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Started Radiotherapy Tonight Started Radiotherapy Tonight

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  #1  
Unread 05-17-2006, 05:21 AM
Started Radiotherapy Tonight

Hi Everyone, well I've been back at work nearly 3 weeks now after returning home from my lymphadenectomy in April. Back full time and doing ok. I started my radiotherapy tonight, I was a little stressed but all was fine. I'm having 54 gray, maybe someone can explain that to me, I have no idea what that means lol. Anyhow, why i was writing is that i was wondering if anyone has ever used haemeroid cream when they get a sore behind from all the diarrhea? My doctor recommended that I use it for the numbing uses. Would like to hear if anyone has used it and if it made any difference.... thanks
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  #2  
Unread 05-17-2006, 06:13 AM
Started Radiotherapy Tonight

Hi Kaayana,

I am glad to hear that all the funding issues worked out for you. I didn't have radiotherapy so one of the other women here will have to help you.

A Gray (Gy abbreviated)is simply a measure of the dose of radiation that your body will be given. The 54 Gy dose is pretty standard adjuvant pelvic dose after lymphadenectomy. For those women who did not have lymphadenectomy, a higher dose of radiation is commonly given, such as 70Gy.

Hope this helps.
  #3  
Unread 05-17-2006, 06:18 AM
Started Radiotherapy Tonight

Thanks very much for that Nell :-) I see you are the same age as me and we both had the same stage cancer, may I ask why u didnt have RT?
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  #4  
Unread 05-17-2006, 07:40 AM
Started Radiotherapy Tonight

Kaayana,
Just wanted to say good luck with the radiation. I start on Monday. Also I am the same age as you and Nell, just turned 32 last month and have the same stage. What is with all the the women in their early 30s with cervical cancer?

Jamie
  #5  
Unread 05-17-2006, 03:45 PM
Started Radiotherapy Tonight

Goodluck to you as well Jamie, I see we both turned 32 on the same day :-) How many sessions are you having?
  #6  
Unread 05-17-2006, 05:00 PM
Started Radiotherapy Tonight

Kaayana, I will be having 25 sessions of external and then some internal mixed with 6 sessions of weekly Cisplatin. Are you getting chemo too? I have heard that it makes the radiation more effective. Let me know how you are feeling as your treatments go on since I will just be a week behind you.

Jamie
  #7  
Unread 05-17-2006, 09:05 PM
Started Radiotherapy Tonight

As to the women in their 30s with cervix cancer... just bad luck? I don't know. Although I wish it never happened to all of us there is some comfort in knowing that I am not the only one.

After discussion with the gyn-onc and rad-onc I decided not to have RT for a number of reasons, but mostly because I have lymphoedema from the surgery already (from the lymphadenectomy) and it was thought that the chance of me getting severe, both-leg, 'life-altering' as one doc put it lymphoedema from the RT was v high, perhaps 100%.

Although the RT would have reduced my risk of recurrence it was thought that the total benefit that it would give would be outweighed by the side effects. Both the docs told me that they would not have it themselves if it wsa up to them, but that the decision was mine.

Believe me, I agonised over this decision, and if either of my docs had said that I should definitely have it then I would have gone ahead, but I am in the intermediate risk for recurrence group, not the high risk.
  #8  
Unread 05-28-2006, 01:22 AM
Started Radiotherapy Tonight

  Quote:
Originally Posted by foodie
Kaayana, I will be having 25 sessions of external and then some internal mixed with 6 sessions of weekly Cisplatin. Are you getting chemo too? I have heard that it makes the radiation more effective. Let me know how you are feeling as your treatments go on since I will just be a week behind you.

Jamie
Hi Jamie, sorry it's taken me a while to get back to you...been busy busy busy with work and treatment. I was going to have 6 sessions of Cisplatin, but as I had a kidney transplant in 1999 they thought it best if I don't have it.

I'm assuming you would have started yours by now as I am nearly 2 weeks in. How did you go?
  #9  
Unread 05-28-2006, 01:24 AM
Started Radiotherapy Tonight

  Quote:
Originally Posted by nell.australia
As to the women in their 30s with cervix cancer... just bad luck? I don't know. Although I wish it never happened to all of us there is some comfort in knowing that I am not the only one.

After discussion with the gyn-onc and rad-onc I decided not to have RT for a number of reasons, but mostly because I have lymphoedema from the surgery already (from the lymphadenectomy) and it was thought that the chance of me getting severe, both-leg, 'life-altering' as one doc put it lymphoedema from the RT was v high, perhaps 100%.

Although the RT would have reduced my risk of recurrence it was thought that the total benefit that it would give would be outweighed by the side effects. Both the docs told me that they would not have it themselves if it wsa up to them, but that the decision was mine.

Believe me, I agonised over this decision, and if either of my docs had said that I should definitely have it then I would have gone ahead, but I am in the intermediate risk for recurrence group, not the high risk.
Sorry to hear that you are suffering from lymphoedema. It doesn't sound nice from what I have read on the boards. Only you can make the right decision for yourself
  #10  
Unread 05-28-2006, 05:11 AM
Started Radiotherapy Tonight

s and good luck with your treaments!
hang in there!
xoxo
k9
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