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Pudendal Nerve Entrapment Pudendal Nerve Entrapment

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Unread 02-27-2006, 07:58 PM
Pudendal Nerve Entrapment

I'm on another goose-chase. I'm scheduled to go to a specialist in another city to diagnose and treat Pudendal Nerve Entrapment. I vascilate from possible adhesions to endocele to endometrosis and lots of other gynecological conditions. I've been evaluated for MS, interstitial cystitis, chronic inflammatory neuropathy, and back problems. I keep thinking that I am getting close to pain relief. I want to be able to enjoy life-return to work and travel....sex, too I'm not satisfied to go home and take pain pills for the rest of my life. I wish doctors would take the time and interest to look behind the scenes, to understand what their patients are going through. I'm looking for anyone who has been treated for nerve entrapment-successful, I hope!!
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Unread 02-28-2006, 08:03 PM
Pudendal Nerve Entrapment

I was treated for nerve entrapment successfully but I don't think it was the pudendal nerve. I had left-sided pain radiating from upper groin area out to my hip. I had to have an open exploratory surgery to both diagnose and treat the problem. The general surgeon located the trapped nerve and freed it from the scar tissue it was entrapped in. The surgeon also told me that another common problem is for the nerve in the inguinual area to be trapped in scar tissue. I also had a femoral hernia which they found and repaired. If you have had continued nerve pain but no follow-up diagnostic lap or exploratory surgery this would seem strange to me. However, for all I know, there's no surgery for pudendal nerve entrapment. This is just my two cents. Best of luck to you!
Unread 03-01-2006, 06:49 AM
Nerve Entrapment

Could you tell me what other symptoms you are/were having?
I've been having a strong pain in my left groin area that radiates to my hip and down my thigh. At times it is so bad that my leg gets weak and I nearly fall. I thought it could be some type of nerve entrapment, but I don't know if it is the Pudendal nerve.
Any thoughts would be appreciated.
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Unread 03-01-2006, 07:21 AM
Pudendal Nerve Entrapment

My pelvic pain feels like it is underneath my bilkini incision line. It started after my hysterectomy several years ago. I have described it to doctors as feeling like something is sewn to the abdominal wall-real tight stretching. When I standup and walk or lay down the pain goes away. Any sitting position, like driving stirs up the nerve spasms. My new doctor is a specialist in Pudendal Nerve Entrapment. He gives injections into the back which should help the pain. If not, he does surgery. Take a look at "PNE"-Look at Google and you will find information. When I read the details, I knew that the symptoms are exactly what I have. Anyway, that's the path I am on. By the way, I have had weakness in my legs-started a few months ago. Yesterday, I fell and sprained my ankle. At least it takes the focus off my pelvic pain temporarily! (have to stay in bed for a few days).
Unread 03-01-2006, 01:19 PM
Pudendal Nerve Entrapment

could someone explain what the pedunal nerve is? does it run into the tailbone region at all? thanks..betty
Unread 03-02-2006, 09:39 PM
Pudendal Nerve Entrapment

There are bunches of nerves that run from the spinal cord around to supply sensory information to the organs in the pelvic region (not just in women, I was surprised to find out). The Pudendal nerve starts about the area under each hip and it passes through a canal (like a tunnel). If the nerve gets pinched it shoots pain. It can get wedged between ligaments. This condition happens a lot in bicylists (I remember having a numb bottom!!) and after childbirth (like pushing out a really big baby) and abdominal surgery (do ya think???). Some pain management doctors give cortisone injections (low in the back) but sometimes it gives pain relief and sometimes not. There are only a few doctors in the US who are trained to do surgery. Don't even ask where they cut....OK...through the muscles in the BUTT!!!!!!!!Oh, that makes mine hurt just to think of it. If you have trouble sitting and driving and get relief sitting on the toilet seat....ask your doctor or search for one who even remembers where the Pudendal nerve is!!
Unfortunately, it is not easy-at least for me to find a doctor who treats PNE, does laproscopes, checks for IC, rules out cancer, acts compassionate , refills pain medicine and returns phone calls in a timely manner. Oh, well, it's only PAIN!!!!!!! Linda
Unread 05-12-2006, 02:01 PM
Pudendal Nerve Entrapment

My name is Effie and I have had 5 surgeries since Dec.of 04, hysterectomy, because of pain. I have now been diagnosed with PNE. I have had my spine fused, exploratory, adhesion surgery in Germany (2), and now know that I was right along time ago, the internet is wonderful. PNE is not the news I wanted to hear. Long, long, story, but I too can't sit long, stand long, or walk, weak in the left side with pain on that side. I thank the Good LORD I dont have it on both sides. I am a teacher and I haven't worked a day since my 1st surgery. I believe the doctor made a mistake, but all I ever wanted is my life back. I also suffer with a very painful rash, which drs now believe is Vicryl sutures still inside, I had 2 nodules removed a yr after my hyst and half of my rash when away. I am 46, fun loving and ready to have my life back. Oh, how I wish I could just be me, the me I used to be. I hate the depression that comes with the pain. I have tried it all, a week ago injection in the vagina to deaden the nerve, didnt work. I go for a nerve block, but I love my doctors, they are all working on me, along with the PT. They have such compassion, haven't seen a lot of that. I have been from Dallas to Germany in search of relief of my pain. God Bless anyone who suffers with this, it is awful. People look at you and say " You look great!" but that sure not how I feel. My colon is herniated into the rectum muscle and I think that is where I am stitched and there is where the PNE lies. I see a urogyn; never heard of that kind of doctor, but I have researche, the teacher in me, every piece of info I can get and thats where I miss I would have gone a year ago. Please let me know if you know anyone who does the surgery in US or France, I am interested.

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