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My appointment at the Cleveland Clinic My appointment at the Cleveland Clinic

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Unread 05-01-2006, 04:53 PM
My appointment at the Cleveland Clinic

Hi Girls,

I had my appointment at the Cleveland Clinic today. It was everything I expected from such an awesome facility. I went to an interneal medicine dr who specialized in pelvic pain. She spent almost 2 hours with me going over my history and my current complaints and then of course a plan. She believes the adhesions are the cause of my pain and does not want to do any surgery unless I would develop a bowel obstruction. That is fine with me, I am ready for physical therapy and pain management. So it was a very good appt. I will go to a PT that specializes in pelvic pain and pelvic floor muscles. I also have alot of vaginal pain so they will be able to help with that too. Then I will go to a pain mgmt. doc to see if I am on the right pain meds. My new doc today said that my 4 lortab a day is perfectly fine for me if it is working for me. She also put me on Elavil for my fibro and she said it will help the pain.

It's such a relief to have a diagnosis even though it can't be totally fixed, it can be dealt with and I am up to the challenge. It's time to face it that the pain will probably never go away completely. Something I think I have known all along but just really had a hard time admitting.

Thanks for all the support I am sure I will be turning to you girls more often as I work out my treatment plan.

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Unread 05-01-2006, 08:15 PM
My appointment at the Cleveland Clinic

I am so glad you have someone who is listening. Let us know how the PT is going - I hope you get some relief from you pain. Hugs.
Unread 05-02-2006, 03:36 AM
My appointment at the Cleveland Clinic

Great news!
And how ironic....I was also just at the Cleveland Clinic yesterday with my mother (post op tests from her heart surgery)! Quite an amazing place. Come to find out, my endocrinologist did her internship there also!
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Unread 05-04-2006, 08:42 AM
My appointment at the Cleveland Clinic

i had all of my work done there it is a great place..i too am seeing a PT good luck to ya
Unread 05-06-2006, 01:29 AM
My appointment at the Cleveland Clinic

Kay tee
I hope you get your pain under control. It sounds like you took a good first step. I have deep down abdominal pain in my incision area. It is scar tissue and know I will always deal with it too.
I am glad you girls have a facility like that to help you. I am doing well since my anterior repair surgery in Sept. I am still having back pain 6 months post from my fusion surgery. I went to a PM dr this week. The head guy came from the Cleveland Clinic. I figure he must have got alot of good experience there. He put me on some meds, ordered me a tens unit and I am having a ESI the 18th and June 1. I am so glad I decided to check into a PM dr.
Unread 05-06-2006, 11:33 AM
My appointment at the Cleveland Clinic

Sounds like you had a very good appointment. I hope you can find some relief with pain management. Do keep us posted on how you're doing.
Unread 05-06-2006, 08:18 PM


Can you tell me what is an ESI and could you please share what kind of meds and how things are going?

Thanks, Kay-Tee
Unread 05-07-2006, 08:13 AM
My appointment at the Cleveland Clinic

I am so glad you have found help and kind people to
help you. Please keep us posted so we can learn what
is helping, some of us are not so lucky. A lot of women
start getting better and forget about us, let us know
how you are doing along and along.
Unread 05-08-2006, 09:46 AM
My appointment at the Cleveland Clinic

I went to the pm for my back. He checked me out every which way to see where all my back pain was coming from. He put me on a small amount of morphine(15 mg) every 12 hours. It is extended release, which is helping. He also put me on percocet as a prn for breakthrough pain. He heard alot of popping going on when he was checking me out. I told him I have ddd in my spine and I guess arthritis throughout my upper back and shoulderblades and my hip also pops. He put me on a arthritis medicine called Arthrotec. I take it twice a day. It is supposed to be easy on the stomach and helps with osteoarthritis pain.I have a hiatal hernia and bowels issues, so I think this med will be easier on me than some others. A ESI is a epidural steroid injection.He is going in through the sacrum area. The epidural is to numb the area. It will only relieve pain for 2-3 hours. The injection releases steroids into the space around the spinal column. It is supposed to help with nerves that are inflamed and causing pain. I am sure if after the injections and I continue to have problems he will try something else.Mu neuro surgeon has me on Neurontin for nerve pain, which helps too. The pm dr will refill that when I run out.
I go tomorrow(tuesday) for my tens unit.
I am afraid there may still be a nerve or something compressed. I still deal with the constipation issues. I eat right and take colace a couple times an day and miralax 2 times a day. I hurt on the left side of my rectum when I have to push to go. I also have a pain between my vagina and rectum on the left side when I go walking, etc. The colon rectal dr I went to did anal testing and couldn't find a nerve in the left side, which is right where the pain is. I also have had left side nerve pain in my left leg for a very long time.I am thinking I have a nerve trapped or something in the left side of my rectum. I had a rectocele repair in Jan 05. I wonder if scar tissue has formed there and causing this problem? I may have to go back to the rectal dr.
Sorry for rambling.
feel free to PM me anytime if you want.
Unread 05-09-2006, 08:36 AM
My appointment at the Cleveland Clinic

It amazes me how many of us end up going to a PM specialist!! I absolutely LOVE mine and would trade her in for the world! I am getting ready to ask her about Nuerontin or Lyrica because I think I'm having nerve pain in my LLQ. I hate that we all have to take so much medicine everyday to feel normal. But I, for one, am going to do whatever I need to not be in pain. I am just so glad I have a wonderful doc who has the knowledge and understanding to help me along this pathway.

Just wandering what PT for chronic pelvic pain consists of?? Do they have to do internal work?

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