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  #1  
Unread 03-29-2006, 02:32 PM
Adenomyosis

Those sisters who know they have this...how was it diagnosed, and what are your exact symptoms please. I read a very interesting article yesterday and am curious. Thanks.
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  #2  
Unread 03-29-2006, 02:48 PM
Adenomyosis

My doctor is 95% sure that I have this because my uterus was extrememly boggy and enlarged when I had a lap and I have extremely heavy clotty peroids, constant back pain, cyclic pelvic pain. I also have a history of c-section.
  #3  
Unread 03-29-2006, 02:55 PM
Adenomyosis

my dr. suspects, but won't know till we do the Hyst. She did say we could do an MRI, and that would find it....I opted out of lying in a thumping tube for any period of time...thanks anyway.... I get chills just thinking about it.

T.
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  #4  
Unread 03-29-2006, 03:24 PM
Adenomyosis

Lev: I was having cramping just about everyday and it was progressively getting worse. My doctor did an ultrasound and noticed my uterus was enlarged. So then I had a laporoscopy and a hysteroscopy and it confirmed that I had adeno and then he also found endo! I had my hyster January 4.
Good Luck.
Deana
  #5  
Unread 03-29-2006, 03:34 PM
Adenomyosis

I suspected adeno after reading about it on hystersisters. I asked my Dr about it and there was not much we could do about dianosing it. Due to some metal in my body, I could not have an MRI. During manual pelvic exams, the dr always said the uterus felt globular. The transvaginal ultrasound did not reveal anything. But it was confirmed after the hyster. Extensive adeno.

My symptoms in the beginning (2002) were:
Periods started getting longer and the end was always a day or two of dark brown discharge (tell-tale old blood.)
Severe cramps that could not be relieved with tylenol, advil, aspirn, motrin, or codine. Similar to final stages of labor.
By August I was bleeding and in pain every day, seven days a week. This continued until my hyster in Feb.
  #6  
Unread 03-29-2006, 03:48 PM
Adenomyosis

  Quote:
Originally Posted by dlpw3zk
I suspected adeno after reading about it on hystersisters. I asked my Dr about it and there was not much we could do about dianosing it. Due to some metal in my body, I could not have an MRI. During manual pelvic exams, the dr always said the uterus felt globular. The transvaginal ultrasound did not reveal anything. But it was confirmed after the hyster. Extensive adeno.

My symptoms in the beginning (2002) were:
Periods started getting longer and the end was always a day or two of dark brown discharge (tell-tale old blood.)
Severe cramps that could not be relieved with tylenol, advil, aspirn, motrin, or codine. Similar to final stages of labor.
By August I was bleeding and in pain every day, seven days a week. This continued until my hyster in Feb.

I read something yesterday..it was like reading something I had written word for word, so it wouldn't surprise me if after the hyst it shows up. I never knew dark brown discharge was a tell-tale sign? (any references to this anywhere?) I can relate to everything you say above too dlpw3zk.

Nausea anyone? I have it so bad during the daytime the last few days - worse than mild nausea I have had intermittently for some months.

Thanks for all your info ladies
  #7  
Unread 03-29-2006, 04:23 PM
Adenomyosis

I suspected adeno after reading about it on hystersisters. I asked my Dr about it and there was not much we could do about dianosing it. Due to some metal in my body, I could not have an MRI. During manual pelvic exams, the dr always said the uterus felt globular. The transvaginal ultrasound did not reveal anything. But it was confirmed after the hyster. Extensive adeno.

My symptoms in the beginning (2002) were:
Periods started getting longer and the end was always a day or two of dark brown discharge (tell-tale old blood.)
Severe cramps that could not be relieved with tylenol, advil, aspirn, motrin, or codine. Similar to final stages of labor.
By August I was bleeding and in pain every day, seven days a week. This continued until my hyster in Feb.


Are you living my life?? LOL...that is how it is for me. My dr suspects adeno as well. My uterus was very big as well yesterday during my pre-op and has been. I was also very tender when he just pushed on my tummy and he said that I shouldn't have been. I complained about the prolonged browm bleeding to my PCP and she said I had a palop on my cervix and that's what it was from. Well, when my gyno examined me he said there was nothing on my cervix, it looked great.
I think another sign I have just found out is pain after orgasam when the uterus contracts. I am so with you on the final stages of labor. That, at times, is the best way I can describe the pain to dh.
  #8  
Unread 03-29-2006, 04:24 PM
Adenomyosis

I have super heavy periods, with huge clots, extensive pain, that isn't helped by anything at all- I often have unexplained back pain, and Dr. said my uterine lining was thick, as well as my uterus being enlarged, but she can't make a real diagnosis till after the fact. My Lap didn't show anything either, but she still suspects.

T.
  #9  
Unread 03-29-2006, 04:37 PM
Adenomyosis

  Quote:
Originally Posted by queen74
I think another sign I have just found out is pain after orgasam when the uterus contracts. I am so with you on the final stages of labor. That, at times, is the best way I can describe the pain to dh.
Ditto! Sex etc doesn't hurt at the time, but oh man, after the orgasms...for the last 3 days I have been giving birth! lol Seriously though...it's killing me and I so feel like puking. Not sure if that is real nausea or just nausea as a result of hurting for so long.
  #10  
Unread 03-29-2006, 05:19 PM
Adenomyosis

I just scheduled my hysto for August .
My periods were heavy and lasted 10 days . With alot of bleeding , to the point that i gush when i stand up.Clots the size of a regular size egg. Nausea around some foods, but alot of PMS ! My husband is praying that goes away. haha
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