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HPV..questions HPV..questions

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Unread 05-03-2001, 09:48 AM

I went reading around last night and was reminded of all of the information I had read before, when I was first diagnosed. I will remember next time to mark the links so I can post them here.. maybe tomorrow?

Yes, a baby can get HPV infected through vaginal birth, but it is restricted to the throat, as Jeanine said. If it is left untreated, it can cause huge problems in the vocal cords, including lesions (and I will find out the name of that as well. sorry, I was in a haze last night, stayed up too late and shut down the computer without saving a darned thing).

I didn't read anything about men getting it on their penises (penii?) as cancer, just as warts. They can, however, develop rectal lesions that can be cancerous. People have been reported to have mouth and throat lesions from oral sex(!) yikes!

Jeanine, when that study was done, I was handed a copy of it to read by my obgyn. It was a California college, I think Berkeley? and it was shocking what the numbers were. No, it wasn't a controlled study, and who knows, they may have all slept with the same infected guy I don't remember the particulars (remember, it was four years ago that I was diagnosed and I have read a lot since then, but don't recall exact details). All the same, it was a scary study and something like 70% of the women studied ended up with the virus. Maybe not that high, but it was a really high number, enough to make me feel a little less "dirty" for having it myself!

I have also enjoyed reading and posting to this thread! It is the first time that I have found other women who are willing to discuss this. It seemed like no one I have ever mentioned HPV to has known what it was. Besides the one man who believes it is transmited under men's fingernails, that is! And I promise, I will get up to my elbows in this and find links and more information for you ladies to look up stuff for yourself. We need to stay up to date on the latest!
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Unread 05-03-2001, 09:50 AM

oh! one thing about vaginal births. When we were still trying, I told my doctor that I needed information about the possibilities of having a vaginal birth. He said that current thinking is, if you give the woman antibiotics before the imminent birth, the baby will be protected. We decided, for ourselves, that it would be best to have a c-section. I already have abdominal scars, so we could go through that and have a similar recovery.
Unread 05-03-2001, 02:06 PM

I wonder if HPV is killed by radiation. Or will I still have it after my treatment. Perish the thought Love to you all x x
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Unread 05-03-2001, 02:40 PM
More links than you can imagine!

Ok, I went and looked in my history for pertinent links. Ended up cutting about 90% of them out because they were repeats or had bogus information that didn't mesh well with the other sites. I left in one or two that seem to have outdated information, but they have some good points and opinions on them that might be of interest. Kind of the read and draw your own conclusions from this information type sites. Of course, none should be used to diagnose, go against a doctor's wishes or be used as medical advice (nice disclaimer)!

http://www.ppww.org/human_papilloma_virus.htm general description, I think this is on about 100 different sites

http://nccc-online.org/news_0156.htm From the National Cervical Cancer Coalition's site. The rest of this site seems to have good information and support as well.

http://www.ldm.ch/right/papilloma.html numbers

http://phenix.apbiotech.com/refs/bact/bt9848.htm more numbers

http://www.mps.com.au/factsheets/HumanPapilomaVirus.htm Austrailian FAQ sheet

http://www.mtauburnobgyn.com/hpv.html Site says no blood test is available

http://www.reproline.jhu.edu/english.../cxca_hpv1.htm This site, dated 2/6/01 says a seriology test IS available. Also has good information.

http://www.lakewoodpath.com/art-hpv.html Informative

http://www.wdxcyber.com/nvulva04.htm also informative

http://www.insp.mx/cisei/english/proy_7.html Research Page, interesting

http://www.cervicalhealth.com/topica_may99.asp Two year old information, if not older, but it has some interesting points to ponder.

Laryngeal papillomatosis is the name of the throat problem seen in infants and I didn't find a ton of information on it, just references. I didn't do a search specifically, since it doesn't apply to me, but since someone asked, I did take note of the name
Unread 05-03-2001, 09:15 PM

Hey, thanks Zelda! I've been wanting to go back and review again, and it will be easier now with all these links.
Unread 05-04-2001, 01:53 PM

Wow! Thanks for the links! And also thanks for the info on the infant problem. My girlfriend also has asthma so she's hoping that they'll just do a csection and she won't have to worry about it! I've really enjoyed this thread too...like I said earlier I do have several friends that admitted to having HPV but none of them really want to talk about it etc...of course, none of them have had the multiple outbreaks like I have either. I had heard of the mouth warts due to oral sex too...EEEEWWWWW!!!! I've found that I tend to get really itchy right before an outbreak...kind of like I'm getting a yeast infection...anybody else get like that? And that study was from Berkeley and it totally freaked me out...I too wonder if they all slept with the same man?! Right before I had my hyst and the condyloma lasered off I went to see a specialist and he said "it's only a condyloma". Needless to say I never went back to him. I truly think that if men got more warts/cancer scares from it that we'd have had a vaccine years ago. I just don't understand why HPV is never really mentioned in the list of STD's that a person can get. Before I was diagnosed with it I'd never even heard of it. Ok...I'm done ranting now.
Unread 05-06-2001, 10:44 PM
OVER 70% of the people in the world have this virus!

My Dr. is very upset that this virus has gone on for so long without the medical profession admitting it is one of the causes for cevical cancer.He even said if it would do more damage to men it wouldn't have been ignored for so many years.They have traced this virus back as far as they can go on women and it seems to have been around as far back as they can go.And with the tests they can now do on dead bodys thats saying alot!He also said that most of the medical profession will admit that 70% of the people in the wourld carry this virus and that he beleives the numbers to be much higher!He said most people don't know they are carriers.The one thing I don't agree with with him is they say it is only transmitted sexually! I come from a family of 5 girls and we all got the warts at around the same age.This just dosen't seem to add up to me,but a few of us were already sexually active when we got them how about the rest of you were you? not all of us were,it just makes me onder how much they still don't know!God only knows what it could be doing to the men! We know what it is doing to us.My husband used to get outbreaks so bad that after having laser surgery they gave him a drug they called (infusion) I think that was they called it.I gave him a shot in the belly every day for a week or so.that was 10 years ago and he hasen't brokeout since.If it can be used on men or if it's still out there I don't know but it helped him.I'm just glad they are now finding the causes to cervical cancer.For me knowing what caused it in a small way actually helped me to deal with it.I just wish they would find a cure it scares me to think my little girl could one day have to fight it the way we have!
Unread 05-07-2001, 08:01 PM

Thanks for all your posts. I have been researching HPV recently after I stumbled upon the term looking of the causes of dysplasia. My doctors never told me I could have it. I still don't know. I have had cervical problems for 21 years (began after a severe uterine infection caused my an untreated miscarriage...immediately followed by another pregnancy..(and I thought my problems were over when I got through that!))

My woman GP did the vinegar test on me about 5 years ago and said the test was normal. I need to call her for more information. When I questioned my oncologist about HPV... he said I probably have it, almost everyone does... and that there is not cure so he can only treat the symptoms. Then he said the dysplasia would most likely recur and I would need a hyst next time. He also said that a hyst is not guarantee that the disease will not return and invade vaginal cells. I've been a little depressed about the news. I want to hear I am "repaired."

If anyone finds more info about HPV.. I really want to know more. Thanks for all the Links.

Love to you all. We are in this together. My prayers are with you all.

Linda Enger
Cone for CIN II 1/00
Cone for CIN III 3/01
Praying it is gone!
Unread 05-08-2001, 08:48 AM

My empathy Linda. I thought it would be gone with a hysterectomy. Reading these threads made me look again at all of the online information and it is sadly true, HPV can still cause cancer after a hysterectomy. It is rare, but as a few of these unlucky women have found out, it does happen. I have immune problems, we've never found a reason for that, but it seems the HPV feeds on a weakened immune system. When I have been pregnant, it has spread fast and caused problems. I had no problems until I wanted to have a baby and then it all started happening and faster than the doctor said it should have been. A large part of the reason I agreed to a hyst was to get rid of the cancer fears!!

I really wish that all of this nightmare could end. I hope they find a cure or treatment that keeps HPV from turning into cancer. And soon!
Unread 05-08-2001, 01:57 PM

Girls, I had an appt. with my radiologist yesterday and asked him about radiation and HPV. He said that sometimes it is killed and sometimes not. Here's hoping mine is one that IS killed by it. Also Zelda, I have had a weakened immune system during the last few years and I am sure that is whymy CIN3/ cancer is so stubborn. I have since consulted a herbalist who has me on lots of things to boost my immune system. Let me know if you would like to know more. love to you

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