginal hysterectomy

Looking4, it has been 5 yrs since my vaginal hyst, and
I think when they pull all of that out your vagina it does
the damage, but I have had horrible vaginal pain, some
days it feels like fire creakers going off in there, I am
sure there is nerve damage and maybe adhesions too,
but I think those vaginal hysts are not what they are
cracked up to be, I had an enterocele and it took them
3 yrs to find out that I had that after my hyst, I've had 3 surgeries
since my hyst. And on top of all of it the hormones
compromise the situation. Do you have pain during
and after sex? Olive oil has helped some, I just put
some in there and it does relieve the pain, the lubrications just cake up inside me, I do use them when
having sex, because the olive oil is just too greasy, but
the next day I put the olive oil in there. I haven't been
as diligent as a lot of the ladies in trying to go to Dr.
after Dr. because I have lost my faith in them, and I
just don't have the time and money to keep going.
My primary care Dr. gives me the Hydrocodon and that
keeps me going, but I still have pain. Good luck I hope
you find some help.

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