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Update on my "football". I am TERRIFIED!!! Update on my "football". I am TERRIFIED!!!

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  #1  
Unread 08-02-2006, 09:16 PM
Update on my "football". I am TERRIFIED!!!

Hello ladies

Well here is what has happened. The GP called this morning to tell me that the local (sort of local .. about 140mils away) gyn .. the closest to where I live .. has agreed to accept me as a patient. Well, how nice of him lol. He isn't a gyn-oncol, none of them around as I figured would happen.

I have an appointment next Monday at 12:30, so in 4 days to the minute. My CA-125 was normal so I guess that is something. This will be an initial cosultation when the gyn will decide what is the best course of action. The GP feels that in view of the size of the tumor (my football) he won't decide to wait and see. It will be a case of whether he does a laparoscopy and biopsy first or whether he decides to just go in and remove it.

I am going to grill him on whether he has done this proceedure before! I have been reading up on the net, and it is a horrendous proceedure if they do it right. Since the darn thing is one of those that will come back, they have to do whatever it takes to prevent that, or I will be going back about every 2 years to get it done again. Doing it properly apparently involves removing part of whatever it is adhered to .. in other words if there are adhesions to the peritoneum, they remove that section of the peritoneum and stitch up the breach, they may also need to remove sections of the colon and bladder in view of how large the football is. If this is not done, microscopic parts will be left behind again. The proceedure is fraught with potential complications. I asked the GP about it, and he said that although it is not his area of expertise, my understanding of what will probably happend appears to be accurate.

This is scary on many levels. I don't want to walk away with a colostomy (where I end up with an external sac to void my bowels) or the same for voiding urine. The proceedure carries the risk of severe bleeding .. and that is in most people but because I have a bleeding disorder you can multiply the chances of that by 100 or so. I am rambling here but I am really terrified. Even without cancer this is a nasty business .. and it is not certain there is no cancer

So, now I hurry up and wait til Monday I guess. I may be here quite a bit trying to maintain my sanity. When I got my ovaries out I was so hoping that would be the end of it all.

Thanks for being there ladies. I live a very isolated life, and other than my family who are wonderful, I would otherwise have nobody to turn to .. but now I can come here. Big to you all.

Take care

Kristy
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  #2  
Unread 08-03-2006, 03:24 AM
more news

So much has happened today. I heard from the anaesthetist who was asked to work with the surgeon, and to my surprise a full removal of both the growths is scheduled for Friday of next week. I asked the anaesthetist whether the doctor is a gyn-onc, and he said that he is an ob-gyn, however that he is the one who works in consultation with the oncology centres of the main hospital in the capital city, to do debulking etc locally so he has a great deal of experience. He has been doing this for over 20 years. So, I have to accept that he knows what he is doing. What do you think?

Anyhow, it has really take me by surprise that the surgery is coming up so quickly. The anaesthetist anticipates that it will be a quite long proceedure because the football is so huge. He is not happy to do it in our small local hospital because there is no icu nor any kind of backup system if needed. I have sleep apnea so when they try to put me under the soft pallet collapses down my throat and makes it very difficult to intubate me .. so having other specialists to call on and having backup icu facilities would be much safer. (I really don't like the sound of this). It will be done in Mt Gambier, the second largest city in South Australia and the only major hospital in the area. The anaesthetist advised that I discuss all of my concerns with the surgeon and if it turns out to be too complicated he is confident the surgeon will refer me on. He, my GP and the surgeon all feel the football needs to come out asap before it causes complications. It is already causing a bit of a bowel blockage, which shows up on the CT scan. What next??

So, all things being ok, I should be getting this thing out of me on Friday of next week. This is all happening so fast!! I have no fingernails left to bite!

I think you will be seeing quite a bit of me between now and Friday of next week, cause I am very anxious about it all. Thanks for providing me with a safe haven.

Take care

Kristy
  #3  
Unread 08-03-2006, 04:06 AM
Update on my "football". I am TERRIFIED!!!

Hi Kristy

All i can do is give you a big and say very good luck with your upcoming surgery! I'm sure it will go well and it will be wonderful for you to be rid of that 'football'.

Waiting for the operation is often the most stressfull part of the whole thing. I know it was for me.

Keeping you in my ers.

Rosemary
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  #4  
Unread 08-03-2006, 04:51 AM
Update on my "football". I am TERRIFIED!!!

Hi Kristy,
I've sent along the website of list of CGO's working in Oz via PM. Just in case you want to check the sx name against it.
Whilst you're getting prepped for your surgery, I'll be at my CGO's having my 2nd post-op review. I'll be thinking of you and praying for an ALL_CLEAR for you!!!!!

IOLA
  #5  
Unread 08-03-2006, 04:59 AM
Update on my "football". I am TERRIFIED!!!

Thanks so much Iola. I will keep an eye open for that PM. Hopefully this guy is as good as the anaesthetist says he is. Unfortunately every horror story you have undoubtedly heard about what ppl who go public have to contend with is probably an understatement. We simply do not get to choose our own doctor. I will check out the list and if necessary ask to be referred to a particular person if that is possible.

Thanks again

Kristy
  #6  
Unread 08-03-2006, 05:21 AM
Update on my "football". I am TERRIFIED!!!

Hey! Don't worry! sometimes.. I think Public hospital may be better in the sense that instruments will be clean for starters. More stringent infecton control. I worked for past 10yrs in the public dental system- both regional/rural and metro. and believe me, it's much cleaner than a lot of private clinics around town.

A lot of the time, your hospital experience is related to staff issues, as pt often won't know the infection protocol. Both private and public have the same HR issues - think of it as pot-luck. I had a reasonable experience where I had my op in Malven, Vic but my friend's uncle had a terrible time when he had his op. and it's private, catholic missionary run church! Another friend of mine was in another private hospital for her endo ablation (?) and colon-resection, and the nursing were mean and lazy - when I visited, she was missed on the dinner run!! - and her surgeon, also private, was demeaning to her worries of oozing from her opening suture wounds (she felt that the nurse didn't oppose the suture properly when placing the steri-strips).

Have faith and trust, and know that we'll all be praying for you.

Iola
  #7  
Unread 08-03-2006, 07:57 AM
Update on my "football". I am TERRIFIED!!!

Thanks again Iola .. having checked the list I found there are all of 2 gyn-onc in the entire state that I live in. Being a public patient without medical insurance it could take years to get to see one of them lol. I am feeling rather blessed that I am being seen so quickly, because time is of the essence and quite often people have to wait months. This is a crazy system that we have .. but on the other hand I do have access to excellent care and it is free so I shall not complain too much. Thanks for the help, support and above all for the prayers.

Take care

Kristy
  #8  
Unread 08-03-2006, 08:00 AM
Update on my "football". I am TERRIFIED!!!

Hi Kristy,
Thanks for your update. Things seem to be moving rapidly along and it is good that the surgery has been schedule so you can be rid of the growth soon. I also see you are trying hard to be proactive and asking question re the operation and the doctor. I like to hear that the anaesthetist advised you to discuss all concerns with the surgeon and if it turns out to be too complicated he was confident the surgeon would refer you on.
May your appointment go very well on Monday.
s,
peggiesue
  #9  
Unread 08-03-2006, 09:18 AM
Update on my "football". I am TERRIFIED!!!

Kristy
I can most certainly understand how you feel. My "4 Footballs" size ovarian cyst was removed with no (thank God) complications.
My CA125 was 90. It turned out to be borderline.

He took it all out in one piece..nothing else had to be removed.
I know its horrible waiting...be strong have faith and it will all be ok.

hugs,
jujubees
  #10  
Unread 08-03-2006, 09:45 AM
Update on my "football". I am TERRIFIED!!!

Kristy--I am hoping and praying that they can get this out safely and also take whatever it's attached to without leaving you with an ostomy. Keep on asking questions. Do remember this: for every horror story you hear (and those are the ones that seem to get passed around) there are many many stories of how well things went too.
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