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Living with Rectocele Living with Rectocele

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  #1  
Unread 04-17-2006, 11:17 AM
Living with Rectocele

Three years ago I had a hysterectomy for a prolapsed uterus. It wasn't long after that when I was told I had a cystocele and rectocele - the rectocele being worse. I've been doing kegals regularly for three years and I don't think they did a bit of good. Just thinking about surgery for the rectocele is scaring me more than the hysterectomy, and I'm just not able to take six weeks off from work for recuperation. So, I guess my question is...is there anyone who has been living with a rectocele for years and has not has surgery? How bad can it get? Is there anything I can do to stop it from getting worse and just be able to live with it? I'm hoping for some new technique to be developed with laparoscopy so as to shorten the recovery time, but I searched around the web and haven't seen anything about this. Any advise would be most appreciated. Thanks for listening.
Barb
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  #2  
Unread 04-17-2006, 12:32 PM
Living with Rectocele

Your situation is not uncommon. I too had a hysterectomy for prolapse. I was supposed to have an anterior repair (for cystocele) and a posterior repair to tighten my vagina (no rectocele at that time). I had complications and the anterior repair was not done but the posterior repair was. I later had a Burch bladder suspension. Very shortly afterward I developed a rectocele. Operating on one thing often causes another area to show up, or maybe it was already there and just became problematic once the other repairs were done. It really makes sense to be completely evaluated and have everything done at once but most doctors do not do this.

I opted to have a rectocele repair done through the rectum by a colon-rectal surgeon. I can honestly say there was very little pain involved. I had the surgery late on a Thursday and went back to work on Tuesday. I realize that this is not the usual situation. Many women who have the repair through the vagina say that it is extremely painful. I do not know that a six-week recovery would really be required, though, depending on what kind of work you do.

I am not sure laparoscopy will be the future of this repair, though, because of its location.

I would be remiss if I did not point out that you would probably best be served by seeking out a urogynecologist. You may want to have a discussion about the cystocele at the same time.

Best wishes to you.
  #3  
Unread 04-22-2006, 09:31 AM
Living with Rectocele

bonnibees, it is unclear if I have a rectocele, and I have had an enterocele repair about 2 yrs ago, and I
am still in chronic pain, the repair was a success, but
I am still in pain, and there is a difference of opinion
on whether I have an rectocele or not, and I haven't
pursued it diligently because I am afraid of any more
surgeries, have had 3 since my hyst which was done in
2001. But I feel sure if they cut into my vagina I will
never stop having pain from it, my vagina is so sensitive
already. So it caught my attention when I saw that yours was done thru the rectum, do you know why they
did it that way, I have never seen any other posts with
this technique, is this something new? Can you tell me
a little bit about it?
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  #4  
Unread 04-22-2006, 01:34 PM
Living with Rectocele

Hello All!
I just want to step in here and reiterate bonniebes recommendation to seek out a URO/GYN. My repairs were done by a URO/GYN alittle over a year ago and I have never felt better in my life! He did 3 repairs and a vault suspension vaginally. I wasn't able to get comfortable unless I was lying down - for the first few days. I took my Percocets for 2-3 days and that was all. I do recommend asking your doctor about taking Colace and a laxative as soon as you get home so you don't strain. I was out of work for 4 weeks, then I did half days for 1 more week. The recovery from the repairs was SO much easier than the hyster....slt, you should ask your doctor about a vaginally estrogen, it can help with the sensitivity.

Take care of yourselves and let us know how you make out!
  #5  
Unread 04-23-2006, 06:14 AM
Living with Rectocele

barco,
I have been living with a rectocele for about 5 or 6 years. It got worse after my hysterectomy surgery. Now it's bothering me a lot. After all the exhaustive tests about 4 years ago, the colorectal doctor told me that I have trouble relaxing when going. So I went to PT for 6 months and nothing changed, despite my doing everything I was supposed to do. So the doctor told me that when I feel I can't completely empty (which is everyday) to give myself a warm water enema and that has worked for the last 4 years.
Now I was given that advice as I was having 'accidents' where I couldn't empty and I would be out and about and the urge would hit me and I wouldn't be near a bathroom - gross. Since I started the enemas - I haven't had one accident.
I still do the rectal and pelvic kegals faithfully, but now I can't control gas at all and sex can only happen if I make sure I am empty - otherwise GAS. It is so embarrassing, I would rathar just not try.
I am ready to have more testing done to see if it is my rectocele that is worse or my sphincter that is not working correctly.
Oh the other thing I learned at PT was that your knees should be higher than your bum. So if you need to use a phone book or stool to make that happen, so be it. They said that our toilets aren't designed correctly to help us go. Also I learned that fiber is really necessary, when I got over 20g per day, everything was soft and I wasn't so constipated. Also I kept a food diary and found out which foods made me constipated - I just don't eat them anymore.
I hope to find out soon if I my rectocele is a candidate for surgery and I will let you know. I am not risking a colostomy bag to have this fixed (bkz of previous sphincter repair). Good Luck to you.
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