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Desperately in need of guidance...any have post hyst surgery for adhesions? Desperately in need of guidance...any have post hyst surgery for adhesions?

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Unread 04-28-2006, 04:37 PM
Desperately in need of guidance...any have post hyst surgery for adhesions?

Hi, sisters.
Please accept my apology in advance for what is sure to be a long-winded e-mail.

Severe endo, lap in Jan. '05, right ovary and tube out in April '05, LAVH with left ovary and tube in July '05. Still in constant pain, and for the first several months my gyn told me I had to give myself time to heal. She finally admitted in February that I probably had scar tissue and new adhesions on my colon, referred me to a pain doc, and said if it didn't help within a few months to call her and she would send me to a general surgeon for a consult. Pain specialist poked around, said I have scar tissue all over my stomach walls, got me started with water-walking and yoga, and prescribed lots of percocet and flexaril, both of which I hate to take. Also, I have seen a urologist for what I thought were constant UTI's, only to find out that I now have interstitial cystitis.

The pain is only getting worse, and work-wise I'm part of an emergency response team for child abuse in my county, which means that if they can't call me anytime of the day or night and know that I can be there in ten minutes, I'm no good to anyone. I am scheduled to see a surgeon for a consult on Tuesday. So here's my question: have any of you ladies had post-hyst surgery for scar tissue and adhesions? Is it laparascopic? Outpatient? What was the recovery time? What were your outcomes? Was it worth it? Sometimes I can't even stand up straight because the pulling is so bad down there and it's so excrutiating.

Please give me some advice and guidance, ladies. I'm so at my wit's end.....I've missed half this week of work and had to be practically carried to the car and driven home on embarrassing! I thought the hyst was the end of this, and I'm so tired.....

Thanks for letting me whine. And thanks in advance for your responses. I just need to know that if I have another surgery, it's actually going to do some good.
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Unread 04-28-2006, 04:48 PM
Desperately in need of guidance...any have post hyst surgery for adhesions?

hi ya, i have had adhesions many times. I am hoping that i don't get anymore after my hyst but since i am prone to them i probably will. so what i can tell you is that they usually plan on it being done laproscopically but do not know if it will work that way until they get in there. case in point, my hyst was supposed to be a lavh/bso but because of my severe adhesions (severe dense pelvic adhesions and severe dense abdominal adhesions) he was not able to do it laproscopically and had to go in through my c-section scar. If you are in that much pain then i would say go for it. I am part of this other board that is about adhesions and one lady on there told me about a spray barrier that she had done on her last surgery and it prevented it from coming back, they went in to check and see if it worked. maybe you could ask about that. she said that she had her surgery done in europe. i wrote her and asked her the name of it but the forum is very slow about posting the emails, i guess they are having difficulties with it. i should be hearing back from her soon. if i have to have another adhesion surgery i am going to ask my dr about it. in the past he has used barriers but they didn't work on me . i feel like i am already getting adhesions because of the way my tummy feels when i poke it. like i can feel them. if that makes any sense LOL. i also have IC and this hyst has really aggrivated it. are you taking elmiron? and do they have you on a bladder spasm medication?. anyway i really hope i helped and please keep me posted.
Unread 04-28-2006, 05:08 PM
Desperately in need of guidance...any have post hyst surgery for adhesions?

Hi Christina,
Thanks so much for your quick reply, I'm an absolute wreck tonight and it really helps me to have others' support. I'm sorry to hear about your situation with adhesions, and I know exactly what you mean about being able to already feel them.....I could tell a few weeks after my hyst that I already had stuff going wrong in there, just couldn't get my gyn to believe me.

I just started elmiron a few weeks ago for the IC, and have been on hysocyamine for bladder and bowel spasms ever since the hyst. I only take it once a day instead of twice causes such severe dry mouth that I can only stand to take it at bedtime.

I am praying that on Tuesday the surgeon will say, "Hey, let's cut you open next week and get all that nasty scar tissue out of there and you'll be all better!" Lol.....yes, maybe that's a little far out there.....but despite how low I'm feeling right now, I do have a tendency to look on the bright side. Most of the time, anyway.

Thanks again, Christina. I will be keeping you in my prayers and hoping things work out for you!
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Unread 04-28-2006, 07:07 PM
Desperately in need of guidance...any have post hyst surgery for adhesions?

hi kristen--

As of this moment i don't have adhesions....This was the case mostly for the hysterectomy for me. Scar tissue had grown so much that it stuck my uterus to my abdominal wall. I can relate to the pain you are experiencing. I'm sorry that you are still in alot of pain.

My doctor did warn me though, since i had so much scar tissue from 3 previous c sections that i could develop them later on. He basically said that pretty much when or if this should happen i'm SOL...pain management classes/etc. I told him to go ahead and do the hysterectomy, and i have to say...i feel loads better.

Sorry I can't really help you now though....but know that i sympathize with you and hope you get the help you need. Good luck.

Unread 04-28-2006, 08:04 PM

I had adhesions removed four weeks ago today. It was done with a lap. I am still in constant pain. It really is worse than it was before the lap. Different, but worse. Adhesions were removed from the bowels, so that pressure is gone, but my entire abdomen hurt. Like a huge bruise. I had four new holes put in me, this is almost 3 years out from my TAH/BSO. I hurt from one hole to the next. I asked the dr at my two weeks post op about raking leaves and vacuuming and he said to start right away, the more movement the less chance of them re-forming. Well, I think I just hurt myself more with all the physical labor, plus working full time. But what are we supposed to do, lay around all day? As it is I gained 10 lbs in the last month from laying around. I am going to my MD on Monday to ask about pain management. Mentally, I am having a hard time dealing with all this. I have gone from doctor to doctor, been told all sorts of things from bladder cancer, to scar tissue, to adhesions. I can't take anymore. I am falling into a major depression. I truly hope you get relief from your surgery. I am not trying to discourage you. But everybody tends to sugar-coat things, and all I ever wanted was honesty. If I had know then what I know now, I wouldn't be in this boat. I know I sound negative, and I am sorry. I am still searching myself. I wish you luck, and tell you not to give up. Keep strong, it is very easy to give up.
To answer your question, it was one day surgery, came home that night, even though my bladder didn't :"wake up" for hours and hubby had to go and get me Depends. I can't believe they would send me home without my bladder working, but they did. They did an ultrasound in the hospital said I was full to the top with urine, tried to cath. and hardly anything came out, sent me home telling me if I couldn't urinate in 24 hours to come back through the ER!
So, there is my adhesion lap story in a nut-shell. Would I do it again, I probably would have to, because of the risk of having my bowels rupture due to the adhesions. Did I have the outcome I was praying for, no.
Unread 04-28-2006, 10:25 PM
Desperately in need of guidance...any have post hyst surgery for adhesions?

Have you checked out or If not, I encourage you to do so in order to get support for the IC.

Sorry about the diagnosis..I'm in the same boat as yourself so feel free to PM or email me anytime you need.

Take care
Unread 04-29-2006, 01:41 PM
Desperately in need of guidance...any have post hyst surgery for adhesions?

Thank you for the messages and support, ladies. What'snormal, I'm so sorry for your troubles and will be keeping you in my prayers. I just can't believe they sent you home with your poor bladder in such miserable shape! Diana, thank you for the IC link, I will check it out. Honestly, right now the IC is not causing nearly as much of a problem as the scar tissue is. And Christina, thanks again. I see the surgeon Tuesday and am very hopeful things will work out for a quick surgery and recovery. I am blessed to have a wonderful family and wonderful supervisor and co-workers, and I know I can get through this.....just have to make up my mind to do it.

What'snormal, please talk to your doc about the depression and see about getting some help for it. I've had to double my usual Paxil CR dose since the hyst due to all the menopause stuff and dealing with the grief issues (I don't have any kids and it was harder than I thought it would be to lose my uterus). There's no shame in seeking meds or any other help necessary right now to get through such a dark time. Please take care of yourself and know that there are people here who are thinking of you.
Unread 04-30-2006, 08:14 PM
Don't give up!

I had surgery to remove adhesions 5 months after my hyst. One of my fallopian tubes was so twisted by adhesions, it was coming out of the vaginal cuff. I was in a great deal of pain, especially when I would try to walk. The surgeon first attempted to go in laproscopically, but the adhesions were so thick, he could not see anything. So he performed a vertical laporatomy. He had to remove my ovaries since there was no way he could save them-they were too tangled, but he did a great job clearing out the adhesions. After healing I must say that I have not had any more trouble with the adhesions and it has been 4 years now. At the time, I was really depressed at the prospect of another surgery, but I am so very glad I had it done-as the difference is like night and day. I hope that you don't get discouraged. There is hope out there! The surgery and my surgeon were a God-send to me! (((HUGS)))
Unread 05-01-2006, 06:55 AM
Desperately in need of guidance...any have post hyst surgery for adhesions?

I had a surgery two months after my hyster and had many hours of adhesiolysis. However, the surgery wasn't only about that -- it was primarily for removal of lymph nodes and the one remaining ovary (which was entrapped by adhesions). They did spend about 4 hours or more on the adhesions, though, so it was a significant problem.

And now, I have no idea. I've been having a pain in my right hip for the last two months, and I don't know if it is from adhesions or not. I'm hoping that my spine and internal organs are simply out of whack from all that surgery, because that sounds fixable.

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