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endo after hyster? What to do? endo after hyster? What to do?

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  #1  
Unread 05-20-2006, 11:28 AM
endo after hyster? What to do?

Hello
I'm new here and was reading some of the posts. I too am having a lot of pain on my left side. I had my hyster five years ago and last year had my right ovary removed because it was embedded into the tissue lining, they also released my left ovary and looked for endo then. They didn't see any and I haven't had any symptoms of it in the past. Now I'm having pain that can feel like someone is pinching me from the inside out! My Dr is afraid if we take the left ovary out and I go on HRT that it might not take care of all the pain and then I will be dealing with menapouse and endo. So what is a gal to do? Help.
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  #2  
Unread 05-20-2006, 08:46 PM
endo after hyster? What to do?

Hi JMHO of course, but I think that if you never had endo in the past, it's highly unlikely that you have it now. Endo is endometrial (uterine) tissue that grows outside of the uterus, and your uterus has been out of the picture for five years now with no sign of endo yet. I think maybe the statute of limitations on endo might be up by now.

During your last surgery, it sounds like maybe you had adhesions that were attached to your left ovary. Is it possible the adhesions are back and that's what is causing your pain?

s,
-Linda
  #3  
Unread 05-21-2006, 05:44 AM
hi

Hi,
T had my TAH/BSO three years ago because of "left sided pain". Well, three years and three operations later, that same pain is still there!!! And now I get to deal with all this surgical menopause stuff because I don't want to do HRT. Are they sure this pain is coming from the ovary? Have you had a CT scan or colonoscopy to rule out any other reason? If that ovary is still working, I would hate to have you lose it. I wish someone had sat me down and honestly told me what surgical menopause was like. Believe me, I wouldn't have done it!! So my advise would be to at least have a CT scan, maybe the ovary has devopled a cyst. They can be VERY painful, as that is what started me on this road. Most times a cyst wil resolve itself. Mine just kept getting bigger and was causing me intense pain for over six months. And if it is an adhesion, (I just had a lap done 2 months ago for them) they can take this long to develop and cause problems, then you can have a lap to remove or "free up" the ovary. If you can keep that little bugger, my advise would be to keep it! A ct scan won't show adhesions, but it will show cysts. Good Luck
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  #4  
Unread 05-22-2006, 07:29 AM
endo after hyster? What to do?

Thank You. I go in tommorrow for ultrasound. so yes I want to make sure that we don't do anything without knowing all we can first.
  #5  
Unread 05-22-2006, 07:36 AM
endo after hyster? What to do?

Whatsnormal,

Its only been a year since they "freed" the left ovary, I don't want to go in every year for surgery. I have three girls (6,3,1) and my goal in life is to live the fullest I can each day and make a difference however I can. I have insurance but it only covers 80% on major stuff. So it's more than just the pain, it's money issues, I'm snappy with my girls because I'm in pain and I don't know that I can handle surgery so often, I usually have bladder problems after surgery also. Nothing goes easy for me!!
But will you tell me how intense some of your symptoms are. Can I ask why you don't do the HRT? I'm still learning all I can and would appreciate all the info I can get!
Thank You!
Want2bfree
  #6  
Unread 05-23-2006, 03:22 PM
hi

Hi Want,
How did the ultrasound go? Please let me know. You asked for honesty, so I'll give you some. I had my TAH/BSO almost three years ago. I hadn't even started menopause yet. I had this because of a cyst. I NEVER had any problem with periods, endo, nothing before this cyst. Anyway, I won't be negative, and that won't help you. But my experience with surgical menopause were awful. (still are) I didn't want HRT because I don't trust it, every day there is a new study and a different opinion about it, so I opted out. The night sweats were the worse part for me, although others who live with me would probably say the mood swings. I would wake up drenched in sweat all night long. Even last night, after almost three years, I woke up drenched, and it was only 40 degrees out and I had the window open!!! Also, I have no sex drive at all. No lubrication at all. Some women may say that is no big deal, but for my husband it is. So I try, and we use K-y gel, it helps. Also insomnia big time, haven't slept without a drug since surgery. There is a reason mother nature gives us 7-10 years to go through menopause. This is the hard way! I have aged alot. Wrinkles and cellulite where I never had before. I wear a size six, so it is not because I am overweight. Lack of estrogen does alot to a woman. Now, if you have endo, HRT probably shouldn't be a good choice for you. What is the sense in removing your "natural" estrogen just to replace it with "fake" estrogen? PLEASE research as much as possible, and rule out all else before making any major decisions.
A lot of woman will not have all these side effects from surgical menopause, so you have to do what is right for you. Living in pain everyday is not good either. All I know is that the original left sided pain I had my surgery for is still there, so it didn't help. Good Luck to you, and let me know how your test went, I care.
  #7  
Unread 05-24-2006, 06:04 AM
endo after hyster? What to do?

hello,
I actually had my hyst due to endo problems, I was literally in bed because of pain for 3 days a month and towards the end the pain was outlasting the bleeding portion of my period. Had the hyst, kept 1 ovary, and while the pain is better, I still had cyclical pain until they put me on birth control pills. Life is strange, sometimes! No uterus, but I'm birth control! Anyway, it does help as I no longer cycle, but still have kept the ovary which I've read is a good thing for hormonal regulation.
  #8  
Unread 05-30-2006, 05:57 PM
endo after hyster? What to do?

Hello Everyone!
I had the ultrasound and the nurse said that it looked to be a small cyst on my ovary. She said the ovary itself didn't look to be enlarged, which might indicate it is re-embedding itself into the tissue.
The pain has moved around and I have done more research on endo, I have an appointment on June 13th with a specialist on endo. I'm hoping that he can clear up some lingering questions and give me a better idea of what I'm looking forward to in the future.
I'm really questioning my reg. gyno because he seems to be to wishy washy on everything, and he has been wrong in the past and hasen't seemed to be to aggressive in trying to figure out what is going on. He really should have done a biopsy last year while he was doing surgery. It would have cleared up any questions on the endo.
My pain comes and goes. It seemed to be ok this last week, the week before and the last two days are another story. The pain is intense enough to stop my daily routine and even vicotine dosent releive all the pain.
Will keep you posted
Thanks for caring!!!!!!!!
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