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Nervous, Happy, Nervous, Happy....ARG, the circle! Nervous, Happy, Nervous, Happy....ARG, the circle!

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  #1  
Unread 07-25-2006, 03:34 PM
Nervous, Happy, Nervous, Happy....ARG, the circle!

Hi, my name is Crissy and I'm facing a hysterectomy. All of the abbreviations and slang are new to me and just make me all the more nervous, however I'm feeling a little up since I found this site! I'll try and give the short version of my drama...ha!ha!

I started my first period when I was 9 years old. Until I was the age of 17 did I gather enough information that 2 week long periods were not at all natural...nor was the heavy bleeding that accompanied it all. The first 3-5 days of my periods are so heavy that I feel light headed, vomiting, nausea, pain while having sex, severe cramping, shaking, dizziness and complete and utter fatigue. Every OBGYN would just essentially pat me on the back and try a new birth control, which would usually end up in even crazier periods and symptoms.

Finally in January of this year, I met with a new OBGYN a friend recommended. He was really wonderful. He suspected endo, but for obvious reason could not confirm it until he took inside...when I felt I wanted to explore that as an option. YES, I wanted to know what was going on! 4 1/2 months ago, I went in for lapriscopy and they found endo all over my uterus, colon & appendeix. They removed the endo (left my uterus) and showed me before after pics with a very enlarged uterus..ick. The dr. told me that I could be pain free for a long time or not. Only my body would predict that.

Well...again...here I am 4 1/2 months later....my body/insides are back to their same tricks again and I so enjoyed that month or two of "normalcy." I mentally and physically feel spent....I don't want to deal with this anymore. At the same time a hysterectomy is terribly frightening as I'm scared of ANY proceedure.

Just looking for support and others who have/had been in the same boat and what their stories are!"

So........now for the questions....(drum roll...)

For those of you who were intebated...will I be intebated again? / Is there anything you can do to stop from making swallowing so difficult afterwards?

To anyone else had my similar story...I know the endo may not be alleviated, but did you think just the "pro" of not having 9-14 day heavy periods with strange to painful side-effects outweighed everything else to have the surgery?
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  #2  
Unread 07-26-2006, 07:33 AM
Nervous, Happy, Nervous, Happy....ARG, the circle!

texgal,

I had a very similar situation to yours, only i only got a months relief out of my lapro. My endo came back with such a vengance by the time we did my surgery I couldn't wear jeans without being in pain. I had to manouver to sit in a chair and I could not ride in a car or on our motorcycle for any length of time at all. My surgery was such a blessing to me. I did not realize how many more ailments I was having that were related to my endo. I have become so much healthier since my surgery. My blood pressure has dropped dramatically, my migraines have disappeared.
Yes I was intubated also. The only thing I can tell you is drink a lot before and make sure you are hydrated and keep your juices with you afterwards. I think I went through 2 gallons of apple juice the first day and a half that I was home. I couldn't get enough to drink. My throat was scratchy the first couple days - don't tell DH but it was only 2 days not the 6 that I let on to get the pudding and ice cream that he would get for me. In the end, knowing the result I would gladly trade 2 days of a sore throat to be able to wear white shorty shorts, thongs, not have a purse full of pads, tampons and advil. Life is so much more worth living.
As far as the endo being alleviated, I was a stage 4 endo. I had a very patient doctor and we started progesterin after surgery and will for 3 months. Very mild estrogen to control moods. I am 7 weeks post op and show no signs what so ever. No pain, nothing. I would do it again in a heart beat. Also, doc took his time and left only microscopic pieces that (in the sono) have all but disappeared.
  #3  
Unread 07-26-2006, 11:05 AM
Nervous, Happy, Nervous, Happy....ARG, the circle!

I had my hyst for endo almost 6 years ago. I had had a lap a few weeks prior and I was put completely out for both procedures.

I am glad that you are aware that a hyst is not a cure for endo. Yes, my two year long period is over, but my endo is still around along with PMS and pain. I kept both of my ovaries as I was 25 and for my overall health keeping them was best for me. I also had endo on my bowel walls that was purposely left behind as the risks of removing it were too great.

By keeping my ovaries, I did not have surgical menopause (except for some at the beginning while by ovaries were fussing over surgery) and thus I do not need any type of hormone replacement. However, my own ovaries are feeding the left behind endo and anny endo that was microscopic and unseen at the time of my hyst. Over the last year especially, my pain has slowly increased.

Do your research, seek a second opinion, and decide what is best for you. We have many Endo resources on the site that you might find helpful. If at all possible, you may wish to see an endometriosis specialist or a reproductive endocrinologist.

Many best wishes to you!
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  #4  
Unread 07-26-2006, 01:33 PM
Nervous, Happy, Nervous, Happy....ARG, the circle!

I'm awaiting my 8/17 TAH and am very nervous about it too. I was totally gung ** until I started asking questions here at this site and have become more educated. I'm doing mine for the endo. I was diagnosed at 14 and had my first lap then too. I was successful with 2 pregnancies and at 24 years old, now am ready to get this endo out of my body. I realize the hyst isnt an endo cure, I just can't help think it might help a little bit. I'm still trying to weigh the pros and cons at this point though. I have two kids ds 3yrs and ds 9 1/2 months. I usually heal easily and quickly. I am strong and after 10 years with endo, can handle plenty of pain. I'm just worried about being down for the count for so long afterwards and having to take care of two kids. I don't think this reply will help you personally but I was so excited about your post, it kind of described how I've felt for as long as I can remember being in pain.
  #5  
Unread 07-26-2006, 03:24 PM
Nervous, Happy, Nervous, Happy....ARG, the circle!

Thanks for all of your responses ladies!

Jemo, last time they put me under I couldn't have anything to drink...I think from noon the day before my surgery...so I guess I'll load up on liquids before they cut me off! I'm so nervous my family gave me a gift card to get a massage before the surgery! Maybe that will ease my nerves...but I totally agree with you...a sore throat vs. all this drama is definately worth it! I hope and pray mine turns out as well as yours did!!! Our wierd commonality...I have VERY high b/p and headaches as well!

Weiser, all-in-all, do you regret having the hyst? Your current issues are what scare me....I do the surgery and then what if the pain comes back? I'm clinging to the stories of women who say they had no idea how much pain they were in until after their surgery! It seems like we all keep getting higher levels of pain tolerance....ugh......

LB, I have to kiddos as well...2 & 4...so no doubt I'm very concerned about being down so much longer with the hyst than the lapriscopic procedure. Our dates are right around the same time...we'll have to keep in touch before AND after to see what our pre-op dr. visits bring out...the desire to continue with the hyst or not!?!?!

You ladies are great! I really appreciate ALL and any info you have to share!!!!
  #6  
Unread 07-27-2006, 01:13 AM
Nervous, Happy, Nervous, Happy....ARG, the circle!

texgal:

All in all, no I do not regret my hyst. My endo was found because of my diagnostic lap, D&C, and hysteroscopy. At that time, my GYN cleaned up as much endo as possible. However, my appendix was so inflammed from endo it is a miracle it had not burst and my uterus was totally covered in endo, so those two organs were not cleaned up at all. I had to have an appendectomy to take care of my appendix and the hyst to take care of the uterus. Thankfully, even though I was stage IV, none of my organs and adhered to each other.

I knew before my hyst that endo was going to be left on my bowel walls, so that was not a surprise. I was also aware at the time of my hyst that I could expect future surgery, including a possible BSO.

For me, I had tried all the options available to me. My only other choice was to continue bleeding and wait until I was doubled over in pain -- I basically had no pain prior to my hyst, and bcp controlled my PMS. I had already been blessed with two boys I should not have been able to have and the chances of having more children was pretty zilch, so I went ahead with the hyst, with the support of my DH.

Best wishes to you as you decide what is best for you!
  #7  
Unread 07-27-2006, 12:11 PM
Nervous, Happy, Nervous, Happy....ARG, the circle!

Texgal, I will absolutely keep you updated as to the outcome. I had a serious case of anxiety/nerves over this yesterday but am better today. I'm going through with the hyst, nerves or not. I can't imagine another year, much less the rest of my rerpductive years, with the daily endo pain. I'm back to square one if I don't do this. I just can't wait to have the feeling of relief of knowing it is all over. I can't wait to play longer with my little boys without getting exhausted so fast. I can't wait to exercise again without my back hurting from being tensed up dealing with the abdominal pain. This is a small hurdle that I must cross. I think that despite the chances of endo recurrence and other complications, all in all this will be the best thing for me and you too I'm sure.
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