Now it's not Vaginal Cancer. It is still endo cancer that matastisized to vulva??? | HysterSisters
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Now it's not Vaginal Cancer.  It is still endo cancer that matastisized to vulva??? Now it's not Vaginal Cancer. It is still endo cancer that matastisized to vulva???

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  #1  
Unread 09-01-2006, 03:50 PM
Just found out - It is Vaginal Cancer - !!

Well, I just called the doctor's office and the results of my biopsys were received and I do have vaginal cancer. The nurse couldn't tell me anything else, what stage, etc... I am getting in next Tuesday to see an OB/GYN, as mine is out of town, so hopefully I'll know more then.

Very overwhelming because I've been complaining for over two years about extreme pain in my vagina. Sex has been out (tried lubricants that never helped) and my pelvic exams have been SO painful for that timeframe. I'm frustrated because I don't understand how come they didn't look at this before???

I just had a hysterectomy for Stage 1 endometrial cancer. Does anyone know if vaginal cancer is slow growing too?

Any resources or information is so greatly appreciated!!
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  #2  
Unread 09-01-2006, 06:56 PM
Now it's not Vaginal Cancer. It is still endo cancer that matastisized to vulva???

This really stinks if you ask me. First the edometrial cancer and now this.

My personal opinion would be to get to a gyn/onc immediately. They are the ones with the training in the diagnosing and treating of gyn cancers. Since this is now your second one in a very short time, it would be to your advantage to see this specialist.

s
Jane
  #3  
Unread 09-01-2006, 07:10 PM
Now it's not Vaginal Cancer. It is still endo cancer that matastisized to vulva???

Dear vln,

Well first... I want to say I am so sorry. This must be causing you a great deal of anxiety. The waiting for answers is always so hard...

Now, have you been seeing an Gyn/onc? If not, I believe you will need to get an expert involved in your treatment as soon as possible. This is not a situation for an ob/gyn.

Also, I would suggest getting a second reading of your pathology reports ...done by cancer radiologists. I have no idea, but I am wondering ( even though your stage and grade was low?) if this is part of the original cancer. Meaning, is this uterine cancer that has spread? This would bump your original diagnosis up to a 111B which would require a specific treatment. Was your surgery done by your ob/gyn instead of an onc/gyn? If it was not done by an Gyn/onc than your lymphnodes were not checked.

Or, is this a new primary cancer of your vaginal area? If it is then a different treatment would be the case.

Either way, It is very important to make sure you get the proper diagnosis so that you get the appropriate treatment.

I am not a Doctor so I really don't know. However, I think it is imperative that you see a gyn cancer specialist.

Were you getting regular paps? If you did..what were the results these last couple of years? No one ever suggested a colposcopy ( vaginal biopsy) before this last one....with all your complaints of pain and bleeding over the last two years? I can see why you would feel upset and frustrated over this.

Again, if you don't have a Gyn/onc...now is the time to get one involved.

Lots of hugs and comfort, Diane

ps A hostess named 'jeanine' may have some information. I think you can pm or email her.
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  #4  
Unread 09-01-2006, 07:27 PM
Now it's not Vaginal Cancer. It is still endo cancer that matastisized to vulva???

THanks so much for your responses. Actually, I had a total abdominal hysterectomy on 7/26. I went in for my 6 week check up a little early. The OB/GYN did do a pelvic exam, which was difficult to impossible because my vagina was bleeding and it was SO painful. She then did a biopsy, thus the results that I now have vaginal cancer (which I understand there is only a 1% chance of getting).

During my hysterectomy I was told an oncology surgeon did assist in the surgery (never did see the guy). I was told by my Gyn that they didn't look at lymph nodes because the endometrial cancer had not penetrated the uterine walls.

That's why I'm so dang frustrated and worried!!!

Anyway, thanks so much for listening and responding. I'm trying to be positive but having just heard this news this afternoon (I had to call and ask for the results), I'm not keeping it together so well.
  #5  
Unread 09-01-2006, 08:03 PM
Now it's not Vaginal Cancer. It is still endo cancer that matastisized to vulva???

Dear Vin,
I am so very sorry that you have gotten such bad news. That 1st day just stinks. Just trying to get your mind around all this, has to be terrible. I know the day I got the Cancer call, I went into shock. Here you have just been through a hysterectomy and now this!
Please, please, take the advice of these other ladies and get to an GYN/ONC as soon as possible.
My hysterectomy was done by an OB/GYN, (mistake) but once I got to a GOOD ONC, I felt SO much better! They know just what to do.
I'll keep you in my prayers!
  #6  
Unread 09-01-2006, 09:22 PM
Now it's not Vaginal Cancer. It is still endo cancer that matastisized to vulva???

(((vln))) I'm so sorry you are going through this. You are in my thoughts and prayers.

Many s,

Deb
  #7  
Unread 09-01-2006, 09:33 PM
Now it's not Vaginal Cancer. It is still endo cancer that matastisized to vulva???

Dear Vln,
I definitely agree that you need to see a gyn/onc. I can imagine how upsetting this is for you. You may want to ask your doctor to prescribe an anti-anxiety drug to get you through this rough time. My doctor gave me Ativan and it was a huge help.
Positive thoughts and s
  #8  
Unread 09-02-2006, 02:44 AM
Now it's not Vaginal Cancer. It is still endo cancer that matastisized to vulva???

OMG I can imagine the anxiety you must feel. I am due to have a TAH/BSO on 10-9 and am worried it will be more involved than my Onc/Gyn is telling me. I am shocked that your Gyn didn't test the lymph nodes. My Onc/Gyn is going to remove 14 and he doesn't supspect that it is any further than the endometrium(not sure if that is the correct term). He said I may have to have follow up vaginal (internal) radiation if it appears that the cancer has spread through the uterine wall because if the cancer comes back it is generally in the vagina. He is optomistic that I won't need that only surgery but has informed me so I can be prepared. They are very agressive in treatment where I am going. Even though my ovaries look healthy (except for cysts due to PCO) he is taking them.
I hope you will consult with an Onc/Gyn. I am so sorry you are going through this so soon after the first cancer.
  #9  
Unread 09-02-2006, 08:18 AM
Now it's not Vaginal Cancer. It is still endo cancer that matastisized to vulva???

Vin, I am so sorry you are going through so much anxiety right now.
I'm hoping that this is in the very earliest of stages and that you
will be able to resume a life free from pain. It's awful that you have had this problem for so long with no relief.
I am praying for you and hope you get this darned thing behind you and enjoy a full life. All the best, Trisha
  #10  
Unread 09-03-2006, 07:25 AM
Now it's not Vaginal Cancer. It is still endo cancer that matastisized to vulva???

Hi (((Vin))) I am very sorry you are facing this now. I hope you will consult with a gyn/onc soonest. It can help if you can get your records, test results including path reports, to them; having a second reading of the path results may be helpful too and you can discuss th this with the gyn/onc.
Pls let us know how you are doing. I will be keeping you in thought and prayer.
s,
peggiesue
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