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Fibroid Confusion Fibroid Confusion

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  #11  
Unread 03-03-2006, 05:30 PM
Fibroid Confusion

I have many of the same symptoms (cervical fibroid, scheduled for TAH 03-28-06). I'd never heard of fibroids until my annual GYN check-up this January (boy have I had a CRASH course since then!!!). I've had symptoms on and off for several years (i.e., horrible cramps, clotting, heavy bleeding, cycle irregularity, back pain, on and off anemia, feeling of fullness...) but here's the kicker...thought it was just the aging process affecting my cycle (I'm 48). In fact my long-time OB-GYN said as much a year or two ago. This doc left the area over a year ago, so I began seeing one of his colleagues in the same practice (already knew him). When I relayed cycle events and the news that my mom had been recently diagnosed w/Ovarian cancer, my new GYN wanted to do addt'l testing, starting w/a pelvic sonogram and TADA...fibroids, enlarged uterus and some cervical scarring(?). There's been a few times since deciding to have the TAH that I've wondered if I'm making the right decision and them BAM!!! my cycle hit again w/vengenace and those doubts went POOF! I know I've found hystersisters very helpful...I'm guessing you will too! Best of luck to you!
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  #12  
Unread 03-03-2006, 05:41 PM
Fibroid Confusion

Hi Emily,
I had a myomectomy when I was 26 years old. I only had one big firbroid and the surgeon was able to save my uterus in the event I'd want children. It worked for 24 years. The pain, heaving bleeding, clotting and the other symptoms went away. Only in the past 6 months have I experienced pain with another new fibroid that we didn't even know was there. I don't have the heavy periods just a very fast growing invasive alien tissue in my uterus. If I had to do it all over again I would do the same thing. I guess it will depend how bad the state your uterus is and if they can remove just the firbroids without damaging the uterus. I went into my first surgery knowing it could end in a hyst. I was lucky. You need to make some decisions based on your age, your health and what saving your uterus would give you. I wish you well.
M.
  #13  
Unread 03-03-2006, 06:37 PM
Fibroid Confusion

Hi Emily,
Well I was feeling like you. I had symptoms for the last 3 1/2 years. Unfortunately I went to a gynaecologist who had little sympathy and literally "stuffed" me around for so long that I would not go to her or anyone else. I put up with heavier and longer periods, horrendous clotting. Being confined to the house for days, and the final straw was when I had to have an iron transfusion, because I literally could not get out of my own way I was so exhausted. I went to my dr. who got me into a wonderful lady gynaecologist, and within days I was in hospital having a vaginal hysterectomy. It has just been over two weeks, and I feel amazing. Knowing that I will never have the pain, the bleeding, the heaviness, being able to plan ahead is so wonderful, I am bursting out of my skin. Of course, everyone has to come to their own decision, but I am so, so glad that I made this one. I will work through the next few weeks, and then be able to get on with my life. It just doesn't get any better. God Bless xx
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  #14  
Unread 03-03-2006, 06:57 PM
Fibroid Confusion

I had many of the same symptons. I am 4 months post op and feeling better than I have in a long time. Take care of yourself and investigate your options.

LA
  #15  
Unread 03-03-2006, 07:24 PM
Fibroid Confusion

Emily,

I had progressively worsening bleeding due to multiple fibroids. My periods were regular as far as duration and cycle, and I had clots, but not the back pain and pressure that you describe.

I had a hysteroscopy last May to shave fibroids that protruded into the uterine cavity and to remove a couple of polyps. My bleeding was relieved for a couple of months and then returned to full force. I had a Uterine Artery Embolization procedure in October and it worked great! My uterus and fibroids shrank and bleeding returned to within normal limits (1/9th of what it was). I felt "normal" again. Unfortunately, 3 months later, my uterus could not detach/pass a degenerating fibroid, resulting in progressively worsening symptoms (discharge, cramping, bleeding, fever). I had a hysterectomy five weeks ago today, to avoid the increasing probability of uterine/pelvic infection or hemorrhage.

If I had to do it over again, I would still chose UAE over hysterectomy (my UAE complication was a 1 in 300 event). Not everyone is a candidate for UAE, depending on where your fibroids are located and uterine anatomy, but it may be something to check out. It's not as risky as hysterectomy and recovery time is two weeks.

As Mary ("HistoryLady") said in an earlier post, it's hard to go forward with surgery when it's a quality of life issue and not an emergency. It took me many years to address my fibroid symptoms. Once I heal from this surgery, I'll probably wish I addressed things much earlier. Good luck with your decision(s).
  #16  
Unread 03-03-2006, 08:16 PM
Tired

I love this web site. I am amazed how many of us have the same problems. I helps to know I am not alone .I was wonding if anyone is really tired before the surgery? I have to go to bed at 9 so that I can get thru a day at work. I started taking Multi vitamins last week. Soo weak I can stand myself . Please let me know if anyone has ideas. I still have 4 weeks to for D day.

Thanks so much
  #17  
Unread 03-03-2006, 08:40 PM
Fibroid Confusion

Hi there,
Well as you can see from my posting I was exhausted. Would it help if you saw your dr regarding iron supplements. I was having to go to bed by 8.00 every night to try and get through the day - it didn't seem to matter how much sleep I had though, I was always wiped out. B vitamins certainly helped a little, but in the end my dr. suggested the iron transfusion as a way of keeping me going until my operation. Hope you can find something that works for you. Hang in there. Love and
  #18  
Unread 03-03-2006, 08:47 PM
Fibroid Confusion

Should I be afraid of iron. I dont want to be consitipated and go for surgery. I having a hard time now going as it is. I keep reading about the gas.
  #19  
Unread 03-03-2006, 09:49 PM
Fibroid Confusion

Certainly in some people, in doesn't help constipation. I think everyone is different, but you know what would be best for you. I had a lot more success with the transfusion - I felt so well within a few days. Be guided by your doctor, but you shouldn't have to feel like this before surgery. Good luck
  #20  
Unread 03-04-2006, 09:13 AM
Fibroid Confusion

I would be careful about iron supplements as they can constipate you. You don't want that before surgery. I can't take iron supplements as I'm allergic to them. I get my iron from sources of cooked spinach and eggs. Beef (good beef) is a good source of iron. I had my blood tested because my doctor thought my iron might be low as I'm not a red meat eater. Iron levels are very good so I must be getting it from my foods. I eat cooked spinach twice a week. Try having those a bit more of those types of foods before your surgery date.
M.
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