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I need Advice -- Can Endo pain be controlled without a hyst? I need Advice -- Can Endo pain be controlled without a hyst?

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  #1  
Unread 08-29-2006, 09:18 PM
I need Advice

I am 21 and was just recently diagnosed with endometriosis. The past three years has been physically as well as mentally hard on me. Along with the horrible pain i also had doctors who made me believe it was all in my head. It took me 2 years to switch my gyno but when i did within months i had surgery and was diagnosed. Because it took a while to find out the problem i am now being told i need a hysterectomy. My question is if anyone has had any luck finding something that has helped them with the pain that way I can push off the Hyst.. I have been lucky enough to be married to a wonderful supportive husband who has been with me every step of the way and we our currently trying for a baby, but in the mean time i would love if i could get some advice on how to manage the pain that takes days out of my life.
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  #2  
Unread 08-29-2006, 09:47 PM
I need Advice -- Can Endo pain be controlled without a hyst?

I have moved you here to the Options and Alternatives forum where others are also looking at what options/alternatives to a hyst are available to them.

We recently had a thread titled "Which is a good pain med for endo?" that you might want to read.

Also, I highly recommend visiting an endometriosis specialist or a reproductive endocrinologist about your situation.

Have you had a chance to read through the Hyster Sisters' Endo/Adeno Resources? The more you know about endo, the better decisions you can make. A hyst is not a cure for endo, unfortunately.

You can use the search tab at the upper, right of your screen to find other threads that discuss endo. You may also find information at the EndoKnows and the Endometriosis Association websites.

I hope you are able to find medical professionals who can help you make the best decisions for you! And :thumpsup: to have a great DH during this time! That is a tremendous blessing!

Many best wishes to you! s
  #3  
Unread 08-30-2006, 01:53 PM
I need Advice -- Can Endo pain be controlled without a hyst?

There are other things besides a hysterectomy. There are surgeries, hormone treatments, prescription pain killers as needed, and naturals.

I had 4 laps. I got some good years out of them. I also used natural things while I was trying to conceive. I used natural progesterone cream and vitex. They helped me alot with cramping. I used them for 6 years.

If you want to have children definitely don't have a hysterectomy. There are many things available to help you.

If you want to pm me I'll be glad to help you.

Sharon
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  #4  
Unread 08-30-2006, 03:05 PM
I need Advice -- Can Endo pain be controlled without a hyst?

I was diagnosed with endo in my 20s while we were trying for a family. I did finally become pregnant. About 7 years after my DD was born, the pain was really bad and I had laser treatment (lap procedure) and again a few years after that. It really helped. I also tried a Mirena coil which helped for a while and a birth control pill which didn't. I have finally had a hyst last year at the age of 48. I have no regrets in waiting for something so final. I did decide to have my ovaries removed as the dr said that I would be likely to have cysts on them at a later date and I didn't want another gyn op! I had four in all and that was enough for me.
  #5  
Unread 08-30-2006, 09:41 PM
I need Advice -- Can Endo pain be controlled without a hyst?

I was diagnosed with endo while in my 30's and had hyster 6/05. I took extreme methods to help aleviate the symptoms and to try to get rid of it. I was not able to get rid of the disorder but I was able to get rid of some of the pain. I went on a vegetarian diet, no chicken, turkey, beef or pork (to try and decrease the amount of added hormones), I brought a juicer and started juicing fruits and veggies. Herbal remadies such as dong quai are supposed to be good for the uterus. Simply, what helped me was to rid the digestive system of excess material. You may contact me if you have any questions or need anymore info.

I was able to get rid of most pain to the point where my doctor said "why are you not in excruciating pain like most people with endo. You must have pain and not want to tell me."
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