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I thought I was alone in my pain! I thought I was alone in my pain!

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  #1  
Unread 04-18-2006, 08:35 PM
I thought I was alone in my pain!

I had a TAH BSO 2 years ago as well as bladder repair and insertion of a pelvic sling. I wish that I had never had it done! I have experienced ongoing abdominal pain and discomfort especially on the right side. It has gotten much worse in the past 6 months.

I am a size 8 but have had to cut the elastic in all my pants because of bloating and abdominal distention. And on top of that, I have gas all the time! (How embarrassing!) By the end of the day, my lower abdomen (upper pelvic) is aching. I have been working very hard at eating the proper foods and doing some form of exercise each day (walking or yoga). Three weeks ago I had a laparoscopy done and had one adhesion cut. I had hoped that this was the cause of the pain but it has not helped. I am headed back to the doctor this week but I am getting very discouraged. Is there anyone out there who has had this similar experience?
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  #2  
Unread 04-19-2006, 04:14 AM
I thought I was alone in my pain!

you are not alone.
i stearted with a pain in my right side last Sept and am waiting for op for adhesions.
I was determined to get back to a good weight and getting rid of my tummy. i started off doing aaerobics and had an exercise bike for christmas but a couple of months had to give up as i was too tired and the pain was terrible even when i went for a strenous walk.
I have been eating healthily though lots of nuts and seeds fruit etc and feel i have lost some weight but my tummy still feels like its a bloated mess at times. I bought a pair of trousers last year and couldn't fit them a few weeks later .I got them on yesterday and felt great till the button popped after going out for lunch!!
I'm too worried about doing tummy exercises though.
  #3  
Unread 04-19-2006, 08:16 PM
Thanks Minty!

I know exactly what you mean about the pants! I bought several pairs last fall (elastic waist) and they were all comfortable until a few months ago. The slightest pressure on my waistline and I am in agony! It is like my intestines swell up then. (Perhaps the sack dresses or Hawaian mumu's will come back in style). I have a desk job and can get up every 10-15 minutes and move around, but most of the time my lower abdominal area just aches. By night time, all I want to do is sit in a chair with my legs up and an ice pack on my abdomen.

After reading many of the posts on "The Road Less Traveled", I wasn't sure if I should be relieved that I wasn't alone with this problem or depressed that so many women had issues after their hysterectomies. That is not something that I had ever heard! Everyone kept telling me that I would feel so much better.

I, too, have been reluctant to do tummy exercises.
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  #4  
Unread 04-21-2006, 06:37 AM
I thought I was alone in my pain!

Hi sweetie!
I too, deal with pain about 1.5 yrs after my hyst. It is very obviously my bladder ( I have a post floating around here somewhere called "update on me - bladder" or something like that ). I will go may 11 to see a specialist at Mayo, so i haven't gotten any answers yet.
I guess I just wanted to say that I understand your pain. My biggest thing (and this may be from my presacral neurectomy - removal of the nerve connecting uterus and bladder to spinal cord - thought to be great for pelvic pain mgmt - NOT in my opinion) is when my bladder is getting full, or even has urine in it, my abdomen swells and is very painful. That's the only way I know that I have to urinate - I don't have the "signal" that tells me "oh, i've gotta pee!". I've lost a ton of weight since my hyst, but I still have that 6mos. preg thing going on because of my swelling. It's weird, like hard to the touch and very tender and sensitive (just the skin on my abdomen, if someone touches it, it's like OW!).
Like I said, I haven't gone to Mayo yet, so I don't know what, if anything, can be done, but I have lived with this since Jan 04 (that's when the PSN was done during my laparotomy) and it got worse after my hyst (Nov 04) so I know how horribly frustrating and depressing it is, and i understand how you feel embarassed. You shouldn't but I get like that too often. Cause my thing is my abdomen swells up, I waddle down to the restroom, urinate, and my stomach is flat again. And it's so obvious to everyone around me! I try to make jokes about it, but I'm just tired of it, and the pain - I just want to let you know that I understand and you are definately NOT alone in your suffering. I hope you and your doctor can resolve this problem, because it is very real and disruptive to your life and needs to be dealt with. No one should have to be in pain, you know?
I hope things get better for you! We're all pulling for you and please let us know how the upcoming doc appt. went!
~Christina
  #5  
Unread 04-23-2006, 08:55 PM
radical

Hi Norwegian,
I had a TAH/BSO 15 years ago...(I was only 22)
Since then, the pain and the swelling has been getting worse by the year!
I can totally relate to what you said about the pants!
I spend my days in nothing but track-suit pants...
The days of wearing jeans are long gone...

YOU ARE DEFINATELY NOT ALONE IN YOUR PAIN.

I have been going through "all of this" for 20 years all up, and have found out alot of information from this wonderful site, and the lovely ladies here.

I still suffer from chronic pain daily, and it has been getting worse over the years.
I had the TAH/BSO for endometreosis and massive amounts of adhesions..........
But, if I knew then, what I know now, I would NEVER have consented to the operation.

I have the endo back again due to estrogen dominance, and the adhesions have come back with a vengence!
So, I feel that the whole hyster was not justified in my case.
I have found out that the estrogen "feeds" the endo and the adhesions...
So, I feel worse today than I did then.

I get the same symptoms as you do.
I'm not too bad in the mornings, but by mid afternoon I'm starting to bloat, and by night time... AND PAIN...
I also have to take pain meds every day, just to make it through!

Every time we are operated on for adhesions, there is a big chance of them reforming and getting worse...
Could this be what you are suffering?
Adhesions are VERY NASTY AND PAINFUL things.

I wish I had the answers for you, but I just wanted you to know that you are not alone in your pain,
and I hope and pray that things get better for you.

Sending you as I really do know how you feel.
GOD BLESS YOU.
Love Radical. xxx
  #6  
Unread 04-24-2006, 10:58 AM
I thought I was alone in my pain!


Yes, I can relate. My poor has never been the same. I still have to buy my underwear two sizes larger to allow room for the swelling. I mostly live in elastic waist pants, but have managed to find a few pair of regular pants that I can wear *occassionally*.

I've had several surgeries and many tests, none of which has been conclusive in pointing to the ultimate answer to the problem. The best decision I have ever made was to see an Osteopathic doctor. I did have some relief for awhile after I was diagnosed with Candida and many food and chemical allergies. Unfortunately, my body rebelled again and I am now doing accupuncture.

You're not alone Keep looking for answers. My journey has been a long one, but I am not going to give up trying to find answers.

  #7  
Unread 04-24-2006, 04:38 PM
I thought I was alone in my pain!

I am so glad that I'm not the only one who has a pain in their right side and swelling! (not that I would wish it upon anyone!!!!!!!!!!!!)
This is the first time I've ever posted anything on any web site, but I am at my wits end!
I had my hysterectomy last September, The op went well and I took it easy when I came home....I was put on HRT patches after 6 weeks. Then the only way that I can describe it was as the feeling started to come back in my belly I got a dull ache in my right hand side, after several visits to my GP I was sent to the hospital for a barium enema, the results came back as everything was fine, but the pain was still there! I have also been having trouble with mood swings and tiredness. So when I last went back to my GP I was offered a course of antidepressants. I turned them down because I feel that I am not depressed! I have been given an appointment with a counsellor on Friday to talk about my feelings!
I was beginning to think that I was going mad until I came across your letters, I'm not sure what I'm going to do next but I know that I'm not alone with this bloating and pain.
Thank you :
  #8  
Unread 04-24-2006, 07:24 PM
I thought I was alone in my pain!

The support that everyone who has posted a reply to my message is phenomenal! Thank you so much. I just feel so badly that there are so many of us that are suffering. Is it that women have suffered in silence for so many years or are there increasing numbers of unnecessary hysterectomies with complications afterwards?

I had an appointment last Friday with my ob-gyn doctor. He is at a loss as to what more he can do for me and referred me to a physiotherapist. My understanding is that a physiotherapist helps with pain management. Darn it -- I don't want to manage my pain -- I want to get rid of the cause of it! I have not made an appointment there yet. I was most interested in Kim M's response that she had gone to an Osteopath. My sister suggested that over the weekend and I am going to try it. Perahps a manipulation of some sort will "pop" what ails me back in place --- or out of place, which ever! I will make sure that he knows my history and what all is going on.

I don't have issues with my bladder like Christina does. Good luck on your appt at Mayo! There must be something that can be done for you! (I love the swelly belly pac man figure) That is what I feel like right now!

Lally, hang in there! You aren't alone! I know that when I found out that I wasn't the only one with these issues, it made a big difference in my emotional outlook. The pain is still there but at least I know now that I'm not imagining it.

I have told my husband about how totally awesome all the women are and how much emotional support they have given me. He is concerned about me but in trying to keep it light, he asked if I was going to check in with my "belly aching club"? It took me a second to realize that he was being "punny"! What a guy! We all truly do have bellies that ache!
  #9  
Unread 05-02-2006, 09:54 PM
I thought I was alone in my pain!

I am 9 months post op and continue with daily lower right sided abdominal pain. Thankfully I have a wonderful Gyn and we just keep on searching for answers. I have tried chiropractic adjustment, pelvic floor therapy, seen by a neurologist, a pain management specialist and had 2 nerve blocks. My Gyn is communicating with a neurosurgeon who specializes in ilioinguinal neuralgia which is what a few of the Drs believe is the cause for the abdominal pain. It is difficult to live with pain on a day to day basis. I frequently get frustrated because people feel that my surgery was so long ago that I should be fully recovered. I am trying to make a conscious effort not to talk about my symptoms, pain or treatment because I feel that I've been classified as a complainer. I definitely see it when someone asks me how I am and if I don't answer with the common, "I'm fine", I see how quickly the subject is changed.
Michelle
  #10  
Unread 05-08-2006, 08:35 PM
I thought I was alone in my pain!

I'm laughing myself silly over Norwegian's hubby's phrase "Belly aching club"! That just made my day (which has been crappy and painful)!!!

I haven't posted in the "road less traveled" since I'm in denial that a I'm in pain everyday and being told that I can't live (or don't need to live) in pain everyday. But maybe I'm not in denial, I'm just looking at the reality of all the pain that a lot of us go through every day and thinking to myself that LOTS of people DO have to live with pelvic pain which can be debiliating. (I'm tired of people telling me that pain isn't normal-maybe I shall refer them to this site)!

Anyway, thank you hubby for the laugh!

And I do hope that someday huge funding will be alloted to pelvic pain and some definative answers can help us! Best wishes to each of you.
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