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Anyone have Complex Hyperplasia with Severe Atypia? Anyone have Complex Hyperplasia with Severe Atypia?

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  #1  
Unread 08-14-2006, 06:50 PM
Anyone have Complex Hyperplasia with Severe Atypia?

Hi All,

I want to first say what a wonderful site this is. It has been a godsend for me since finding out 4 days ago I have to have a hysterectomy (LAVH). I was a lurker and now have joined.

I was wondering if any of you have been diagnosed with complex hyperplasia with severe atypia? My gyne said on a scale of 1 to 10, 10 being cancer, these precancer cells are at a 7. I have no other choice, but to remove my uterus. I am also having the ovaries removed too.

I am scared to death and have been crying off and on for this in sept 6, but this site has already helped ease me since I found out. I was curious if anyone else has had this stuff I have?

Thanks so much. I hope you all don't mind, but I am sure I'll be asking bunches of questions..some may even seem stupid, but I need to know. I have many questions and know I can count on this great group of strong courageous women!


SisterAngel
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  #2  
Unread 08-14-2006, 07:03 PM
Anyone have Complex Hyperplasia with Severe Atypia?

SisterAngel: Welcome and I am glad you posted. First I have asked lots of questions on the site and the sisters rush to answer me, and if they can't answer me they offer support. I have been told by the hostesses and the sisters that no questions are stupid and all are welcome. Sometimes when you ask a question you get answers for others who had the same question, or who hadn't even thought of the question yet, but are thankful that you asked.
so keep asking questions, and do not hesitate to seek support, we need to stick together because no one else can truely understand what we are going through no matter how supportive they are.

So as for your question, to be honest I do not have the same condition, mine is endometriosis, fibroids, adhesions, and urinary complications. I will have a total abdominal hyster on Aug 23rd. But my sister does have atypical hyperplasia, she has not had a hysterectomy yet, but it is being discussed, she is 36 (I am 43) so she is interested in keeping her ovaries for a bit longer, and has not made her decision re: surgery yet.
I am sorry that you got the big news 4 days ago, it is always a bit of a shock isn't it. I actually wanted a hysterectomy because I cant endure the pain and bleeding anymore, but as it approaches I am getting nervous and sometimes second guessing my decision, so I feel for you. My poor sister has had many procedures, I believe she has some form of cyrotherapy (I am not sure if that is right, it is sort of "burning" the pre cancerous cells off by freezing them) have you had that??

May I suggest (if you do not mind) that you just pop into the alternative to surgery site it is interesting.
Anyway please keep us posted on your progress, your decisions, and your journey. Remember you are not alone, we may not all have the same condition or symptoms but we are all suffering and will be having similar surgeries. So we will be here for you sister.
Have you read the Land of Hyster bedtime stories yet, they made me smile and gave me some comfort.
Take care
  #3  
Unread 08-14-2006, 07:54 PM
Anyone have Complex Hyperplasia with Severe Atypia?

For myself, after 4 months of having my period (some days heavy), I had a biopsy and was told I had hyperplasia but minor. I insisted on the hysterectomy as I don't want to take drugs to deal with it. I can't handle any more pain/bleeding. I want it to stop. For the past few years I have had problems with Fibroids and heavy menstrul, this last problem has made up my mind for me. I look and feel pregnant and have very little energy. One of the good things is I have been taking a lot of vitamins and drinking pure juices with iron etc to battle the loss of iron etc. While I am nervous and have lots of questions, I am so looking forward to the surgery.
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  #4  
Unread 08-15-2006, 07:44 AM
Anyone have Complex Hyperplasia with Severe Atypia?

Hi Aug2306 & Stevali,

I just wanted to thank you girls for reassuring me. Stevali, I wish you luck in your surgery....we will make it through it. Millions of women have had H and are doing fine and better than before. We girls will make it through with flying colors.

Aug2306, I have not had the freezing of the cells. This is not an option...I must have an H. With 10 being cancer, I am at a 7 precancer...so I am not taking any chances. Thanks for your advice and support. I will most definitely check out the bedtime stores you mentioned.

Good luck to you both!!!!!!!!!!

SisterAngel
  #5  
Unread 08-15-2006, 07:24 PM
Anyone have Complex Hyperplasia with Severe Atypia?

Hi Sister Angel, you are so right that we will come through this with flying colors. I have heard of no negatives as a result of the "H", only good things. I have learned lots from this great site and am so appreciative for it. The support and positive feed back has eased my tensions greatly. Most important is that we get the rest and recover slowly and strongly. I have been making lists of what is most important for me. Items to have at the hospital, items for my fam to know and understand. As I am very independent, I have decided to also not to be afraid and accept any and all help from friends, etc during my recovery so that I don't fret and worry that things aren't falling apart while I recover. To be honest, as sick as I am right now and still going to work, still doing chores, cooking etc, I am looking forward to the surgery and the healing and I plan on being a queen and being pampered. You should do the same. I quit smoking a year ago on Aug 20/06 and once my surgery is done, I am on the road to a healthy lifestyle. The decision is made, now is the time to plan and feel positive.

I will be looking for words from you while you prepare for your surgery and after as well.

All the best to you.

Ali
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